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ITP Support Association

4,122 members • 2,095 posts

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WHY DO WE GET ITP or any AUTO IMMUNE ILLNESS ?

As we approach September ITP Awareness Week starting next Monday 23rd September the following video is a must watch for anyone with any interest in ITP. The...

As we approach September ITP Awareness Week starting next Monday 23rd September ...

•4 days ago

FEARED BY THE BAD, LOVED BY THE GOOD

FEARED BY THE BAD, LOVED BY THE GOOD We are heading to Robin Hood Country. Join us at the Mercure Nottingham Sherwood Hotel on Monday 4th November from...

FEARED BY THE BAD, LOVED BY THE GOOD We are heading to Robin Hood Country. ...

•10 days ago

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TEENAGERS and ITP

Teenagers and ITP Prof Nikki Cooper This is a presentation from our UK and Ireland ITP Support Association Annual Patient Convention held at the Cavendish...

Teenagers and ITP Prof Nikki Cooper This is a presentation from our UK and Ir...

•13 days ago

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avatrompobag

Hi. Just stated avatrompobag last Monday. Been fine till this morning now stomach reacting a little to it I think. Anyone know if I can take anti diarrhoea...

Hi. Just stated avatrompobag last Monday. Been fine till this morning now stomac...

•13 days ago

just started Avatrombopag

Hi all! update to my earlier post. My platelets dropped back down to 11 today. Been dropping bit by bit for weeks. The bruising and Petechiae appeared today....

Hi all! update to my earlier post. My platelets dropped back down to 11 today. ...

•17 days ago

LATEST ISSUE OF THE PLATELET MAGAZINE

You can read the September issue of the ITP Support Association 1/4ly magazine The Platelet for FREE at the following link -......

You can read the September issue of the ITP Support Association 1/4ly magazine T...

•19 days ago

CAUGHT NAPPING - ITP and FATIGUE

CAUGHT NAPPING - ITP and FATIGUE The latest from my ITP blog looks at the impact of fatigue in ITP and many other chronic illnesses and how to help combat......

CAUGHT NAPPING - ITP and FATIGUE The latest from my ITP blog looks at the impac...

•24 days ago

still a bit new to this!

hi Found out I have ITP June 4th. Looking back I think I’ve had it a long time (probably for years but not all the time and maybe not low low). This year I’d...

hi Found out I have ITP June 4th. Looking back I think I’ve had it a long time...

•1 month ago

OUR NEXT ONLINE SUPPORT GROUP MEETING Via ZOOM

Our next online support group meeting via Zoom will be on Thursday September 19th at 7pm GMT. Anyone with any interest may join us but you must pre register...

Our next online support group meeting via Zoom will be on Thursday September 19t...

•1 month ago

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ITP SUPPORT - KEEPING IT LOCAL

This is the recording of the England and Wales ITP Support Group Meeting that took place on Thursday 1st August 2024 with Dr. Will Lester, plus Mervyn Morgan...

This is the recording of the England and Wales ITP Support Group Meeting that to...

•2 months ago

ENGLAND and WALES ITPSA VIRTUAL PATIENT MEETING

ENGLAND and WALES ITPSA VIRTUAL PATIENT MEETING Please join us online on Thursday 1st August at 7pm for the England and Wales ITP Support Association Virtual...

ENGLAND and WALES ITPSA VIRTUAL PATIENT MEETING Please join us online on Thursd...

•2 months ago

ITP in CHILDHOOD

ITP in CHILDHOOD We get many queries about ITP in Children and understandably so as it is quite frightening for any of us to be diagnosed with ITP at any......

ITP in CHILDHOOD We get many queries about ITP in Children and understandably s...

•2 months ago

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Do I need to see a hematologist or blood doctor (oncologist)

I've been diagnosed with itp & have had it for well over 20 years. Over the years I've been seeing a hematologist with no good results. Does anyone see a...

I've been diagnosed with itp & have had it for well over 20 years. Over the yea...

•2 months ago

KEEPING IT LOCAL

We have been running local support group meetings via the ZOOM facility and in person for a good while now and the next round of these will be coming up soon....

We have been running local support group meetings via the ZOOM facility and in p...

•2 months ago

life insurance with itp

hi all, I have recently been diagnosed with thrombocytopenia. I am in the process of buying my first flat and am being rejected for life insurance left right...

hi all, I have recently been diagnosed with thrombocytopenia. I am in the proces...

•3 months ago

anyone living with a single figure count without treatment?

Hi everyone I’ve had ITP for 12 years and it has been controlled well by short courses of steroids which were giving me one to two years of remission....

Hi everyone I’ve had ITP for 12 years and it has been controlled well by short...

•4 months ago

itp(information)

Hi all, I have been dealing with Itp since December 2022. My numbers fluctuate from 50k-76k. In march 2024 I had an Ivig infusion with decadron 10mg to...

Hi all, I have been dealing with Itp since December 2022. My numbers fluctuate ...

•4 months ago

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The UK & Ireland ITP Support Association Academic Scholarship Programme 2024

The UK & Ireland ITP Support Association Academic Scholarship Programme 2024 Nominations for the 2024 ITP Academic Scholarship Programme are now being...

The UK & Ireland ITP Support Association Academic Scholarship Programme 2024 No...

•4 months ago

Eltrombopag

Hi I am Emmanuel from India.I need Eltrombopag 50 mg or 25 mg at low cost.I am searching for cipla company eltrombopag which mrp is Rs 890. Plz suggest if it...

Hi I am Emmanuel from India.I need Eltrombopag 50 mg or 25 mg at low cost.I am s...

•5 months ago

ITP SUPPORT ASSOCIATION ANNUAL CONVENTION - LONDON 2024

Join us at the ITP Support Association Annual Patient Convention on Saturday 11th May 2024 at the Cavendish Conference Centre, 22 Duchess Mews, London W1G 9DT....

Join us at the ITP Support Association Annual Patient Convention on Saturday 11t...

•5 months ago

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Statin drugs with ITP

Because of high LDL I started taking a statin drug a couple of months ago. I was shocked to see my platelets dropped from about 112 to 90 in just a couple of...

Because of high LDL I started taking a statin drug a couple of months ago. I was...

•6 months ago

ITP on YOU TUBE

A reminder for all those new to ITP or indeed those who have been in the purple for some time. We have over 100 ITP related videos available to view for free...

A reminder for all those new to ITP or indeed those who have been in the purple ...

•6 months ago

ITP SUPPORT ASSOCIATION ANNUAL CONVENTION LONDON 2024

ITP SUPPORT ASSOCIATION ANNUAL CONVENTION LONDON 2024 Tickets may be reserved now for our Annual Convention in London on May 11th but they are selling fast so...

ITP SUPPORT ASSOCIATION ANNUAL CONVENTION LONDON 2024 Tickets may be reserved n...

•6 months ago

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ITP on ITN

RARE DISEASE DAY 2024 - February 29th A huge thank you to Rare Disease UK Genetic Alliance UK and ITN Business for sharing my ITP story and helping to raise...

RARE DISEASE DAY 2024 - February 29th A huge thank you to Rare Disease UK Gene...

•7 months ago

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Question about aspirin.

I have Anti B2 glycoprotein antibodies and take 75mg aspirin daily, for that.Also have mildly low platelets which I'm told is cause for petechiae and...

I have Anti B2 glycoprotein antibodies and take 75mg aspirin daily, for that.A...

•7 months ago

ME and MY ITP

The following article is one that I have written for Rare Disease Day 2024 and it appears on the Genetic Alliance UK website. It tells the story of my 18...

The following article is one that I have written for Rare Disease Day 2024 and i...

•7 months ago

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ONLINE SUPPORT GROUP MEETING via ZOOM

REMINDER - OUR NEXT ONLINE SUPPORT GROUP MEETING TOMORROW FEB 21st The third of our regular online support group meetings via ZOOM for 2024 is due to take...

REMINDER - OUR NEXT ONLINE SUPPORT GROUP MEETING TOMORROW FEB 21st The third of...

•7 months ago

RARE DISEASE DAY 2024 - FEBRUARY 29th

Here is my take on Rare Disease Day , what it is , why it is important and the reasons why we should get involved. It also provides all the links that are...

Here is my take on Rare Disease Day , what it is , why it is important and the r...

•8 months ago

Decided to not have anymore treatment

Has anyone decided to stop all treatment?? I have had ITP for 10 years. It took a while to find something that worked and tried a few treatments before I went...

Has anyone decided to stop all treatment?? I have had ITP for 10 years. It took...

•8 months ago

Dex (3rd round) diminished reponse...looking at doptelet

Hi only getting a transient response from dex which is less effective each time. Hematologist is trying for Doptelet. Got a call from a pharmacy through...

Hi only getting a transient response from dex which is less effective each time....

•8 months ago

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