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My MSAA Community

9,187 members • 20,915 posts

All posts for June 2021

IVIG

Dr said there is a still a cancer risk with kesimpta as it is essentially the same thing as ocrevas. She suggested IVIG. Does anyone have any experience with...

Dr said there is a still a cancer risk with kesimpta as it is essentially the sa...

Tulip77

•3 years ago

11 Replies

Mavenclad Year 1 complete

Well, it looks like I've been quite fortunate: Cycles 1 and 2 of Year 1 have been completed without noticeable side effects. Phew! Cycle 2 offered a couple of...

Well, it looks like I've been quite fortunate: Cycles 1 and 2 of Year 1 have bee...

Lilith08

•3 years ago

9 Replies

What helps you with MCTD, SLE or MS???

I have found that a whole foods lower histamine diet helps some of my symptoms. Additionally, Bellaruth Naparstek CDs have helped as well. WHAT HAS HELPED YOU...

I have found that a whole foods lower histamine diet helps some of my symptoms. ...

Unraveled

•3 years ago

7 Replies

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Laugh of the day 🤪

Another hot 🥵 day, already 75 at 6am looking at 95+ today 🤪 This is August weather 🥵 Ken 🐾🐾🐾🐾

Another hot 🥵 day, already 75 at 6am looking at 95+ today 🤪 This is August wea...

Kenu

•3 years ago

10 Replies

For @falalala and Bill

😹

erash

•3 years ago

9 Replies

I know it’s not just my husband…

We had a 75+ foot elm tree removed today before it fell on our our house (carpenter ants). I texted Dan this picture so he could see the progress. Here was his...

We had a 75+ foot elm tree removed today before it fell on our our house (carpen...

kris1973

•3 years ago

14 Replies

New to the group

New to this group. wondering how others who are on Ocrevus are doing? I have been doing the infusions for 2 years and having some side effects during and...

New to this group. wondering how others who are on Ocrevus are doing? I have b...

sailing42

•3 years ago

13 Replies

Laugh of the day 😊

Have a great week 👍🙏😉🤗 Ken 🐾🐾

Kenu

•3 years ago

5 Replies

Appt Hell Week

Tomorrow begins my appointment hell week. I'm only half joking when I say "In 2018 I lost my a career as a professional photographer for a...

Tomorrow begins my appointment hell week. I'm only half joking whe...

CrazyCatWom

•3 years ago

7 Replies

Hannah’s Diamond Art

2 of 2. This one is my favorite of hers. -Kris

kris1973

•3 years ago

9 Replies

Hannah’s Diamond Art

1 of 2

kris1973

•3 years ago

6 Replies

I survived the grad party yesterday

I am so exhausted. The last two months have been pretty crazy. All of Hailey‘s graduation festivities (& prom), a week+ of getting our house ready for an...

I am so exhausted. The last two months have been pretty crazy. All of Hailey‘s g...

kris1973

•3 years ago

7 Replies

Unnumbered Post Be Smart 13 Jun 2021

Good day to "YOU" beloved ms family. It is still a nice day today well into the 100f , so I am not going outside. I paid attention and I have learned my...

Good day to "YOU" beloved ms family. It is still a nice day today well into th...

RoyceNewton

•3 years ago

1 Reply

Oliver is home

My daughter and Oliver are home. They had to stay an extra day because my daughters white blood count was high. He is just so darn cute. It is going to be very...

My daughter and Oliver are home. They had to stay an extra day because my daught...

Turtlepie

•3 years ago

30 Replies

Sunday laugh 😆

Have a great day 👍🙏😉🤗 Ken 🐾🐾

Kenu

•3 years ago

9 Replies

AJMC MS Economic Health Burdens and other Studies/Research

I was looking over the articles/snippets in this webpage regarding some MS research and studies that you all may be interested in:...

I was looking over the articles/snippets in this webpage regarding some MS resea...

JMWCO

•3 years ago

4 Replies

Unnumbered post Keep the smile on your face 12 June 2021

Family, good morning. Today is a beautiful day. The sun is shining, we are above the ground. The world is joining us in our craziness. Life is GOOD....

Family, good morning. Today is a beautiful day. The sun is shining, we are a...

RoyceNewton

•3 years ago

6 Replies

Good Saturday Morning 😊

Beautiful day here and weather is unpredictable Idaho. Was 36 last night going to be mid 80’s today and 90’s this week coming. Love the summer morning sunshine...

Beautiful day here and weather is unpredictable Idaho. Was 36 last night going t...

Kenu

•3 years ago

15 Replies

SOOO CONFUSED

I was diagnosed with MCTD or Undifferentiated connective tissue disease in 2014. More recently, doctors have been telling me that I either have SLE or MS. An...

I was diagnosed with MCTD or Undifferentiated connective tissue disease in 2014....

Unraveled

•3 years ago

19 Replies

Unnumbered post Be aware of your mental health 11 Jun 2021

Family, good morning and good day to "YOU" We all have a chronic incurable Central Nervous System(CNS) disorder. I was never taught in school how to cope and...

Family, good morning and good day to "YOU" We all have a chronic incurable Centr...

RoyceNewton

•3 years ago

2 Replies

Meditation and oxygenation?

Do you practice meditation? Do you do breathing exercises like those with Wim Hof?

Do you practice meditation? Do you do breathing exercises like those with Wim Ho...

lemtouni

•3 years ago

10 Replies

Memory and Gabapentinoids

I take 100 mg pregabalin about an hour before bed for neuropathic pain. My memory is terrible, and I wonder if it's from the pregabalin. I honestly can't...

I take 100 mg pregabalin about an hour before bed for neuropathic pain. My memo...

BrotherStein

•3 years ago

27 Replies

Little sick humor today 🤪

Have a great weekend and enjoy 😉 👍🙏🤗 Ken 🐾🐾🐾🐾

Kenu

•3 years ago

9 Replies

Prayers and positive thoughts are needed. Jes as been in the hospital for the last week.

When I couldn't reach Jes for 5 days, l knew something was bad wrong. On day 6, I got this call with this weak little Voice saying she was in the hospital....

When I couldn't reach Jes for 5 days, l knew something was bad wrong. On day 6...

Fancy59

CommunityAmbassador•3 years ago

31 Replies

Baby Oliver

Born at 2:57pm 6 pounds 13.4oz 21.5 inches long. Mommy and baby doing great

Turtlepie

•3 years ago

51 Replies

Icon

How do u add this icon to phone

luvhair

•3 years ago

5 Replies

LIVING WITH MS

HI. I'VE HAD MS FOR 35 YEARS AM VERY DISGUSTED WITH BEING ILL. I ALSO HAVE DIABETES, HAD 3 STROKES AND A BY PASS. I HAVE TO USE A WALKER AND HAVE SPEECH...

HI. I'VE HAD MS FOR 35 YEARS AM VERY DISGUSTED WITH BEING ILL. I ALSO HAVE DIABE...

cartoonpainter

•3 years ago

7 Replies

Newly Diagnosed a few days ago

Hi There! I'm 22 and doctors have diagnosed me with MS just a few days ago. The waiting time to get in with a specialist is 3-6 months! I am doing a steroid...

Hi There! I'm 22 and doctors have diagnosed me with MS just a few days ago. The ...

mina444

•3 years ago

17 Replies

Unnumbered post Checking in 10 Jun 2021

Sisters and brothers, good day to "YOU" all. Just to give you something to think about and a word of warning I may be blunt and hurt your feelings. I do...

Sisters and brothers, good day to "YOU" all. Just to give you something to thi...

RoyceNewton

•3 years ago

2 Replies

sandydemop

family has anybody heard from this young lady?

RoyceNewton

•3 years ago

12 Replies

Posts - My MSAA Community | HealthUnlocked

My MSAA Community

All posts for June 2021

IVIG

Mavenclad Year 1 complete

What helps you with MCTD, SLE or MS???

Laugh of the day 🤪

For @falalala and Bill

I know it’s not just my husband…

New to the group

Laugh of the day 😊

Appt Hell Week

Hannah’s Diamond Art

Hannah’s Diamond Art

I survived the grad party yesterday

Unnumbered Post Be Smart 13 Jun 2021

Oliver is home

Sunday laugh 😆

AJMC MS Economic Health Burdens and other Studies/Research

Unnumbered post Keep the smile on your face 12 June 2021

Good Saturday Morning 😊

SOOO CONFUSED

Unnumbered post Be aware of your mental health 11 Jun 2021

Meditation and oxygenation?

Memory and Gabapentinoids

Little sick humor today 🤪

Prayers and positive thoughts are needed. Jes as been in the hospital for the last week.

Baby Oliver

Icon

LIVING WITH MS

Newly Diagnosed a few days ago

Unnumbered post Checking in 10 Jun 2021

sandydemop

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