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My MSAA Community

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All posts for November 2017

Day 18 Gratitude

So many blessings in my life. Today I am grateful for my adult step-son, who takes time from his busy life to take me to lunch and spend time with me. We met...

So many blessings in my life. Today I am grateful for my adult step-son, who tak...

CommunityAmbassador•6 years ago

The Ocrevus roller coaster 🎢

Here we go again, alot like my first infusion, a couple good days then well.... Here we are again. I believe I compared the day after my infusion to feeling...

Here we go again, alot like my first infusion, a couple good days then well.... ...

•6 years ago

November 18th - I am thankful...

That my husband bought that Mustang convertible, a few years ago, so we could travel down old Route 66, from Missouri to California. I didn’t think it would be...

That my husband bought that Mustang convertible, a few years ago, so we could tr...

•6 years ago

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Anybody else feel like a vampire sometimes?

It's 2:30 a.m. End of the work week. Why am I not sleeping?!. If I don't get in bed by 9:30 or 10 this huge sense of calm but alertness comes over me and I...

It's 2:30 a.m. End of the work week. Why am I not sleeping?!. If I don't get in...

•6 years ago

Do you love to be artsy but can't draw to save your life?

Well, one of the artists I follow has free adult coloring pages (Can be used for kids too!) She has just posted a blog listing a ton of websites that offer...

Well, one of the artists I follow has free adult coloring pages (Can be used for...

•6 years ago

Need neck surgery due to spine degeneration and other lesions with sliding bones to my throat and some cut of spine tissue in the back

Just came back today from Neurologista specialized in brain and neck lesions. He saw my MRI from end of 2016 and explained the new agravation symptoms. I only...

Just came back today from Neurologista specialized in brain and neck lesions. He...

•6 years ago

So Thankful For My Husband!

My husband is 73 and a former triathlete and he is still in excellent shape! He is doing our fall cleaning - washing walls, woodwork, blinds and windows in...

My husband is 73 and a former triathlete and he is still in excellent shape! He...

•6 years ago

Copaxone and weight gain

I posted awhile back that after coming off of Copaxone and going on Tecfidera that I had been loosing weight. I have been meaning to look up weight gain with...

I posted awhile back that after coming off of Copaxone and going on Tecfidera th...

•6 years ago

A question for those on Ocrevus

I have been happy to see some positive results posted here from those on Ocrevus. My symptoms so far are mainly cognitive, not much with physical problems....

I have been happy to see some positive results posted here from those on Ocrevus...

•6 years ago

November 17 - I am thankful for...

My friends on this HealthUnlocked forum!❤️

My friends on this HealthUnlocked forum!❤️

•6 years ago

Applying for SSDI (Social Security Disability Income)

On another thread, SSDI came up. I and my husband have been to a program run by MS CanDo in CO, & they have frequent webinars and all kinds of great...

On another thread, SSDI came up. I and my husband have been to a program run by ...

•6 years ago

Ocrevus first full dose

Well, 4 hours in a recliner had the same initial vertigo however was not as pronounced, a spliting headache and lower back pain. May be due to the length of...

Well, 4 hours in a recliner had the same initial vertigo however was not as pron...

•6 years ago

Grandparents

Sorry WAshingtongirl , I was looking all through my albums and boxes of pictures and could not find the picture that I wanted, so I just posted without it....

Sorry WAshingtongirl , I was looking all through my albums and boxes of pictures...

•6 years ago

Home from Neurosurgeon - good but pointless appointment

Since I have not had pain for the last 2 weeks there was nothing to do. Neurosurgeon said that if it happens again to call and that there is a shot I can get...

Since I have not had pain for the last 2 weeks there was nothing to do. Neurosur...

•6 years ago

Does it ever...

Get better or always worse

Get better or always worse

•6 years ago

November 16th - I am thankful...

For grandparents!❤️💓💕❤️ My fathers parents both died when I was very young but I remember them with love. My mothers parents were the most wonderful,...

For grandparents!❤️💓💕❤️ My fathers parents both died when I was very young but...

•6 years ago

Hospital

Well I have been admitted

Well I have been admitted

•6 years ago

Biotin, the vitamin most of us take,cause some interference in regular blood test, immunoassay. We shoud stop one week before blood work.

I read 2 articles about little changes in results from blood test because biotin is part of the components of the immunoassay and we are taking high dose...

I read 2 articles about little changes in results from blood test because biotin...

•6 years ago

Ugh

Home health care only allowed 4visits.

Home health care only allowed 4visits.

•6 years ago

New Here 😊 Ocrevus ?’s

Hi everyone, I’m 43 y/o female with RRMS. Currently on Tysabri- will wean off that, then nothing for few months then Ocrevus. JC + , already been on Tysabri...

Hi everyone, I’m 43 y/o female with RRMS. Currently on Tysabri- will wean off t...

•6 years ago

Home health...

The home health is sending someone after lunch. Pray this works!

The home health is sending someone after lunch. Pray this works!

•6 years ago

Going on long term disability

I have finally made the decision to leave my job because of my MS. I am unable to keep up with the demands of the job even with accomodations. My question is...

I have finally made the decision to leave my job because of my MS. I am unable t...

•6 years ago

It's been a long time since I chimed in here...

And even longer for my warrior(ess)... Some of you may remember me as one of many caregivers who read and post here. I'll give you the skinny for the last...

And even longer for my warrior(ess)... Some of you may remember me as one of man...

•6 years ago

November 15th - I am thankful...

That I had two parents that loved me ❤️. This picture is very old (as you can tell by my mothers hair style) and not of great quality but I think it is a cute...

That I had two parents that loved me ❤️. This picture is very old (as you can te...

•6 years ago

Ocrevus

For those who have chosen to start Ocrevus, could you share how you qualified for reduced or no copay programs? What kind of information did you have to share?...

For those who have chosen to start Ocrevus, could you share how you qualified fo...

•6 years ago

What was your first DMT?

I will be discussing DMTs at my next appointment. Newly diagnosed but haven’t been given the type yet....I’m assuming RRMS but not sure. What was the first...

I will be discussing DMTs at my next appointment. Newly diagnosed but haven’t be...

•6 years ago

Year mark and doctor visit

Hello all! I have been quiet for the past 6 months. Going back to work uses up all my energy, but I do catch up on posts every so often. I am so glad to...

Hello all! I have been quiet for the past 6 months. Going back to work uses up...

•6 years ago

MRI Set up

Got my MRIs set up and my follow up with an EMG. I'm going to have all kinds of tests done with in the week. As sucky as it will be let there be something...

Got my MRIs set up and my follow up with an EMG. I'm going to have all kinds of...

•6 years ago

Had to kick my boyfriend out :/

We had been together this time around for almost 2 years and I found out this morning that he had been getting into my pain pills!! And apparently he had...

We had been together this time around for almost 2 years and I found out this mo...

•6 years ago

Its that time again! My 6 month mark on Ocrevus.

Tommorows the day! The day for my first full dose of Ocrevus. My last six months have been filled with ups and downs. However, even with the ups and downs the...

Tommorows the day! The day for my first full dose of Ocrevus. My last six months...

•6 years ago

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