Posts - Endometriosis UK | HealthUnlocked

Endometriosis UK

71,095 members • 52,309 posts

All posts for August 2021

No one is taking my awful period pain seriously

Hello everyone, I'm 19 and I have had crippling period pain since I was 13. I am in so much pain it is making me vomit and pass out every time I have a period...

Hello everyone, I'm 19 and I have had crippling period pain since I was 13. I am...

Ezbhez28

•3 years ago

14 Replies

Synarel and Utovlan together? - your experiences please!

Hi there, Does anyone have any experiences taking Synarel and Utovlan together. I've been on Synarel a month(along with Livial) but am still having periods....

Hi there, Does anyone have any experiences taking Synarel and Utovlan together....

pinkelephant1234

•3 years ago

7 Replies

Endo/Pcos and the Yasmin Pill

I've had confirmed endometriosis (via laparoscopy) for the last 3 years now but I've recently been diagnosed with PCOS as well (because endo just clearly...

I've had confirmed endometriosis (via laparoscopy) for the last 3 years now but ...

04Freest

•3 years ago

3 Replies

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Endo near heart/lungs

So thoracic Endo near my lungs and heart has been found. It was left in place and my surgeon said there’s not much he can do as it’s too risky to treat. Just...

So thoracic Endo near my lungs and heart has been found. It was left in place an...

Stage4sister

•3 years ago

5 Replies

Tranexamic acid - any advice?

In short, I have endo & adeno and am currently treatment free whilst waiting for a hysterectomy (I'm 45). My periods are pretty heavy and painful and a doctor...

In short, I have endo & adeno and am currently treatment free whilst waiting for...

Username12345678

•3 years ago

55 Replies

Endo diet - cycle changes?

Hi everyone, I have been on the Endo diet for the past few months now and since my cycles seemed to of changed. My cycle length is shorter - 25 days now and...

Hi everyone, I have been on the Endo diet for the past few months now and since...

LucyAM

•3 years ago

6 Replies

Anyone get a rash with HRT patches

I'm currently on HRT patches combi with Prostap injections, does anyone get bloated and a rash with the patches I look like I've been branded on my bum I am...

I'm currently on HRT patches combi with Prostap injections, does anyone get bloa...

Hidden

•3 years ago

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Have I made the wrong decision?

I had a lap in 2016 which was negative for Endo. I was diagnosed with IBS. I have since suffered reoccurring large cysts and a great deal of pain. In May 2021...

I had a lap in 2016 which was negative for Endo. I was diagnosed with IBS. I hav...

Midgetpants87

•3 years ago

2 Replies

HRT AFTER HYSTERECTOMY

Hey all, About 3 months ago I had major excision surgery for my endometrios which involved a full hysterecomy (with ovaries removed) and a bowel resection. I...

Hey all, About 3 months ago I had major excision surgery for my endometrios whi...

fdennis07

•3 years ago

58 Replies

endometriosis exercise.

i’m struggling with exercising, i keep spotting whenever i manage to work out. doctors & google tell me that “strenuous” exercise can trigger the bleeding....

i’m struggling with exercising, i keep spotting whenever i manage to work out. ...

Kirstt23

•3 years ago

2 Replies

Yorkshire Endo specialist recommendation?

Hi everyone, Can anyone recommend an endo specialist in the North, preferably Yorkshire or Lancashire? I've received some excellent care from my local BSGE...

Hi everyone, Can anyone recommend an endo specialist in the North, preferably Yo...

Meriel_Owen

•3 years ago

6 Replies

It wasn't a ruptured cyst, it was a miscarriage, without knowing I was pregnant.

Apologies for the rant, I think this forum is the only place that people will be able to understand how I feel right now, because even I don't understand....

Apologies for the rant, I think this forum is the only place that people will be...

honeyhills

•3 years ago

9 Replies

Mirena Coil

Hey Ladies, I was wondering if you got the mirena coil fitted, how long does the cramping last? I have endo and polycystic ovaries and got the coil fitted on...

Hey Ladies, I was wondering if you got the mirena coil fitted, how long does th...

Yas45

•3 years ago

5 Replies

Post op 3m follow up and hysterectomy query

Hi all I have my 3 month post diagnostic laparoscopy/excision follow up appointment with my surgeon on Friday. The pain has definitely improved, more so that...

Hi all I have my 3 month post diagnostic laparoscopy/excision follow up appointm...

Hunter-23

•3 years ago

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Endo belly on wedding day!

Argh my cylce is spot on... I had my nexplanaon inplant put back in to help ease symptoms its stopped my bleeding which is good....but still even around...

Argh my cylce is spot on... I had my nexplanaon inplant put back in to help ease...

Crazycatladyjones

•3 years ago

1 Reply

Normal period before laparoscopy

Since 2012 I haven’t had what I consider to be a ‘normal’ period i.e light-med flow, minimal pain and 5 days long. Fast forward 9 years with countless days of...

Since 2012 I haven’t had what I consider to be a ‘normal’ period i.e light-med f...

Haneliz22

•3 years ago

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Zoladex.

Hi , I’ve been on Zoladex for 7 months now, however, today out of nowhere I began bleeding heavy and bad pain flare. Has anyone else ever experienced similar...

Hi , I’ve been on Zoladex for 7 months now, however, today out of nowhere I beg...

Caitlincee1

•3 years ago

4 Replies

Pain Team Referral

Hi Everyone, When I saw my consultant back in May, she suggested for me to go on to the pill to control pain and symptoms alongside the Mirena coil. However,...

Hi Everyone, When I saw my consultant back in May, she suggested for me to go o...

GreenQueen-99

•3 years ago

5 Replies

Pain in both sides lower pelvis

I’ve just finished my period yesterday and since I’ve had sharp stabbing pain in both sides of pelvis not sure if it’s my ovaries, I’ve also got a lot of acid...

I’ve just finished my period yesterday and since I’ve had sharp stabbing pain in...

Shelly085

•3 years ago

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Long term pain management

Hi folks, I posted recently after my laparoscopy and everyone was so lovely and supportive! I just wanted to post again to ask for some solutions to long-term...

Hi folks, I posted recently after my laparoscopy and everyone was so lovely and ...

KPoppins90

•3 years ago

1 Reply

Volunteer Opportunity: Campaigns and Social Media Volunteer based in Northern Ireland

We are looking for an enthusiastic Campaigns and Social Media Volunteer. This is an exciting position, with a real opportunity to make a difference. You will...

We are looking for an enthusiastic Campaigns and Social Media Volunteer. This is...

endo_supportmanager

Partner•3 years ago

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Cost of private diagnostic laparoscopy?

I’m on the nhs waiting list for another laparoscopy with a BSGE endo specialist (after one last august with a general gynae which came back as ‘no endo found,...

I’m on the nhs waiting list for another laparoscopy with a BSGE endo specialist ...

Dartmouth93

•3 years ago

4 Replies

NHS failure

Hello, Yesterday I was in the hospital again with severe pains that were so bad that the tramadol did not help with the pain. Of course, at the hospital, they...

Hello, Yesterday I was in the hospital again with severe pains that were so bad ...

Nancin

•3 years ago

5 Replies

Anyone tried the Cyclesoother?

I have just had an ad pop up on my Facebook news feed for the Cyclesoother. I've never heard of it before but it is a portable heatpad / massager and all the...

I have just had an ad pop up on my Facebook news feed for the Cyclesoother. I'v...

JadeH92

•3 years ago

12 Replies

Diagnostic Surgery Wait

Hi all, So to give some back story…. I was put on the wait list for a laparoscopy in Wales in August 2019 (so 2 years ago) and it has not yet happened due to...

Hi all, So to give some back story…. I was put on the wait list for a laparosco...

Gem227

•3 years ago

9 Replies

Period pain

Hi ladies, I’m just wondering if the pain I experienced during my period is normal for endo. (I know I have endo I was diagnosed years ago and have had two...

Hi ladies, I’m just wondering if the pain I experienced during my period is no...

MrsC_0417

•3 years ago

1 Reply

Progesterone only pill.

Has anyone on here had any positive results from being on the progesterone only pill or at the very least, reduced symptoms?

Has anyone on here had any positive results from being on the progesterone only ...

Peppermints

•3 years ago

6 Replies

Laparoscopy essentials

Hi everyone! Finally having my lap next week after being on surgical waiting list for a year! I’m trying to get as best organised for after, can anyone help me...

Hi everyone! Finally having my lap next week after being on surgical waiting lis...

Littlenestofvipers

•3 years ago

6 Replies

Zoladex and HRT

Hey everyone this is my first post. Ive just been diagnosed with stage 4 endo have two large cysts which has developed into kissing ovaries. I've been on...

Hey everyone this is my first post. Ive just been diagnosed with stage 4 endo h...

My_adventures

•3 years ago

28 Replies

Prostrap & emotions

I started Prostrap 2 weeks ago and today it just hit me like a tonne of bricks, my emotions are all over the place, I have started crying for no reason and now...

I started Prostrap 2 weeks ago and today it just hit me like a tonne of bricks, ...

SashaKiara

•3 years ago

4 Replies

Posts - Endometriosis UK | HealthUnlocked

Endometriosis UK

All posts for August 2021

No one is taking my awful period pain seriously

Synarel and Utovlan together? - your experiences please!

Endo/Pcos and the Yasmin Pill

Endo near heart/lungs

Tranexamic acid - any advice?

Endo diet - cycle changes?

Anyone get a rash with HRT patches

Have I made the wrong decision?

HRT AFTER HYSTERECTOMY

endometriosis exercise.

Yorkshire Endo specialist recommendation?

It wasn't a ruptured cyst, it was a miscarriage, without knowing I was pregnant.

Mirena Coil

Post op 3m follow up and hysterectomy query

Endo belly on wedding day!

Normal period before laparoscopy

Zoladex.

Pain Team Referral

Pain in both sides lower pelvis

Long term pain management

Volunteer Opportunity: Campaigns and Social Media Volunteer based in Northern Ireland

Cost of private diagnostic laparoscopy?

NHS failure

Anyone tried the Cyclesoother?

Diagnostic Surgery Wait

Period pain

Progesterone only pill.

Laparoscopy essentials

Zoladex and HRT

Prostrap & emotions

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