Hi everyone, my name is fatah, i have low platelets since 2012 and i get IVIG every month 750 ml ,and it goes as low as 19 i was told , if i remove the spleen it will helpful any suggestion thank you.
Hi everyone, my name is fatah, i have low platelets since 2012 and i get IVIG every month 750 ml ,and it goes as low as 19 i was told , if i remove the spleen it will helpful any suggestion thank you.
I had my spleen taken out and it did not make any difference. I now have to take penicillin every day to counter the effects of not having a spleen. Be careful and make sure you need to have the operation before going down that path. There are many other things you can try before having a splenectomy.
Hello Fatah,
I agree with NickyD. removal of the spleen should be the very last resort where everything else failed. I am intrigued by the fact that you have IVIG every month. If you do not, how low do your platelets drop to? I was diagnosed in 2007 and for the last 10 years, I have had low counts, often in single figures. Today it is 20; my haematologist will not intervene unless I bruise badly or bleed.
Splenectomy is no longer considered an option by most haematologists particularly with Revolade, Eltrombopag and so on. Speak with your haematologist again.
Good Luck!
Rafiq