still a bit new to this!

[Janau]

hi

Found out I have ITP June 4th. Looking back I think I’ve had it a long time (probably for years but not all the time and maybe not low low). This year I’d been bruising a lot on my legs arms and midriff. Found out I had a count of 8. Steroids for a few weeks which put it back up to around the 140/150. Came off them and it dipped to 137 which was great. Last Mondays blood test back down to 57. Another blood test booked for this Wednesday.

no real symptoms no bruising bleeds rash etc.

but I do get hot flushes on and off which I had noted before diagnosis (I’m 62 well past that stage I thought!). Also achy legs sometimes and muscle aches especially in my hips. I know I’m no spring chicken but been as fit as a flea before!

My main question is exercise and work. I am a very keen photographer and can walk miles with this. Before my count of 57 I went to Bath and climbed all the steep hills did about 15 km. no issues with this but next day I was much more achy legged than I would have been before.Anyone know if this would affect my numbers? Same this weekend walking on flat and not as far. No bruising though. I did notice pre diagnosis if I did a big walk(and I power walk) my legs had loads of green/yellow bruises. Haven’t had them lately.

I have a very busy job as a school catering manager on my feet for 7 hours 5 days a week. I did take some time off end of last term as the steroids made me feel like a zombie. I have told them I am going back in 2 weeks but to be honest I am a little anxious about how I’m going to manage like I did before. Before this I walked to work about a mile away and it’s all uphill quite steep, worked and mostly walked back home. I’ve done this for 32 years! I’m not on any meds and hoping to keep it that way but we will see.

I know I’m a bit of an old bird now but I’m not ready to give in just yet!!

Thanks for listening