Dex (3rd round) diminished reponse...looking at doptelet

[cyclist123]

Hi only getting a transient response from dex which is less effective each time. Hematologist is trying for Doptelet. Got a call from a pharmacy through medicare (in the US) yesterday who offered it for $1900+ a month. Hilarious.

I am putting part of life on hold...ie exercising because I don't want to risk falling. And not sure what is/will happen with bone health. Thinking twice about driving on the highway.

Wondering why steroids would work for a bit then not (do they work on plasma antibodies or something specific?).

Thanks.

[IVMama]

I am on a free trial for Doptelet to build up my platelets so I can have derma surgery. So far no side effects. Been told the $$ and won't be able to afford this either.

[cyclist123 in reply to IVMama]

Good luck with the surgery. Have you tried for promacta?

[IVMama in reply to cyclist123]

No

[joecirillo in reply to IVMama]

Norvartis has a program you have to apply for where you can get Promacta free

[OldMan69]

Read the Doptelet website closely -- you might qualify for the program where they give you the drug for free.

[cyclist123]

Update: Managed to get approval for doptelet assistance program with doctor's help. In week two now.