Hopefully someone can help with this,I have multiple fibroids, endometriosis,adenomyosis and adhesions which cause extremely heavy periods, flooding/clots with a lot of accompanying pain.
I’ve had problems since my late 30s and now at 51 have decided to have a total hysterectomy.I saw a private consultant and my NHS gynaecologist, both recommended a total hysterectomy with 3/4 months of prostap to shrink everything down and stop bleeding pre op.
So after my 1st injection I had a very heavy 14 day period in the the last half of the month and had to take tranexamic acid to control it…which I hate as it really upsets my stomach and makes me feel rubbish.
Now halfway through the month after my 2nd injection I’ve been bleeding for about 9 days, it is a bit lighter than usual and without the pain I usually have.
I’m due my 3rd injection in about 11 days and at this rate will probably still bleed, aren’t these injections meant to stop bleeding? I was given the impression they would! I’m just really fed up with bleeding!!
Really interested to know if anyone else had this experience on Prostap? It seems impossible to get any decent information from the gynaecology dept at my hospital, one nurse told me it was normal and another said it wasn’t!
I’m not really having many other side affects apart from the occasional hot flush and insomnia.
Thanks in advance
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Jingles11
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I believe if you have fibroids, these can initially cause some additional bleeding as the can breakdown and are expelled. Also if the injection is not given at the correct intervals. I was 6 months into mine and wondered why I was still getting bleeding, when I mentioned to my consultant if they should be every 4 weeks or each month she confirmed every 4 weeks. Sometimes the nurse would leave it over 5 weeks (I don't think she understood it has to be a regular interval) and this was causing the problem. As soon as I started with 4 weeks it all stopped. If you are having them at the correct interval I think you should notice it stops after the 3rd injection
Hi EndoViking Thanks so much for your reply, I have had the injections pretty much 4 weeks apart to the day.I really hope after the 3rd injection it will all calm down a bit, When I told the gynaecology nurse I was passing large clots she seemed a bit clueless and said she didn’t know much about fibroids! Nobody has mentioned that the fibroids could breakdown and be expelled so thanks for that info.😊
Hi. My daughter was put on Prostap and bled quite frequently. However, we moved to a different area of the country and the gynae was horrified that prostap was being used. She put my daughter on Depo Provera and it has completely stopped the bleeding. She has not had any new endometriosis growing whatsoever. Her last operation was to remove the horrendous scarring she had from the previous botched up operation and has according to the gynae she is now anatomically correct! We are so pleased that we moved as she has been suffering for years with terrible pain, which has now almost gone.
Hi Catlover 3 ..Sorry to hear that your daughter had to go through the bleeding and horrendous pain and glad to hear she’s much better now.I will ask about the Depo Provera my next appointment..I can’t figure out if it’s the endometriosis the fibroids or adenomyosis that’s causing the bleeding the Prostap injections seem to have worked for the pain but honestly trying to get advice is like bashing your head against the wall.
I had the first bleed two weeks in but that was it. I definitely read that it can break up fibroids which causes bleeds though. I had three Prostap injections before my hysterectomy and I really do think they helped to settle things down a little. I also had endometriosis and adenomyosis.
Hi Vickster23 I’m just hoping the 3rd injection will make all the difference..I was told the injections will shrink the fibroids but not that they could be expelled and cause extra bleeding..I hope I can have the hysterectomy soon after my 3rd injection but very worried about the waiting list, did you have long to wait? I hope it went well
Hi, yes I too have only small fibroids with severe bleeding due to being caused by the mirena coil i was advised to have to stop periods and have been put down for a full hysterectomy as well as being put on the prostap also to stop the bleeding. After just 3 weeks of Mt first injection I have also started to bleed. A bit pointless having the jab really as I could of just carried on having my periods until the surgery. Ive been light bleeding for a couple of days so far so if I bleed like a normal period I'm not having a second dose as there is no point in my opinion. I may as well as a period without more rubbish pumped into my body
I had prostap in may, bled for 3 weeks then nothing. I had second jab in July and after a month started spotting continuously since which has now turned to fresh blood. I'm not due another jab for another month yet and not sure if to bother as horrendous period stomach for weeks on end. At least I got a couple of weeks break when bleeding before the jab despite how heavy it was
Hi Jingles11, I'm so sorry to hear that you're still bleeding with Prostap. I'm in the same boat, like you I have extreme pain, bleeding and vomiting. I also have a 'giant' endometrioma measuring 16cm x 10cm.
November last year I was hospitalised and they gave me a 3 month prostap injection, which stopped my bleeding and pain, but it gave me a lot of mental health issues. I get panic attacks daily.
Anyway I'm now on my 2nd prostap and I'm bleeding, there's no pain and it's a light bleed. I asked my gp who was dismissive as usual, so I have decided to call the hospital ward where I had my 2nd jab.
This is unusual, as I thought the hormone injection is to suppress hormones and stop the bleeding, 1st 3 month injection did the job, but this second 3 month injection does not seem like it has worked. I hope we all get answers 🙏 as women often get dismissed by the medics for their period problems. You have to push to get answers and results. Wish you luck 😊
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