Still bleeding on Prostap injections!!

[Jingles11]

Hi ladies

Hopefully someone can help with this,I have multiple fibroids, endometriosis,adenomyosis and adhesions which cause extremely heavy periods, flooding/clots with a lot of accompanying pain.

I’ve had problems since my late 30s and now at 51 have decided to have a total hysterectomy.I saw a private consultant and my NHS gynaecologist, both recommended a total hysterectomy with 3/4 months of prostap to shrink everything down and stop bleeding pre op.

So after my 1st injection I had a very heavy 14 day period in the the last half of the month and had to take tranexamic acid to control it…which I hate as it really upsets my stomach and makes me feel rubbish.

Now halfway through the month after my 2nd injection I’ve been bleeding for about 9 days, it is a bit lighter than usual and without the pain I usually have.

I’m due my 3rd injection in about 11 days and at this rate will probably still bleed, aren’t these injections meant to stop bleeding? I was given the impression they would! I’m just really fed up with bleeding!!

Really interested to know if anyone else had this experience on Prostap? It seems impossible to get any decent information from the gynaecology dept at my hospital, one nurse told me it was normal and another said it wasn’t!

I’m not really having many other side affects apart from the occasional hot flush and insomnia.

Thanks in advance

[EndoViking]

I believe if you have fibroids, these can initially cause some additional bleeding as the can breakdown and are expelled. Also if the injection is not given at the correct intervals. I was 6 months into mine and wondered why I was still getting bleeding, when I mentioned to my consultant if they should be every 4 weeks or each month she confirmed every 4 weeks. Sometimes the nurse would leave it over 5 weeks (I don't think she understood it has to be a regular interval) and this was causing the problem. As soon as I started with 4 weeks it all stopped. If you are having them at the correct interval I think you should notice it stops after the 3rd injection

[Jingles11 in reply to EndoViking]

Hi EndoViking Thanks so much for your reply, I have had the injections pretty much 4 weeks apart to the day.I really hope after the 3rd injection it will all calm down a bit, When I told the gynaecology nurse I was passing large clots she seemed a bit clueless and said she didn’t know much about fibroids! Nobody has mentioned that the fibroids could breakdown and be expelled so thanks for that info.😊

[Catlover3]

Hi. My daughter was put on Prostap and bled quite frequently. However, we moved to a different area of the country and the gynae was horrified that prostap was being used. She put my daughter on Depo Provera and it has completely stopped the bleeding. She has not had any new endometriosis growing whatsoever. Her last operation was to remove the horrendous scarring she had from the previous botched up operation and has according to the gynae she is now anatomically correct! We are so pleased that we moved as she has been suffering for years with terrible pain, which has now almost gone.

[Jingles11]

Hi Catlover 3 ..Sorry to hear that your daughter had to go through the bleeding and horrendous pain and glad to hear she’s much better now.I will ask about the Depo Provera my next appointment..I can’t figure out if it’s the endometriosis the fibroids or adenomyosis that’s causing the bleeding the Prostap injections seem to have worked for the pain but honestly trying to get advice is like bashing your head against the wall.

[Vickster23]

I had the first bleed two weeks in but that was it. I definitely read that it can break up fibroids which causes bleeds though. I had three Prostap injections before my hysterectomy and I really do think they helped to settle things down a little. I also had endometriosis and adenomyosis.

[Jingles11]

Hi Vickster23 I’m just hoping the 3rd injection will make all the difference..I was told the injections will shrink the fibroids but not that they could be expelled and cause extra bleeding..I hope I can have the hysterectomy soon after my 3rd injection but very worried about the waiting list, did you have long to wait? I hope it went well

[Felma]

its a depot injection .

so takes some time .

it shrinks fibroids . dont expel . unfortunately .

[Jingles11]

Thanks Felma..Fingers crossed for the 3rd one then