Posts - Fibromyalgia Action UK | HealthUnlocked

Fibromyalgia Action UK

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All posts for August 2023

NovoThor

Has anyone tried or have any knowledge of NovoThor PBM Therapy light beds? A friend saw a leaflet in a waiting room recently, so I’ve done a bit of research...

Has anyone tried or have any knowledge of NovoThor PBM Therapy light beds? A fri...

Onlymeandyou

•9 months ago

1 Reply

To all the souls out there

Hey stranger, I was reminded today that the mind is powerful, words are powerful and not everyone has the tools needed to navigate life We could...

Hey stranger, I was reminded today that the mind is powerful, words are...

Bubbles_3

•9 months ago

3 Replies

throbbing

any one else have what seems like double the throbbing/aching once trying to settle in bed also heavy feeling in top of arms.

any one else have what seems like double the throbbing/aching once trying to set...

dolphin21

•9 months ago

2 Replies

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duloxitine side effects

hi. Is there anyone who has experienced skin rashes as a side effect from duloxitine? My GP has tried various creams but now believes it’s a side effect and...

hi. Is there anyone who has experienced skin rashes as a side effect from duloxi...

Mull1972

•9 months ago

4 Replies

pip assessment

hi guys. I have my pip assessment in 15 mins over the phone and I am so nervous. Really don’t know why my nerves are getting the better of me as I am genuine...

hi guys. I have my pip assessment in 15 mins over the phone and I am so nervous....

Kazzza1976

•9 months ago

4 Replies

pip award standard rate

hello everyone, Hope you are all as good as you can be. I don’t often post but read other people’s story. I’m hoping I could get some advice. I have stage 4...

hello everyone, Hope you are all as good as you can be. I don’t often post but...

Wumm

•9 months ago

38 Replies

pip rejected

have been suffering with fibromyalgia for some time now was advised to apply for pip told them certain things I can and cant do never lied can’t wash properly...

have been suffering with fibromyalgia for some time now was advised to apply for...

Broadwaymarket

•9 months ago

11 Replies

shaking

Hi just wanted to ask if anyone else has shaking inside my hands have been shaking for the past few months but now it’s like my body shakes but on the inside...

Hi just wanted to ask if anyone else has shaking inside my hands have been shaki...

Spacereturn

•9 months ago

15 Replies

Jaw, neck and shoulder pain is horrific 😢

I've posted about this before but I hoping that someonecan relate to this and has some new advice as I'm struggling. My jaw, neck, shoulders and upper back are...

I've posted about this before but I hoping that someonecan relate to this and ha...

Elle247

•9 months ago

13 Replies

If its not one thing, it's another!

So on top of fibro, job loss, waiting for eye surgery and yesterday's ultrasound for post menopausal bleed, I get a call this morning from Gynaecology. I'm...

So on top of fibro, job loss, waiting for eye surgery and yesterday's ultrasound...

Gulfstream_Maggie

•9 months ago

15 Replies

Can rheumatology refuse referral for diagnosis from GP?

Having attended Bath clinic for therapy and advice and only managing to work part time due to pain and exhaustion I asked GP for a formal diagnosis she...

Having attended Bath clinic for therapy and advice and only managing to work par...

Panacotts

•9 months ago

15 Replies

I haven’t been on a while thought I’d rant as I’ve been a bit low lately

I haven’t been on here for a while, I’ve been so busy and I remembered why I joined because it really does help me get through this! Knowing people understand....

I haven’t been on here for a while, I’ve been so busy and I remembered why I joi...

Dash01

•9 months ago

7 Replies

hi new on here, was diagnosed in may this year with fibromyalgia after end less visits to doctors

hi new on here, was diagnosed in may with fibromyalgia,

dolphin21

•9 months ago

9 Replies

Update- any hope for my reconsideration request?zero points for PIP and doesn’t tally with anything I said at interview.

Update: finally finished filling out reconsideration. It’s taken so long and has been making me really anxious. When I got the report from my assessment it...

Update: finally finished filling out reconsideration. It’s taken so long and has...

Brigga

•9 months ago

19 Replies

Cancelled pip assement

Hi everyone just a bit of a rant, was due to have telephone assesment today,phone rang at appointed time then i was informed no health professionals available...

Hi everyone just a bit of a rant, was due to have telephone assesment today,phon...

Cabello

•9 months ago

9 Replies

Numbness in your feet and weird things

Hi i felt as if my feet were numb today and they werent there and thought i was going to fall over for a few seconds is this fibro anxiety or not, i felt very...

Hi i felt as if my feet were numb today and they werent there and thought i was ...

fibrogirl41

•9 months ago

19 Replies

vertigo

does anyone from vertigo I been the emergency they said it was muscle spasms n have to see the gp this morning it’s worse what can help ?

does anyone from vertigo I been the emergency they said it was muscle spasms n h...

Mystik

•9 months ago

9 Replies

Back pain

Does anyone here get a feeling in their spine like someone is poking them with one finger right in the middle of it? That awful cringey feeling? Also does...

Does anyone here get a feeling in their spine like someone is poking them with o...

Northernnugget

•9 months ago

6 Replies

Woah Strange

Spooky last night I was just having issues with hot flushes Menopause Grrrr My hubby brought me a pint class of ice cold water,Something so simple yet so...

Spooky last night I was just having issues with hot flushes Menopause Grrrr ...

Debsdelight72

•9 months ago

3 Replies

PIP adjourned post

Hi Everyone Thank you everyone for sending kind replies to my previous post about an adjournment of tribunal, much appreciated thank you.

Hi Everyone Thank you everyone for sending kind replies to my previous post abo...

Seascapes31

•9 months ago

1 Reply

too stressful

Hi Everyone Just keeping all up to date. After speaking to 4 different employment law solicitors they all advised me that I have cases for discrimination and...

Hi Everyone Just keeping all up to date. After speaking to 4 different employm...

Kazzza1976

•9 months ago

20 Replies

Life now

So true

Morethanthis

•9 months ago

1 Reply

Still awake

It is now 3 am. Been awake since 1.10 m and can't get back to sleep, thanks to my legs as vert restless.I'm really not doing so good lately.

It is now 3 am. Been awake since 1.10 m and can't get back to sleep, thanks to m...

Fibrofog

•9 months ago

28 Replies

Weekend is here, be kind to yourself 💜

So true 💜💚🩵❤️

Perdi05

•9 months ago

10 Replies

Living with or suffering from fibromyalgia

Living with or suffering from fibromyalgia. Language can have a big impact on the way we view a chronic pain condition.

Living with or suffering from fibromyalgia. Language can have a big impact on th...

vikki123456

•9 months ago

5 Replies

Tribunal Adjournment

Hi Everyone Yesterday a close family member was due to have a PIP tribunal after a long protracted 2 year PIP process which left them with zero points and no...

Hi Everyone Yesterday a close family member was due to have a PIP tribunal aft...

Seascapes31

•9 months ago

8 Replies

Pain from bra?

Hi. I have fibromyalgia and in the past few months I've been having issues with my bra. Although it's not tight, by the middle of the day I feel like it's...

Hi. I have fibromyalgia and in the past few months I've been having issues with ...

JanineNZ

•9 months ago

48 Replies

How to complete PIP online application?

Hi all. I managed to get DWP to finally authorise an online PIP application, given I have difficulty hand writing. I'm very close to the deadline and almost...

Hi all. I managed to get DWP to finally authorise an online PIP application, giv...

Winter_night

•9 months ago

7 Replies

bruising

hi all, wherever I press on my body it feels like a painful bruise. I say to my partner that I feel as though I’ve been walked over by a herd of cows. Is this...

hi all, wherever I press on my body it feels like a painful bruise. I say to my ...

Hope164

•9 months ago

8 Replies

Pip claim, is it worth it?

Hi, i first claimed for pip back when i got fibromyalgia but got nowhere after being on the phone for an hour, the lady seemed nice but i got a decision and...

Hi, i first claimed for pip back when i got fibromyalgia but got nowhere after b...

fibrogirl41

•9 months ago

3 Replies

Posts - Fibromyalgia Action UK | HealthUnlocked

Fibromyalgia Action UK

All posts for August 2023

NovoThor

To all the souls out there

throbbing

duloxitine side effects

pip assessment

pip award standard rate

pip rejected

shaking

Jaw, neck and shoulder pain is horrific 😢

If its not one thing, it's another!

Can rheumatology refuse referral for diagnosis from GP?

I haven’t been on a while thought I’d rant as I’ve been a bit low lately

hi new on here, was diagnosed in may this year with fibromyalgia after end less visits to doctors

Update- any hope for my reconsideration request?zero points for PIP and doesn’t tally with anything I said at interview.

Cancelled pip assement

Numbness in your feet and weird things

vertigo

Back pain

Woah Strange

PIP adjourned post

too stressful

Life now

Still awake

Weekend is here, be kind to yourself 💜

Living with or suffering from fibromyalgia

Tribunal Adjournment

Pain from bra?

How to complete PIP online application?

bruising

Pip claim, is it worth it?

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