I am currently 16 years old. I got diagnosed with ITP on August 4th, a day after my 16th birthday on August 3rd. Though, I knew something was wrong for months before that.
In the beginning of July, I got a terrible stomach flu. I thought it was a hangover because of the Canada Day drinking I did with my friends, but it lasted a week. Once I recovered that, I got a fingernail infection. I got it popped and was on antibiotics, but then I started to notice these random rashes. Rashes that didn't turn my skin tone when I press down. I knew that was unusual.
I avoided medical attention because I had already seen 2 walk in doctors that week: one to get a doctors note for work when I had the flu, when I had the fingernail infection, and when I got the rash checked out. He told me I was getting bitten by a bug and scratching on my skin!
I avoided it, until one day when I was working the rash spread. I started to get a really itchy leg, and so I went to the washroom to figure out what was going on and I got black, blue, and purple bruising all over my legs. I found out those were purpura. Obviously at that point, I need to go to the emergency.
They tested my blood and admitted me for an IVIG and I was calm because I didn't know what I was getting myself into. 2/3 times I've had meningitis side effects. First time I threw up. Had petechiae all over my face from puking. My platelets were 13 at that time.
Long story short, I've had ITP for the span of a month and I have had 3 IVIG transfusions. I had not tried steroids yet as they do not want to treat me, due to side effects, if I am not bleeding (or below 10). The thing is, at the moment I don't even know if I'm below 10. I'm so rashy, itchy, bruised. I have to wait until Friday, when they are treating me with steroids, because I am getting my period and I loose too much blood.
Last time I got blood taken, I had a finger poke, and I shot blood all over her lab coat. I was at 18.
My platelets have been 13, up to 44 with IVIG, down to 22, up to 48 with IVIG, down to 15, up to 40 and 18 the last time I checked. That was a few days ago and I know it dropped.
Is it chronic because I'm so low? Am I going to die? I'm only 16 and this is all so new to me and it's crazy. I never knew ITP could occur. Let alone to me. I'm so sorry for anyone who is going through this!!!!