Posts - My MSAA Community | HealthUnlocked

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All posts for May 2019

"YOU" already know....

“YOU” already know how strong you are, “You do not have to be told and “YOU” should not expect to be. Do “YOU” remember that flame I have often told “YOU”...

“YOU” already know how strong you are, “You do not have to be told and “YOU” sho...

RoyceNewton

•5 years ago

3 Replies

Neuro follow up for headaches today and my Neuro is leaving

Had my 3 month follow up and all is good on the medical front for my headaches, they are doing MUCH better after adding 3 (10mg) pills of Nortriptyline at...

Had my 3 month follow up and all is good on the medical front for my headaches, ...

bxrmom

•5 years ago

15 Replies

OMG - What a wimp!

I remember 25+ years of never missing a day of work due to illness, and that's true. As the head of my companies, I surely could have taken off, but the only...

I remember 25+ years of never missing a day of work due to illness, and that's t...

MarkUpnorth

•5 years ago

41 Replies

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CBD oil

Is anyone out there using CBD oil to help with their MS? I’m thinking about trying it to help with my legs and the spasticity I have. I’d love to hear from...

Is anyone out there using CBD oil to help with their MS? I’m thinking about try...

tinainsc

•5 years ago

9 Replies

Ocrevus

I have had several Ocrevus infusions and have noticed no change in my ms symptoms. Has anybody experienced a positive result of Ocrevus infusions?

I have had several Ocrevus infusions and have noticed no change in my ms symptom...

efftee

•5 years ago

11 Replies

They ask a lot of questions

My neurologist ‘s office (which is the Cleveland Clinic in Las Vegas) asks a lot of questions and they do a lot of testing before each and every visit and...

My neurologist ‘s office (which is the Cleveland Clinic in Las Vegas) asks a lot...

KimChat

•5 years ago

18 Replies

Ocrevus & insurance - patience required.

So my neuro finally approved my second round of Ocrevus (the 1st full one) in early April. My blood tests are now acceptable to allow treatment. This is now...

So my neuro finally approved my second round of Ocrevus (the 1st full one) in ea...

anaishunter

•5 years ago

6 Replies

Relapsing Remitting ms, the MOST important thing, maybe

Relapsing Remitting ms (RRms) the most important thing, two things actually. Number one and perhaps the most important. There is no cure and honestly that is...

Relapsing Remitting ms (RRms) the most important thing, two things actually. Num...

RoyceNewton

•5 years ago

13 Replies

Michigan, 43 other states suing drug manufacturers

This was in our news today. There are at least 2 MS meds on the list; baclofin and tizanidine: http://bit.ly/2WBOg9a Jessie

This was in our news today. There are at least 2 MS meds on the list; baclofin a...

bxrmom

•5 years ago

11 Replies

Horizant has been approved!!!!!!

Just got a call from the pain dr. and the appeal with the medicine failure and my report. The Horizant has been approved. WooHoo!!!!!

Just got a call from the pain dr. and the appeal with the medicine failure and m...

dailygrump40

•5 years ago

6 Replies

To all furbabie lovers! Guys and Gals.

👍🙏😉🤣😂😆😘. Ken 🐾🐾

Kenu

•5 years ago

7 Replies

HAPPY MOTHER'S DAY! 😊❤🌷

To ALL the Mother's! and Father's (that also play the part of mothering)! 😀❤🌷

To ALL the Mother's! and Father's (that also play the part of mothering)! 😀❤🌷...

RoseySawyer

•5 years ago

1 Reply

Mother's Day

Dear Friends, Happy Mother's Day!! Warm Wishes, Leslie

lbenmaor

•5 years ago

3 Replies

ER

Speaking as a registered nurse of 40 years and a person with MS for 12 years, you did the right thing. Chest pain should never be ignored, you don’t know if it...

Speaking as a registered nurse of 40 years and a person with MS for 12 years, yo...

Blue000

•5 years ago

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Depression and MS I'm struggling

I don't have much support in my life. The Depression has gotten worse and I'm struggling to Keep walking and keeping a positive attitude. I triggered myself...

I don't have much support in my life. The Depression has gotten worse and I'm s...

doveflyfree

•5 years ago

31 Replies

Fall Prevention Information

FYI, Found this information: THE UPS AND DOWNS OF FALL PREVENTION By: Michelle H. Cameron, MD, PT and Stephanie Nolan, OTR/L Mar Falls Library Do you...

FYI, Found this information: THE UPS AND DOWNS OF FALL PREVENTION By: Michelle ...

sashaming1

•5 years ago

7 Replies

New to Group

Hi All, just joined group and looking forward to chats...blogs :-) I was diagnosed with MS in Oct. 2002. Retired, have Relapsing Progressive. I've included a...

Hi All, just joined group and looking forward to chats...blogs :-) I was diagnos...

dperez94561

•5 years ago

19 Replies

On house arrest because of MS

The past 3 weeks my narrow told me not to drive so I feel like I'm on house arrest. It's because last month I fell 31 time and have the medics out three times...

The past 3 weeks my narrow told me not to drive so I feel like I'm on house arre...

MSfrog

•5 years ago

13 Replies

Mayzent and Mavenclad

Hi All.... Has anyone started either of these 2 new drugs? Back in Feb when I told my neuron that I didn’t think Ocrevus was doing anything for me, he told me...

Hi All.... Has anyone started either of these 2 new drugs? Back in Feb when I t...

All7

•5 years ago

31 Replies

Spring's glorious, beautiful, colors!

I'm challenging everyone in the chat room to get your cameras out and to take pictures of your favorite spring flower and flower beds around your home and in...

I'm challenging everyone in the chat room to get your cameras out and to take pi...

Fancy1959

•5 years ago

6 Replies

💥🆘️Falling..... What we can learn from each other and from each and every fall!💢👠💤

This post was inspired by jimeka's last two Falls this past week. As a community and our family I was hoping we could scientifically look at the Falls that...

This post was inspired by jimeka's last two Falls this past week. As a community...

Fancy1959

•5 years ago

38 Replies

OCREVUS INFUSION

Hi all I got my Ocrevus infusion today. Well let me tell you I Hate Traffic and I don’t drive any more thank The The Lord above. One good thing they were not...

Hi all I got my Ocrevus infusion today. Well let me tell you I Hate Traffic and ...

Hidden

•5 years ago

16 Replies

OCREVUS INFUSION

Hi all I got my Ocrevus infusion today. Well let me tell you I Hate Traffic and I don’t drive any more thank The The Lord above. One good thing they were not...

Hi all I got my Ocrevus infusion today. Well let me tell you I Hate Traffic and ...

Hidden

•5 years ago

5 Replies

Hello Family! 🤗

Thank you for your patience! It's Fancy and after a long 6 week recuperation from being in the hospital, I'm finally doing quite a bit better! It seems when I...

Thank you for your patience! It's Fancy and after a long 6 week recuperation fro...

Fancy1959

•5 years ago

41 Replies

MSAA Online Focus Group - Last Day!

Happy Friday everyone! For the final day of questions, what is the most important thing you’ve learned about managing your care that you wish you had known...

Happy Friday everyone! For the final day of questions, what is the most importan...

HelenHU

•5 years ago

44 Replies

For the cat 🐈 lovers

😲😂🤣😆😉🙏🐾🐾. Ken

Kenu

•5 years ago

11 Replies

Thought this was cute 👍

Falalalala is this your furbabie 👍🙏😉😂😁🤣😆. Ken 🐾🐾

Kenu

•5 years ago

3 Replies

falling down,yikes!!

yes I did again yesterday,2 times this week for me also ,the first time my CAT run right in front of me and hit the floor hard, I was ok.people ask what my...

yes I did again yesterday,2 times this week for me also ,the first time my CAT r...

pamgarner

•5 years ago

26 Replies

MSAA Online Focus Group - Day 9

Penultimate day of questions, thank you for all the responses so far! The previous resources have focused on treatment decisions. Now, we’d like you to think...

Penultimate day of questions, thank you for all the responses so far! The previo...

HelenHU

•5 years ago

38 Replies

Nuepro patches for nerve pain.

I was at my pain dr. appt yesterday letting them know how not so well the Mirapex was working. They were shocked !!! Not. Kinda expected to hear it was a bust....

I was at my pain dr. appt yesterday letting them know how not so well the Mirape...

dailygrump40

•5 years ago

10 Replies

Posts - My MSAA Community | HealthUnlocked

My MSAA Community

All posts for May 2019

"YOU" already know....

Neuro follow up for headaches today and my Neuro is leaving

OMG - What a wimp!

CBD oil

Ocrevus

They ask a lot of questions

Ocrevus & insurance - patience required.

Relapsing Remitting ms, the MOST important thing, maybe

Michigan, 43 other states suing drug manufacturers

Horizant has been approved!!!!!!

To all furbabie lovers! Guys and Gals.

HAPPY MOTHER'S DAY! 😊❤🌷

Mother's Day

ER

Depression and MS I'm struggling

Fall Prevention Information

New to Group

On house arrest because of MS

Mayzent and Mavenclad

Spring's glorious, beautiful, colors!

💥🆘️Falling..... What we can learn from each other and from each and every fall!💢👠💤

OCREVUS INFUSION

OCREVUS INFUSION

Hello Family! 🤗

MSAA Online Focus Group - Last Day!

For the cat 🐈 lovers

Thought this was cute 👍

falling down,yikes!!

MSAA Online Focus Group - Day 9

Nuepro patches for nerve pain.

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