Travelling abroad

[Monty55555]

Do any of you still fly and go on holiday with ITP?

[Jwong65]

Yes of course. You have to live your life normally. Just ensure you have medical letters and required medications with you. But if your platelets are under 20 some doctors don’t recommend you flying incAse of air pressure that may cause nose bleeds while flying. I travelled with platelet of 50 and everything was fine. Hope that helps

[Castle155]

As the other reply says I'm currently away at the moment my count was 10 had an infusion of ivig and a wk later off I went. I carry my injections with me and haven't had any problems I carry them with me and if ever questioned I would just inject on the spot so as not to loose them (but this has never happened even when I did America earlier in the yr. Happy travels x

[Dawnwarry]

I've had ITP for umpteen years and go abroad at least once a year. No medication with a platelet count of between 40 and 90. As long as you declare it on your insurance there is no problem as far as I'm aware.

Don't let it rule your life 😀

[Monty55555]

Who do you use for your travel insurance and is it crazy expensive?

[Dawnwarry in reply to Monty55555]

I have had several over the years and it's never been any more expensive. Although that could be because I'm not on any medication. Hope that helps.

[Morgan]

I have suprisingly used Debenhams this year and for me and husband they only charged us £23 which is the lowest I have ever paid for silver cover and that's with ITP and hypertension covered. I do not take meds for ITP and only see the specialist or doctor 6 monthly (usually pay about £45 for two of us with other companies). I go abroad twice a year.

[Monty55555]

Thank you everyone

[dnash58]

Have travelled to US, Papua New Guinea and recently returned from Morocco.

In the first two trips I had to be certain that my count remained above 50 in the event of an accident; dexamethasone was good at that and was a little more cautious than usual.

For my latest trip, 3 flights over 30 hours was a real test but my platelets are very stable now to the point of remission.

Long story short; you know your condition and how it affects you.

Be careful, pack your meds and think ahead

[Monty55555 in reply to dnash58]

Thank you

[Perman]

I’ve been on a few holidays since being diagnosed no problems. No one mentions platelet transfusions. I have had 2 last year and they helped.

[Lynwoodley]

Hi I travel about every 6 weeks long haul 13 hours my blood is normally about 40. I have a blood test b4 I fly as my consultant said it’s not good to fly if under 35. I have never been on any meds

[ITPAffecty]

I have traveled 3 times to and fro to India from USA with count below 20k and I was totally fine. I wasn't using any medication at that time and I feel it's okay to do that if we are not too sensitive on bleeds. Each trip includes 3 flights and longest being 15hrs in a stretch. Due to sleeplessness, jetlag, tiredness, my bruises used to increase after trips but I was able to recover soon with good sleep and good food.

[Monty55555]

thank you for everyone's responses I have recently had a splenectomy, before this nothing was keeping my count up without any drugs. I'm only 4 weeks after the operation but at the moment all good. I haven't been abroad for 2-3 years now so 2018 I am certainly booking to go away and get some sunshine

Thanks Tom

[DAVIDJOEL]

Flying down to Puerto Vallarta from LA in 7 days. Gonna take 10 mg of Prednisone starting tomorrow for 10 days . Platelets at 40.