Immune Thrombocytopenic Purpura (ITP)
-How does it feel to be told that you will likely live for the rest of your years with a rare, mostly unpredictable and unknown autoimmune disorder that will affect your blood’s ability to clot and heal and your immune system’s basic ability to fight off infection?
-How does it feel to be told that there is little to no information about your disorder, that every case is different and unique, and will most likely eventually couple with a number of other autoimmune disorders as you age?
- How does it feel to be told that you need to change, stop, or modify everything in your current life because your greatest risk is having a brain hemorrhage?
- If that's not enough, also to be told that stress along with exposure to germs is going to be number factor in maintaining stable health.
– That there is no long term plan for the treatment of your disorder and all you can do is suppress your immune system and manage the side effects?
-As different treatments become available, we can weigh the risk factors & side effects. All of this just to discuss the possible changes in order to move forward with a new maintenance health plan.
*This is a compilation of ideas gathered from various writers over the years. I put them together to organize how I feel about MY Primary Chronic Genetic ITP.
Thank you for reading my post and as always forgive my typos, misspellings, & imperfections.
Wishing you and those you love much Love, Light, and Laughter along your Journey. Namaste