Renovade

[Topography52_-]

Hi forum buddies , I know Renovade raises your platelets but does it help with fatigue ? I am going on a trial period, as always thoughts needed .

[ITPAffecty]

Do you mean Revolade, Elthrombopag?

[bruiser2017]

Did you mean Revolade, as I can't find any info re Renovade?

[Topography52_- in reply to bruiser2017]

Lol yes

[ITPAffecty in reply to Topography52_-]

I am still on Revolade. I feel little burning while urinating and that's common side effects of that. With fatigue, no idea.!! But it didn't work for me and my hemo might ask me to stop this friday after blood test.

Wish it works for you. !!

[Topography52_- in reply to bruiser2017]

Hello Bruiser 2017 yes I mean Revolade : ))

[bruiser2017 in reply to Topography52_-]

Hello Topography52 - easy typo to make lol. I can't help you with this as I jumped from monthly Dexamethasone 4x40mg + 2 x 60 gram IVIG for 4 months to a course of Rituximab in April '17. Last count was 76 in July, new visit to the vampires end of next week and haemo appointment following week.

[Topography52_-]

Thank you for the reply Bruiser 2017 I just wondered if it would help with my fatigue onwards and upwards we will get there : ) do you suffer with fatigue painful joints need medication for all of it : )

[bruiser2017 in reply to Topography52_-]

I'm a new boy to this platelet problem - diagnosed Jan this year, but from what I read elsewhere and from my limited experience, fatigue appears to be a common theme and seems to persist whatever meds are prescribed.

I am lucky that I can work from home, but I find that most days now I have to have a nap for at least an hour most afternoons.

Other problems - get pains in my right hip and back, not constant, but fairly regular, only analgesics ITPers can have is paracetamol. Did put hip pain down to bone marrow biopsy, but that was months ago so discounted. Last CT scans showed a soft tissue around left kidney and waiting for specialist MRI. But whether any of those problems are down to ITP is moot, it could be that I'm just getting older:-))

[prudencepayes]

Hi. I was prescribed Revolade about 10 weeks ago after an 18 month period of counts frequently dropping to single figures accompanied by fatigue and bleeding symptoms. I tried prednisilone, rituximab, MMF and azathioprine. they all failed. IVIG helped but only for a few days. However the Revolade has been completely transformative. My counts have improved dramatically, I have no bleeding or bruising symptoms, no side effects and I am full of energy. If you get the chance I would definitely recommend that you try it.

[Topography52_- in reply to prudencepayes]

Prudencepayes ,thank you will give it a go if offered again how often do you take this medication ???

[prudencepayes in reply to Topography52_-]

I take 1 tablet a day before I go to bed. You have to take it at least 4 hours after having any dairy so I avoid cheese/milk/cream etc during that period. There have been a couple of times when I've slipped up and on those days I just took the tablet to bed and took it when I woke in the night. My haematologist said to make an effort but not panic if I made a mistake. Some people prefer to take it 1st thing in the morning and avoid dairy at breakfast.

[eciardullo]

I believe it's called Revolade. I was on it for a short while abruptly taken off as it caused blood clots in my leg liver and lungs... proceed cautiously all the best..

[Topography52_-]

Yes I believe it is called that ... I will be cautious as I take lipstatin for high cholesterol .. Thank you so much I will tell my consultant no no : ))