OCREVUS INFUSION : Hi all I got my Ocrevus... - My MSAA Community

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OCREVUS INFUSION

16 Replies

Hi all I got my Ocrevus infusion today. Well let me tell you I Hate Traffic and I don’t drive any more thank The The Lord above.

One good thing they were not doing any road work on the Tobin Bridge We made it a little late to the appointment but they took me anyway.

So I started off pretty good, had a hard start finding a good vein but with my Raynards ( which is when my finger get very cold).

I did fall asleep 😴 I got a real bad headache I’ve never had a headache when having my infusion. Well my The Ocrevus bag was done so between the nurse and I we figured out what we happening I was dehydrated and so she gave me a bag of saline. I didn’t have all of it but after about 15 minutes I was feeling a little bit better I still had the headache but not as bad.

So off we went home we got something to eat which helped both of.

I’ve been home for about 5 hours I’m doing much better my walking with my ROLLATOR is good, headache if pretty much gone.

I was feeling a tingling feeling in my legs mostly in my thighs, but not painful.

One thing I noticed was while at the hospital my voice was raspy I let the nurse know she asked me if I had any swelling I said know but I told her that it happened last time. She told me to keep an eye on that and if it goes on for awhile let my doctor know and I said I will. She did ask what chair I had my treatment in last time I said this one. She said we will try to change it for next time it could be the heating system. But as of now it’s gone.

I am feeling very good right now.

I just have to get on the move and do my exercise and probably get some PT

I have to take more control with my life and not let this MS take contact of me.

I am so glad my husband takes me to my infusions he is great support for me. Oh I am so glad he was driving.

ssdw1958

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16 Replies
Timeflies5 profile image
Timeflies5

So glad everything went well for you, sandrawood! Nice to see folks counting blessings for their supportive spouse. Thanks for sharing your experience with O! God bless 😊🙏🏻

in reply to Timeflies5

Thank you 🙏

greaterexp profile image
greaterexp

I’m sorry it was a little rough, but so glad that it went well overall. Thanks for the update!

in reply to greaterexp

Thank you 😊

jimeka profile image
jimeka

Quite the eventful day. Pleased that everything turned out ok in the end, now try and rest up, you will be tired tomorrow, Blessings Jimeka 🤗

in reply to jimeka

Thanks ssdw1958

rjoneslaw profile image
rjoneslaw

Well soldier march on to your own beat. Take control back

in reply to rjoneslaw

I woke up today and the muscle above my knees are not hurting as bad as they have been it sure would be nice if something good came out of taking the ocrevus I will have to wait and see

CalfeeChick profile image
CalfeeChickCommunityAmbassador

Thank you for the update. Glad you are feeling better, hope it continues to Help you. Please keep us posted on your progress. Lynn

in reply to CalfeeChick

I will

jsb0410 profile image
jsb0410

Im so glad that everything went well!!

in reply to jsb0410

Me too 😀

carolek572 profile image
carolek572CommunityAmbassador

Hidden So happy that your infusion is now behind you! I, like you, have a very supportive spouse, and I am ever so thankful for that. Traffic in Boston, isn't that a surprise every time that you are in it? Just like the weather, wait 5 minutes and it will get worse! :-D

in reply to carolek572

Oh you are so right about the traffic. It was soooo bad I’m glad I wasn’t driving. When I got to hospital my nurse took my blood pressure and it was high. You have to realize I never have high blood pressure. I looked at the nurse and said that the traffic we went through. She said to me I will take it again in a little while. Which she did an it went down.

carolek572 profile image
carolek572CommunityAmbassador in reply to

I used to drive in Boston traffic in the eighties, and I changed jobs just so I wouldn't have to drive in Boston traffic every day. I am sorry for the people that have to drive in it every single day! No wonder you had high blood pressure! Glad that it's behind you! :-D

in reply to carolek572

Thanks. I’ve been going to my doctor in Boston for 15 years that traffic has gotten so much worse I really don’t know how people do that every day.

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