Back pain

[Northernnugget]

Does anyone here get a feeling in their spine like someone is poking them with one finger right in the middle of it? That awful cringey feeling? Also does anyone get a feeling that theres something trapped in the bones at the back of the neck? How about tightening back muscles that gets worse as the evening draws on? I was diagnosed last October and it feels like I'm really starting with symptoms 🥺 x

[Dizzytwo Moderator]

Hi there, I am curious. May I ask what you mean by you think you are really starting with symptoms. Did you not have any of these symptoms before you got diagnosed?

[Northernnugget in reply to Dizzytwo]

Bit of a story In late 2019 I woke one night and my left hand was weirdly numb, bloods were taken but came back uremarkable Then I started with a right frozen shoulder which I started seeing physio for Early 2020 I developed right wrist pain that got worse over time I mentioned this during one of the physio sessions and they gave me excercises for it Covid kicked in and the physio stopped for a while then later resumed I was under the shoulder specialist at this point Something was wrong with me but I didnt know what I didnt feel right He did a carpal tunnel test and sent me for a wrist scan No inflammation showed so he reffered me to Rheumatology 8 months passed and I heard nothing and the wrist pain got worse along with feelings of numbness, neck pain and stiffness when standing Anyway I ended shelling out £250 for a private consultation who reffered me back to the NHS for further investigation I had an MRI of my spine and more scans and an xray of my wrist All fine (not quite fine the xray showed arthritis on my wrist but I wasnt informed until I had a further xray a year later and the clinician said your arthritis has got worse) So after two years I was finally diagnosed by Rheumatology with Fibromyalgia I also have PMR which cortisoids have taken away all that awful stiffness but I was left with a moderate amount of pain that I managed Last month my back went which was put down to a kidney infection and since then the back pain and the symptoms described above have been intolerable I spoke to a doctor today and she said to self refer to physio and she's pxd 2 weeks worth of Amitriptyline I've had 3 weeks off and I have to go back to work on Friday to a heavy ward Not sure how I'm going to manage x

[Dizzytwo Moderator in reply to Northernnugget]

Hi there, thank you for explaining that to me. Do you not think its possible your having a flare up of your PMR?

I am just wondering what makes what your feeling different than what a person could expect to normally feel if they have both PMR and arthritis. Just curious.

Will your GP not give you sick notes or further sick notes for work until things settle down. Fingers crossed that will be soon.

I would strongly suggest you see your GP and let him/her know how things are feeling worse for you.

Momo

[Northernnugget in reply to Dizzytwo]

I did wonder about the PMR but I'm still on a high dose I suppose I could ring Rheumatology tomorrow and get some advice I'm on a dosage higher than they would like me to be on and they wouldnt be pleased once I'd make them aware of it They would probably try to get me to taper quicker I'm on the HealthUnlocked PMR group to There's a love hate relationship going on between Rheumys and PMR patients My pain at the moment is very much wide spread I have pain as described in my first post along with burning pain down both arms and beneath both shoulder blades Its awful I've never had it as bad as this The Amatripyline was only pxd this morning and hasnt yet been dispensed I'm hoping it will work for me I think I'll have to try at least one shift then if I cant manage to get Occy health involved It will mean redeployment x

[Yassytina FMA UK Volunteer in reply to Northernnugget]

Thankyou for explaining your symptoms, I do hope you find the forum helpful x

[Meditationlover]

Yes, I get that as well, but generally all over, hope it eases for you