Hi I'm new here. So Thursday morning my 3yr old came out with sores and blood blisters in her mouth by the evening she was covered in the tiny rash like bruises as well as lots of large nasty looking ones. I'd tried to get doctors appointment before the bruises came out but no luck so had phone consultation and was booked in for the morning. Obviously ended up at A&E that night once bruises appeared. Find out early hours Friday she has ITP and platelet count of 1. As we had Been kept in, we was gladly in a side a room, 5.30am she wakes screaming I take her to the toilet but she's fighting me.. Bitting, punching and scratching at my face so I take her back to bed, she climbs off the bead still screaming.. Not a normal scream, a terrifying scream. She runs to the other side off the bed, her eyes bulging and holding her hands up as if guarding herself from me amd shouting no. I come to that side of the bed and she sinks to the floor still screaming and won't let me touch her. Nurse then comes in and picks her up and manages to get her bk to sleep (I'm sat on the floor in bits cos she wouldn't even let me touch her)
Next day (Friday) she is fine all day and has the intravenous immunogenicity given and we stay again that night... Slept right through the night.
Saturday we get up and blood taken and count only up to 2 but we can go home and come bk Tuesday amd have more medication if platelet nit at right level.
Sat night goes to sleep fine and in a nice sound sleep then wakes up 12pm ish screaming, I put her on to the potty and she goes. I take it to clear it amd she's really screaming again, as I come back into the bedroom she Sat by the gate at the door and jumps for my leg and try to bight me I tell her off but she still making this horrible screaming noise. I put potty back amd shes crawling in to the kitchen and I go in and try pass her a drink she screaming and pushing it away with force but also saying she wants. I get on floor and try and hold her to calm her but she nit having any of it wile she's trying to dig my eyes out of my face. So I stand up with her amd sit her in the counter amd try to give her this drink, she screaming so much I wounder why the police aren't knocking my door down as there's no way that scream is going unnoticed. I come over feeling tearful amd faint so I lift her to the floor where she sits with big terrified eyes screaming at me, I shamefully sink down in to a corner crying and as I start sobbing out loud she seems to snap out of it and see me. She then climbs on my lap and strokes my face and says mummy don't cry, why are u crying?.... Like she wasn't even there all that time!
So anyways what I'm asking is is this something to do with the disorder or do pimple think maybe it's just stress and confusion and that's how her body has decided to deal with it because I've never experienced this before and I honestly felt terrified myself.
P. S sorry sooo long