Posts - Endometriosis UK | HealthUnlocked

Endometriosis UK

71,087 members • 52,307 posts

All posts for October 2022

Still bleeding on Prostap injections!!

Hi ladies Hopefully someone can help with this,I have multiple fibroids, endometriosis,adenomyosis and adhesions which cause extremely heavy periods,...

Hi ladies Hopefully someone can help with this,I have multiple fibroids, endome...

Jingles11

•2 years ago

10 Replies

Hysteroscopy standard during Lap?

Hi, I've been given an appointment for my first laparoscopy. I was on the cancellation list and have had a month's notice but won't be seeing anyone in Gynae...

Hi, I've been given an appointment for my first laparoscopy. I was on the cancel...

atealdeer

•2 years ago

5 Replies

Looking for a recommended gynaecologist

Hi There, I'm currently looking for a gynaecologist recommendation in London. Having spoken to my GP and got a referal for a gynaecologist, the wait time is...

Hi There, I'm currently looking for a gynaecologist recommendation in London. Ha...

Barbs0902

•2 years ago

6 Replies

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Laparoscopic surgery for endometriosis with ovarian drilling and hysteroscopy

Hi, I am just over two weeks post-op after having laparascopic surgery to diagnose and remove endometriosis ( which they did), i also had and endometrioma...

Hi, I am just over two weeks post-op after having laparascopic surgery to diag...

Snowdrop1987

•2 years ago

6 Replies

Pain specialist says it's not endo

I had an appointment yesterday to see a pain specialist to help me manage my pain while I wait to have my diagnostic laparoscopy. For context: My mum and...

I had an appointment yesterday to see a pain specialist to help me manage my pai...

RueBlu3

•2 years ago

37 Replies

advice for 17 y/o - should we get mirena removed after 9 months?

my 17 year old daughter has suffered since 14.; Endo confirmed with a lap 18 months ago. Immediately after lap ( and removal of endo) was back to herself...

my 17 year old daughter has suffered since 14.; Endo confirmed with a lap 18 mo...

Redmum2

•2 years ago

13 Replies

On decapeptyl for 11 months

On decapeptyl 11 months now an endimetrioma slightly increased in size and thickening of the uterus lining discovered through ct this week but has anyone...

On decapeptyl 11 months now an endimetrioma slightly increased in size and thi...

Bailey123456789

•2 years ago

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Awaiting a diagnosis, would love to connect with others, as feeling so low

I'm mid 40s and for the past 6-9 months I've been having bowel/abdo issues - including constipation and then urgency. I also have constant abdo pain,...

I'm mid 40s and for the past 6-9 months I've been having bowel/abdo issues - inc...

Mindfullness4791

•2 years ago

8 Replies

Endometriosis in lungs, does anyone else experiencing this?

Hi everyone, I came on here hoping to find other women how have experienced endo in their lungs, i have suffered with severe pain and organs glued together for...

Hi everyone, I came on here hoping to find other women how have experienced endo...

Jendn83

•2 years ago

8 Replies

Endo and duplex kidney?

Hi, My gyne has agreed to do a hysterectomy but wanted me to have a scan so he could see what was occurring since my last lap a year ago. He said along with...

Hi, My gyne has agreed to do a hysterectomy but wanted me to have a scan so he ...

roobiedoobie

•2 years ago

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Is it safe to come home…

So in May I moved to the US (intending to come back to the UK soon enough) And In May I had a cyst that the doctors here kept a close eye on and within six...

So in May I moved to the US (intending to come back to the UK soon enough) And...

Endrocoops

•2 years ago

5 Replies

constant Endo pain ruining my life

I’ve been awake since 12:00am couldn’t take painkillers until 2:30am .. constant pain I don’t know how much more I can endure. This is not normal, I’ve lived...

I’ve been awake since 12:00am couldn’t take painkillers until 2:30am .. constant...

Ess1982

•2 years ago

10 Replies

Gyne department Arrowe Park

Please can anyone private message me any experience with general gynecologists at Arrowe Park thanks xxx

Please can anyone private message me any experience with general gynecologists a...

Crazycatladyjones

•2 years ago

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Endo -can high oestrogen lead endo sufferers to breast/endometrial cancer??

Hi has anyone experienced breast or endometrial cancer due to endometriosis and high oestrogen levels?? What do we do to reduce these excess of oestrogen??

Hi has anyone experienced breast or endometrial cancer due to endometriosis and ...

CofG

•2 years ago

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Private VS NHS?

For background - I was diagnosed with DIE back in august via diagnostic lap (no surgical intervention was done), given the POP and discharged from gynaecology....

For background - I was diagnosed with DIE back in august via diagnostic lap (no ...

puzzleprincess

•2 years ago

1 Reply

blood filled cysts

hi guys, new to group, I was in hospital for 3 days last week, Iv been bleeding for 38 days now, somehow with luck my iron is still fine, but I have blood...

hi guys, new to group, I was in hospital for 3 days last week, Iv been bleeding ...

Toryfish

•2 years ago

3 Replies

Do women with endo still go through the menopause despite the high levels of oestrogen?? and medical negligence...

Hi, does anyone know if women with endo continue to have high levels of oestrogen even through the menopause?? I have so many menopausal symptoms yet my levels...

Hi, does anyone know if women with endo continue to have high levels of oestroge...

CofG

•2 years ago

7 Replies

When did your flare ups & daily pains start?

Hello, I’m hoping someone might be able to offer some views. For background, I’m 41, I’ve always had painful periods since I was 12, (time off school then...

Hello, I’m hoping someone might be able to offer some views. For background, I’...

Hannah550

•2 years ago

10 Replies

6 Months post endometrial ablation

Okay guys long story short ... i had my endometrial ablation back in march this year since the albation ive had 4 days periods each month ( april, may,...

Okay guys long story short ... i had my endometrial ablation back in march this ...

LoneWolf91

•2 years ago

1 Reply

Cancelled appointment 😩😢

Absolute joke! So my appointment was cancelled yesterday! It’s the second time it’s been cancelled 😞 I highly doubt I will see a specialist this year. It’s...

Absolute joke! So my appointment was cancelled yesterday! It’s the second time ...

Xroisinellenx

•2 years ago

2 Replies

Does anyone else experience this with bowel movements?

Hello 🥲 So im at a point now where pretty much every bowel movement I have causes a flare up/is a flare up. It's almost once or twice a week at this point...

Hello 🥲 So im at a point now where pretty much every bowel movement I have cau...

ArtyPal

•2 years ago

20 Replies

pain in ribs during period

hello all I have been suffering with various things for some time now, heavy periods, painful bowel movements during periods and severe period pain. my...

hello all I have been suffering with various things for some time now, heavy pe...

Wheeze

•2 years ago

4 Replies

Group meeting!

Hi! I was wondering if there are any people with endo that meet up and talk with each another, an endo group 😊 I feel very alone most of the time battling...

Hi! I was wondering if there are any people with endo that meet up and talk with...

Cherry245

•2 years ago

8 Replies

Written Warning for Absence due to Endo

Hi all, Due to my sickness days at work, I have received a written warning. Before this had an occupational health assessment which I feel did nothing...

Hi all, Due to my sickness days at work, I have received a written warning. Be...

Nofrills87

•2 years ago

8 Replies

ovulation problems

Hi all I have endometriosis, adenomyosis, IBS and a history of cyst problems, I had surgery a year ago and was fitted with the mirena coil, my periods stopped...

Hi all I have endometriosis, adenomyosis, IBS and a history of cyst problems, I...

Millabajack

•2 years ago

6 Replies

Help appointment tomorrow 🙏

I have an appointment tomorrow which will involve scans more then literally internal but of course I have started bleeding today 😢 I have been waiting for...

I have an appointment tomorrow which will involve scans more then literally inte...

Xroisinellenx

•2 years ago

7 Replies

Endo stage 4, Prostap & HRT

Hi, lm currently being treated with Prostap & Livial HRT & lm finding the pain is turned up to 11, l am on my 2nd injection now. I have spoken with my endo...

Hi, lm currently being treated with Prostap & Livial HRT & lm finding the pain i...

SarahAnne81

•2 years ago

2 Replies

Under investigation for Endo

Hi all, I am new to the forum. My name is Abbi. I am currently under investigation for endometriosis and other gynae things my symptoms may be a result off....

Hi all, I am new to the forum. My name is Abbi. I am currently under investiga...

AR24

•2 years ago

3 Replies

post menopause pain

hi everyone I wanted to share an experience with you all that honestly has me lost for words I moved from London to Lincoln last year and have been...

hi everyone I wanted to share an experience with you all that honestly has me ...

Greenlady48

•2 years ago

12 Replies

nefopam

Hi, I just wondered if anyone has been prescribed Nefopam by their GP? Just spoke to my GP and they said they are unable to prescribe it in primary care….does...

Hi, I just wondered if anyone has been prescribed Nefopam by their GP? Just spo...

MyStar86

•2 years ago

15 Replies

Posts - Endometriosis UK | HealthUnlocked

Endometriosis UK

All posts for October 2022

Still bleeding on Prostap injections!!

Hysteroscopy standard during Lap?

Looking for a recommended gynaecologist

Laparoscopic surgery for endometriosis with ovarian drilling and hysteroscopy

Pain specialist says it's not endo

advice for 17 y/o - should we get mirena removed after 9 months?

On decapeptyl for 11 months

Awaiting a diagnosis, would love to connect with others, as feeling so low

Endometriosis in lungs, does anyone else experiencing this?

Endo and duplex kidney?

Is it safe to come home…

constant Endo pain ruining my life

Gyne department Arrowe Park

Endo -can high oestrogen lead endo sufferers to breast/endometrial cancer??

Private VS NHS?

blood filled cysts

Do women with endo still go through the menopause despite the high levels of oestrogen?? and medical negligence...

When did your flare ups & daily pains start?

6 Months post endometrial ablation

Cancelled appointment 😩😢

Does anyone else experience this with bowel movements?

pain in ribs during period

Group meeting!

Written Warning for Absence due to Endo

ovulation problems

Help appointment tomorrow 🙏

Endo stage 4, Prostap & HRT

Under investigation for Endo

post menopause pain

nefopam

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