Living with or suffering from fibromy... - Fibromyalgia Acti...

Fibromyalgia Action UK

59,469 members66,515 posts

Living with or suffering from fibromyalgia

vikki123456 profile image
5 Replies

Living with or suffering from fibromyalgia. Language can have a big impact on the way we view a chronic pain condition.

Written by
vikki123456 profile image
vikki123456
To view profiles and participate in discussions please or .
5 Replies
Yassytina profile image
YassytinaFMA UK Volunteer

indeed x

Blearyeyed profile image
Blearyeyed

Yes , I definitely agree.I always say Living with .

I am also restricted in how much I can go out because if other illnesses too but I don't use the word Housebound.

It feels so Negative and can make you feel like your house is a prison instead of being your place if Sanctuary.

I call it "Living Life at Home", instead, it makes a big difference to my Mindset.

Morethanthis profile image
Morethanthis

Exactly

NannyNooNoo profile image
NannyNooNoo

Most of the time I’m ‘living with’ but sometimes I’m ‘suffering from’!

CheetieCat profile image
CheetieCat

It definitely does, I'm usually 'dealing' with, as we've really no other choice.

'coping' with would mean I'm on top of it, everything is good so that's a big fat lie.

But, agree, we are all 'living' with it and more ....

When I started in social care people used to say 'wheelchair bound' instead of a 'wheelchair user'.

What a difference just changing one word!

You may also like...

Living with fibromyalgia

diagnosed with fibromyalgia, has anyone got any tips or sort of must dos to control pain, or any...

fibromyalgia sufferer

hi I am Kayleigh I'm 30 and have suffered with fibromyalgia and ankylosing spondylitis for about 10...

Living with fibromyalgia

I'm 25 years old and for 10 years I have been struggling with pain and extreme fatigue to which...

Living with fibromyalgia

physically and emotionally with this condition, I've got a few medical condition. But the loss of...

Advice for fibromyalgia suffer.

I've lost another job due to time off with my fibromyalgia , I've tryed to claim PIP I was one...