blood filled cysts

[Toryfish]

hi guys, new to group, I was in hospital for 3 days last week, Iv been bleeding for 38 days now, somehow with luck my iron is still fine, but I have blood filled cyst on my left ovary and they can’t find my right ovary due to endo sticking it far back out the way! They’ve give me the extra pill to take but still no ease in pain or slowing bleeding down, is there anyone who had this tell me please how long did you have it and what was further treatment and how did you cope as im physically and emotionally drained right now it’s horrible! Sorry for long post

Thank you

Tory

[Endrocoops]

hiya Tory, in may I had an ultra scan for a cyst, was told it was blood filled on my left ovary and that I could have endrometerosis but before any major operations they would do a follow up ultra scan to check if it had gone down with putting me on the Nuva ring. (I started filling a Callander with all my symptoms that on a normal day I would likly ignore or put down to bad food. In august my scan showed that it was the same size (and luckily no bigger) I gave my doc a record of my symptoms Callander and she booked me in for an operation that I had this Monday.(particularly as I told her I struggle to use the toilet on certain days) She confirmed that I had stage 4 endrometerosis, got rid of my cyst and endro tissue in one wack leaving me with five holes in my tummy. My doc also said endro cysts very rarely go down after three months hence the removal.

Worth noting that I moved to America in may and My “regular daily symptoms” were put down to bad digestion for years with the NHS. I’m not sure how long I would have been left in pain back home but at the least they should be checking you again in three months with your cyst, and be sure that they book you in for the follow up scan! Good luck!

[Hidden]

hi toryfish

I had endometrioma (blood filled cyst) on both of my ovaries. Unfortunately, the left one was so huge and it enclosed the ovary itself so they had to re move it with the ovary together in 2020. Earlier this year, i had another operation because of the endometrioma on my right ovary and also due to fibroids. This time they managed to remove the cyst from my ovary and my ovary is fine. I also had horrible long and heavy periods, was always anemic due to the fibroids. Since the operation in march, when the removed 29 fibroids, my periods are light and short, the constant pain and swelling in my belly is gone. I have to add that this last operation was privately done in London. It was the best investment though I have ever made in my life.

Do you know why you’re bleeding? Is this due to your endo or perhaps something else? I didn’t know endometriosis causes bleeding like yours, but I know fibroids do.

Look after yourself x

[Bleeding-Soul]

hey, so I bled for 50 days and the bleeding was only getting worse with clots the size of my pads. It was horrific. Initially my GP gave tranexamic acid but that did nothing. Then she gave utovlan (norithesterone) 5mg and in 2 days the bleeding stopped. When they did my US scan I had an endometrioma. But when they did an MRI I also had adenomyosis, a small fibroid and a polyp. I didn’t want surgery so I’ve just taken norithesterone ever since and whilst I’m on the medication I have no period and no pain. The medication is basically progesterone. However my GP is always hesitant to prescribe it as I’m no longer under a gynaecologist. My gynaecologist was terrible, dismissed my concerns and pushed for surgery, so hence why I’m basically treating myself lol.