Endo near heart/lungs: So thoracic Endo... - Endometriosis UK

Endometriosis UK

71,871 members52,614 posts

Endo near heart/lungs

Stage4sister profile image
5 Replies

So thoracic Endo near my lungs and heart has been found. It was left in place and my surgeon said there’s not much he can do as it’s too risky to treat. Just wondering if anyone else has had this?

Written by
Stage4sister profile image
Stage4sister
To view profiles and participate in discussions please or .
5 Replies
Flynn_Maverick profile image
Flynn_Maverick

Hello sorry to hear this. I don’t have thoracic endo but have had endo removed from the diaphragm a few times - the gynaecology surgeon should be able to work with a specialist to remove it from tricky/ risky places. Mine works with a hepatobiliary surgeon to remove it from the diaphragm. A thoracic surgeon working with a gynaecologist should be able to remove it I would have thought. Do you mind me asking what symptoms you are getting with it?

Stage4sister profile image
Stage4sister in reply to Flynn_Maverick

Thank you that’s helpful! I get some lower rib cage pain but that’s it.

Flynn_Maverick profile image
Flynn_Maverick in reply to Stage4sister

Same as when it’s on the diaphragm then! Hope you get it sorted xx

dodgeviperdiva profile image
dodgeviperdiva

hi hun how's u doing today 🙂 I'm so sorry to hear that, I don't have thoracic endo but I just wanted to show my support n sending you big hugs 😂 wishing you all the best if you eva just fancy a rant plz pm me xxxx

Stage4sister profile image
Stage4sister in reply to dodgeviperdiva

💗

Not what you're looking for?

You may also like...

Fatigue, Adenmyosis and Endometriosis

I was wondering what peoples experiences were with fatigue and Endo and Adeno. I have always been a...

Should I complain about doctor?

My sister saw one of the GPs at her surgery a few days ago because she believes she may have...

Feeling Undermined and Overwhelmed

Hello, this post is longer than I intended but I wanted to give some context - my actual question...

Removal or not of ovaries

I have stage 4 endo (DIE), frozen pelvis, bilateral tubo-ovarian complex so endo through tubes,...

CA125 level 89

I’ve just had bloods back and have raised levels of ca125. Last time I had this test about 18...