I have lymphoma and my platelets are dropping each month, it is now down to 74, is it safe to drink alcohol once a week on nights out ?
Has anyone else got lymphoma and low platelet count?
I have lymphoma and my platelets are dropping each month, it is now down to 74, is it safe to drink alcohol once a week on nights out ?
Has anyone else got lymphoma and low platelet count?
I have low platelets and my specialist has never once told me not to drink, never mentioned alcohol to me at all, basically says try to avoid getting injured. My count was as low as 20, it's now up to 60 with Revolade 50mg pills each day, these are very expensive. I get drunk plenty of times, maybe once or twice a week and nothing happens out of the ordinary, though I am a Scotsman I am unsure what Lymphoma is though, so just giving you my point of view from the low platelet side of things.
I love wine, and that is the hardest thing for me to give up. Alcohol does affect my platelets. My counts range from 10,000 to 30,000. It must be different for everyone, my doctor knows I have a glass or two each month. Stress and lack of sleep also don't help. I am currently getting Nplate shots.
I've been wondering about alcohol too. I only tend to have a pint or a glass of wine each 'session' but some weeks it is three or four days. I actually think I have started to drink more since being diagnosed! I will be asking my haematologist about this next meeting.
Agree about stress and lack of sleep. Personally think this is the sole cause of my current single figures.
I have non-hodgkin's and now low platelets. Nothing worked for long. Nplate working for the most part above 50,000. Tolerable side effects.
I was diagnosed 6 years ago and was on watch and wait. Nodes became large and did chemo and it worked for two years but side effects were awful. Then after those two years had a different kind of drug called Rituxan and it was easy and reduced some large nodes to safe sizes. It has been one year since knock on wood and will probably need it again. The chemo med was called Treanda. Most doctors use both t the same time. I have a slow growing non-hodgkin's. Hodgkin's is often cureable, non-hodgkin's not cureable. Although there are more than 100 types of lymphoma. I go to a major University hospital nearby. I hope this helps!
Nplate is for low platelets which happened a year ago. Still have my spleen but have been through many failed and often horrible drugs until Nplate. It is a weekly injection.
have you not had your spleen scanned to see if it is destroying your platelets? I have had mine scanned and it shows that it was destroying mine so as all the drugs haven't worked for me including Nplate. so awaiting an op date to take my spleen out.
You should be asking your doctor as many questions as you need answered. The nursing staff usually is there for via the phone.
I did not intend to reply that you should not ask questions here. I now recall when it was all new to me and how lost I felt. I scoured the internet for info and got support from Immerman's Angels. They assign a volunteer which the same dx to chat with. It is a long road of confusion. Feel free to ask any questions here or anywhere.
I feel for you. This lymphoma/ITP is life changing.
Alcohol can cause your platelets to drop I stopped drinking
Alcohol makes no difference unless you are an alcoholic and have therefore damaged your liver. I have non hodgkins skin lymphoma and am on watch and wait. The ITP came long before and is completely separate. I was treated with Nplate for a long time but now have platelet counts that are reasonable and don't need to treat at the moment.