Hi only getting a transient response from dex which is less effective each time. Hematologist is trying for Doptelet. Got a call from a pharmacy through medicare (in the US) yesterday who offered it for $1900+ a month. Hilarious.
I am putting part of life on hold...ie exercising because I don't want to risk falling. And not sure what is/will happen with bone health. Thinking twice about driving on the highway.
Wondering why steroids would work for a bit then not (do they work on plasma antibodies or something specific?).
Thanks.