RARE DISEASE DAY 2024 - FEBRUARY 29th - ITP Support Assoc...

ITP Support Association

4,167 members2,133 posts

RARE DISEASE DAY 2024 - FEBRUARY 29th

Anthonyh7 profile image
3 Replies

Here is my take on Rare Disease Day , what it is , why it is important and the reasons why we should get involved. It also provides all the links that are needed to find out how to take part.

This is the link to the article - itpsupport.org.uk/rare-dise...

#RAREDISEASEDAY Rare Disease Day GeneticAlliance Staff Rare Disease UK Mervyn Morgan Itp People ITP Platelet Disorder UK & Ireland ITP Australia & New Zealand

Written by
Anthonyh7 profile image
Anthonyh7
To view profiles and participate in discussions please or .
3 Replies
itplassne profile image
itplassne

Thank-you for your article. (Unfortunately none of the links you'd given seem to work: please could you amend them?)

Anthonyh7 profile image
Anthonyh7 in reply toitplassne

Here are some useful links -

1. Rare Disease Day - What it is - rarediseaseday.org/what-is-...

2, Rare Disease UK - raredisease.org.uk

3. EURORDIS - Rare Disease Europe - eurordis.org

4. Sharing A Rare Disease Story - rarediseaseday.org/share-yo...

itplassne profile image
itplassne in reply toAnthonyh7

Super: thank-you 🙂

Not what you're looking for?

You may also like...

It's JUST ME AND MY ITP

It's JUST ME AND MY ITP For Rare Disease Day last Friday February 28th, I was lucky enough to be...
Anthonyh7 profile image

ITP/autoimmune disease

I am 53 now, so you can imagine not much was known when I was 6! I bruised easily and was always...
klc517 profile image

OUR FIRST ONLINE SUPPORT GROUP MEETING of 2024

OUR NEXT ONLINE SUPPORT GROUP MEETING A reminder that our first online support group meeting for...
Anthonyh7 profile image

Diet for ITP Patients and is this a curable disease?

I am 39 and was just diagnosed with ITP 3 days ago. It is something very new to me. I had blood...
sonia1973 profile image

WHAT ARE YOU DOING THIS TIME NEXT WEEK ?

Anyone can join us at the ITP Support Association Convention but you MUST REGISTER before next...
Anthonyh7 profile image

Moderation team

AnthonyHeard profile image
AnthonyHeardAdministrator

Content on HealthUnlocked does not replace the relationship between you and doctors or other healthcare professionals nor the advice you receive from them.

Never delay seeking advice or dialling emergency services because of something that you have read on HealthUnlocked.