I'm pretty new to ITP (2 stormy months since diagnosis with 1000 platelets).
High dose prednisone, IVIG did nothing good (just bad). On Revolade now, thankfully . so far seems to be having an affect! Now the thing is - I was just starting a new job when this broke out! I need to move to the UK (London) for it. It's a really good job, I worked super hard to get it, and they do offer very good private health insurance.
However, since medical procedures/bureaucracy is very different from country to country - I could really use some pointers to get started on finding the right way to manage this (I am trying to find out what I'm covered for and that's it's sufficient).
For example, in my country: most hospitals have hematology clinics, that also have day-care. They draw blood and get results on the spot just before the appointment with the hemo. Any clinic, and any hemo doctor, can see an ITP patient. The hemo writes recommendations which I then take to my GP (a 'family community doctor') and she follows my case, prescribes according to recommendations any tests needed, prescriptions, and provides general care for me. My national health insurance pays for it. I won't be eligible for NHS in this case, but will have private insurance.
What is the procedure like in the UK to see a hematologist? Are there specialized places for ITP? How and where do you draw blood and who prescribes tests/medicines? Is care available or do I need to try book an appointment months in advance? Do you have recommendations for doctors/blood labs in London?
Any info would be greatly appreciated as I am just starting to learn, and since most sources online relate to NHS, I'm kind of confused here... Thank you!