Itp

[Izzy14]

Hey guys, my names Isabelle, I'm 14 and I have ITP, I'm in 9th grade now when I first found out I had ITP I was in grade 1..

I fell of my bike and instantly there was a huge goose egg on my leg and I was covered in spots(peticia <idk how to spell it). When I was brough to the hospital I was tested on and they found 0 platelets they tested me 5 times till finally they found 1 platelet.. They highest amount of platlets I've ever had since then was 50-60..

I can't do a lot of things normal kids do and sometimes I sit and my room and cry become I think of what if I never had ITP then I'd be able to do the same things my friends do.. And then sometimes I think of it as a curse it's stoping me from doing things I love.. And it makes me sad and I just want it to go away

[Lynwoodley]

Hi Isabelle you have had ITP for a Long time and from a very young age. Some times you get into a rut and think that there are a lot of things you can’t do. Maybe it’s time to say stuff ITP and start living as near a normal life as you can. You need to make more friends and start going out with them and having fun dont sit in your room crying if you are having a bad day contact friends and family and talk about fun things. Plan to Try to do something new every week so matter how small then if you achieve it you will feel so much better take care and update us all of your achievements no matter how small x

[HOLCOTT]

Oh poor Izzy. 14 is a hard age anyhow - I cried and didnt have ITP. Things are sure to feel better . ups and downs. What do you like? what would you like to do? Do you have a d=good heamatologist who can tell you whats what?

I am 52 and my platelets are18-70 and my heama in Oxford says i can do sport so i do korfball and love it. are ypou in the UK?

jenny

[Arditajtsh]

Hi izzy❤️ My name is Ardita . My little brother is diagnosed with ITP too.He is 14. He was diagnosed in 27. Oct. 2017. We were all worried about him and really really scared until we found out that this disease is not dangerous . You dont have to cry , you are still healthy and you can have a normal life but you have just to be more careful. I know its hard to understand why this happent to you but izzie you have a long life ahead of you. you can have a talk with me anytime you feel sad and alone. I will consider you as my little sister and since you have the same problem as my brother , it will be easier to understand you. Best wishes for You xoxo

[Bellazac1971]

Hi Izzy-my daughter is Isabella, also 14 and also has ITP. Let me know if you would like to message her as she would love to link with someone in the same position.Looks like you already have a lot in common.

You are all superstars and I have complete admiration for how you guys get on with living with ITP 🙂👍

[DAVIDJOEL]

Izzy—I can tell from your writing that you are a sweet yet tough young lady. But you’ve been dealt a tough and unfair card, haven’t you? Well, it’s time for you to pick yourself up, dust yourself off, and kick some booty. Life can really stink sometimes. But hey— You’re alive. You’ve got parents who love you im sure. Time for YOU to take charge of your life and make some changes and leave any whining at the door. Solutions? One thing that I think will help, if you’ve got the discipline, is to go gluten free. It’s tough but it’s helped my platelets and I think it might help you. Give it a shot and keep your head up. You got this!!! Much love, “Uncle” Dave