Do women with endo still go through the menopause despite the high levels of oestrogen?? and medical negligence...

[CofG]

Hi, does anyone know if women with endo continue to have high levels of oestrogen even through the menopause?? I have so many menopausal symptoms yet my levels of oestrogen are believed to be very high so experts say that I have oestrogen dominance which can also lead to symptoms similar to the menopause. But I had a hysterectomy 4 years ago, they removed my womb, cervix, tubes and one ovary. 7 months after the surgery they discovered a new endometrioma in the healthy ovary and now I wonder why I was never offered progestogen to prevent regrowth of endometriosis?? How can the medical professionals be so careless???? Not to mention that the surgeon did not give me anticoagulant injections to take home and 6 days later I developed a pulmonary embolism and now I am on apixaban for life... can one take legal action when their decisions and negligence impact our lives so detrimentally?? Many thanks to all the women out there suffering with ongoing endo due to medical negligence... It's not right.

[Felma]

may i know at what age your hysterectomy was done?

were you covered with anticogulants postoperatively?

[CofG in reply to Felma]

I was 45. They didn't give me injections to take home. Only one the day they discharged me. 2 days post surgery

[Felma]

at 44 may be no point in leaving behind one ovary specially when doing the hysterectomy for endometriosis

[Felma]

has a thrombophilia test been done on you now?

[CofG in reply to Felma]

What's a thrombophilia test? I have had some tests done when I stopped apixaban for 6 weeks to assess. The D'dimer came back slightly raised so they decided I should stay on apixaban for life. Even though it was only slightly raised and I believe endo could give a higher D'dimer because of the inflammation. Though doctor said that this risk is what the d'dimer is reflecting. That I might be at a higher risk for future clots due to the endo. Is that right?

[Avourneen]

This is so complex. I've been treated for stage 4 DIE endo and no one has ever even taked about measuring my hormones. I know the stats show that if the ovaries are left in after a hysterectomy the chances of endo continuing or coming back are much much higher.

So it's odd that they left your ovary in.

Personally I think that surgeons just don't have enough oversight. No records at all of how successful ops are in terms of endo returning are kept at all.Different surgeons use quite different techiques as they see fit (eg some don't use anything to prevent adhesions some do, some suspend ovaries others don't , some use robotic surgery, some use a dye technique to see the endo etc) no one seems to monitor whether some techniques are more effective than others.

I'm sure someone on here will say this is all impoosible it would be too complicated, but if you don't monitor and keep records of results it's very hard to even say what best practice is.It is done in a couple of ares notably heart surgery.

I taught at uni for many years, in my field each lecturers groups results are monitored. If one teacher's students are all getting poor results , that lecture would probably be fired or at least investigated. The lectureres whose groups who are doing really well have to work with the other lectureres and share what they are doing to improve everyone's practice.

In addition even if you have been teaching for donkeys years you usually have someone come and watch you teach tow or three times a year to see what you are doing. In addition al the students leave anonymous feedback at the endo of every tearm on how you are doing.

With surgeons it seems like the qualify and that's it. I've only ever been asked for feedback on my experience in the private sector and it wasn't anonymous.To become a specialist BGSE surgeon you need to send some videos of yourself doing an op but there is no actual extra qualification or extra training. I can't understand why schools right down to nursery have their results so carefully monitored but surgeons don't.

If we had better monotoring and recording of outcomes I think it would really help. Then surgeons could put their stats for different items such as infections rates, reoccurance of disease,complications etc on their websites instead of cherry picking written feedback form successful cases and making out they are all 'one of the UKs leading surgeons".It's currently really hard to get good treatment and also to tell easilt if the surgeon is any good.

[CofG in reply to Avourneen]

Many thanks for your reply! And I agree with everything you have shared. I wish they were monitored more closely and that they kept records of all the side effects and complications etc so they could learn and not repeat the same mistakes. And they definitely should keep themselves up to date with research and symptoms because I reported all my symptoms before surgery and I was never in all the years I suffered with 'PMS' and heavy periods, excruciating pelvic pain etc, was diagnosed with endo. And they could have had an endo specialised sonographer examine my MRI before surgery because if they had told me it was an endometrioma, I would have turned down the surgery and opted for hormonal treatment first... so frustrating...