Dex (3rd round) diminished reponse...... - ITP Support Assoc...

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Dex (3rd round) diminished reponse...looking at doptelet

cyclist123 profile image
7 Replies

Hi only getting a transient response from dex which is less effective each time. Hematologist is trying for Doptelet. Got a call from a pharmacy through medicare (in the US) yesterday who offered it for $1900+ a month. Hilarious.

I am putting part of life on hold...ie exercising because I don't want to risk falling. And not sure what is/will happen with bone health. Thinking twice about driving on the highway.

Wondering why steroids would work for a bit then not (do they work on plasma antibodies or something specific?).

Thanks.

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cyclist123
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7 Replies
IVMama profile image
IVMama

I am on a free trial for Doptelet to build up my platelets so I can have derma surgery. So far no side effects. Been told the $$ and won't be able to afford this either.

cyclist123 profile image
cyclist123 in reply to IVMama

Good luck with the surgery. Have you tried for promacta?

IVMama profile image
IVMama in reply to cyclist123

No

joecirillo profile image
joecirillo in reply to IVMama

Norvartis has a program you have to apply for where you can get Promacta free

OldMan69 profile image
OldMan69

Read the Doptelet website closely -- you might qualify for the program where they give you the drug for free.

cyclist123 profile image
cyclist123

Update: Managed to get approval for doptelet assistance program with doctor's help. In week two now.

IVMama profile image
IVMama

Doctor helped me to get the doptelet approved for free. Notice some stomach issues.

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