post menopause pain

[Greenlady48]

hi everyone

I wanted to share an experience with you all that honestly has me lost for words

I moved from London to Lincoln last year and have been struggling to gain access to gynaecologists in this area.

I have endometriosis and adenomyosis that a few doctors have diagnosed me with over the past 10 years or so. I’m also on HRT patches for menopause.

So this week I have paid again to see the private dr who I saw last year and who gave me 3 zoladex injections.

A year has past and no change in-fact my pain is worse.

I went to him as there’s nobody else.

he looked at my recent blood tests and they show that I’m now post menopause.

And He actually shrugged his shoulders and said to me that nobody has endometriosis past menopause and that no women come to see him in their 60s or 70s with pelvic pain

I’m 52!

He rolled his eyes and asked me why have I come again to see him!

He brought me to tears. He did offer me a tissue.

I was shocked I just left there and sat in the car for 10 minutes crying like a baby.

Was it me? Did I do something wrong

Thankyou for listening

Xx

[S0nrisa]

Hello. I didn’t want to read and not reply. You did not do anything wrong. You are in pain and deserve to be listened to and supported to work out what is causing it. I wish you all the very best and hope you find what you need. Take care.

[Inonge1]

Hi,

So sorry you're having such treatment. I'm 50 with adenomyosis and endometriosis, considered peri menopausal but still get pelvic and period like pain even in the months I don't get a period.

Been waiting for an appointment for an investigative hysteroscopy and MRI at the hospital from 2019! They keep postponing, I'm so tired really!

[Rainbow2468 in reply to Inonge1]

Sending you a big hug too, I hope you get decent treatment soon ❤️

[Greenlady48 in reply to Inonge1]

that’s just terrible. What I have learned is that the more you keep pestering them the quicker things get done. Ive had a hysteroscopy, it was like being kicked by a horse. That’s looking for abnormalities like cancer.

I just got bad luck with this doctor but I’m still seeing a pelvic pain specialist through the Nhs as I made a complaint to them. He was fantastic and really helpful

Please go back and complain to your gp surgery.

Xxxx

[Inonge1 in reply to Greenlady48]

Thanks, I think I'll do that. Keep well.

[Lindle]

Do you know what stage/severity your endo was/is based on previous laps/scans and what HRT patches are you on?

[Greenlady48 in reply to Lindle]

I have no idea what even stage I am at. Ive got to pay 3700k for a private lap. I’m on the Evorel conti patches and I love them

It’s just awful for all of us women

[Avourneen]

What an incredibly stupid man to be working as a gynae. Loads of women still have endo issues after menopause.Especially if they are on HRT. The damage that the endo has done previously doesn't magically disappear all the scarring, adhesions, oragans stuck together etc. Periods stop but that is all I think that tere are some types od endo that can become worse after menopause (I'm not certain about this but I think I read it on here from Lindle who is very very knowledgeable).

This man is talking out of his hat. Even if he were sure it wasn't caused by endo he should still be finding out what it is. Unfortunately there are a lot of gynaes practising who don't know much about endo. I don't know lincolnshire and can't recommend anyone up there.

But my advice would be go to a really good gynae sonographerget a good scan (go down to London for this if you have to) and that will show eaxctly what is going on. There is an excellent place in London who will see you right away and they have a great gynae who will do the scan then tell you exactly what is going on and refer you to a proper endo gynae.

Go and see a good gyane who has respect for his patients and who knows something about endo.

Personally I would also write to the GMC detailing how the rubbish gyane treated you belittling your pain. and lived experience and gaslighting you about your symptoms and enclose the scan showing you have problems and the advice from a knowledgable doctor.

Arrogant gynaes who ignore their patients pain and experiences and tell them to go away it's IBS or whatever without doing any clinical investiagtions are completely unprofessional. It's particularly bad to pay someone to treat you like this. You can leave a review of him on "I want great care".

[Greenlady48 in reply to Avourneen]

Thankyou for that amazing advice.

I get mad with myself because usually I’m good at speaking up. Your right. There are others who I can see and speak to.

I’ve complained before so I’m happy to do that again.

[Moonglo]

Hallo there, I’m sorry to hear of your experience. It’s not like you went all the way to London for the fun of it!

The HRT patches might be the culprit if they have oestrogen as this might keep feeding the endo. We have to achieve a delicate balance of hormones when treating endo, and we shouldn’t be treated as ‘normal’ with our menopause.

How were the Zoladex injections, did they help at all?

There might be a couple of alternatives local to you. I just did a quick Google search and found:

1) On Facebook, try Lincoln Endometriosis UK Support Group

2) There’s a BSGE centre called Northern Lincolnshire Endometriosis Centre (search for centres on BSGE.org.uk). For this option, you might need to ask your GP for a referral. Or why not contact them directly to find out how they accept referrals?

Take care, I hope you find some support for what is obviously ongoing endometriosis.

[Rainbow2468]

Hi no you most certainly didn't do anything wrong. I find his attitude shocking to be honest. I'd see another GP on the nhs preferably female if i were you. Sending you a big hug ❤️

[Dude0526]

Did he run blood work? What kind of HRT? High testosterone can cause uterus pain and UTI like pressure. Just a small tweak down in testosterone can make all the difference. If you’re receiving testosterone I’d look there.