Posts - Endometriosis UK | HealthUnlocked

Endometriosis UK

72,180 members • 52,780 posts

All posts for April 2020

Lack of sleep

Anyone got any tips for getting to sleep. Im lucky if i fall asleep before 5am! I go to bed at a reasonable time but cannot sleep. I am completely exhausted...

Anyone got any tips for getting to sleep. Im lucky if i fall asleep before 5am! ...

DAML8

•4 years ago

Be the first to reply

Skin

Does anyone else suffer with terrible dry and painful skin since being diagnosed with endo? I don’t know if it’s down to the endo, the hrt or the pain relief...

Does anyone else suffer with terrible dry and painful skin since being diagnosed...

DAML8

•4 years ago

Be the first to reply

I’m in so much pain

I’m in so much pain and don’t know what to do. I’ve got sharp, stabbing pains on the left hand side of my abdomen which is radiating into my shoulder, hip,...

I’m in so much pain and don’t know what to do. I’ve got sharp, stabbing pains on...

DAML8

•4 years ago

1 Reply

Want to take advantage of all our features? Just log in!

Pain specialist

Has anyone here seen/been under a pain specialist? I have been accepted and i am currently on the (very long) waiting list. What sort of relief can they offer?...

Has anyone here seen/been under a pain specialist? I have been accepted and i am...

DAML8

•4 years ago

2 Replies

Picolax sachet

Hi guys I've taken picolax sachet but my operation got cancelled last min...will it just wear off after few hours or shall I ring up my gp?

Hi guys I've taken picolax sachet but my operation got cancelled last min...will...

kobe78

•4 years ago

2 Replies

Weakness in limbs

Does anyone experience weakness in their arms and legs when their pain gets bad? I’ve had it for the first rime today and ended up spending all afternoon in...

Does anyone experience weakness in their arms and legs when their pain gets bad?...

Cinderella24

•4 years ago

7 Replies

Help with support and info

Hi new here and first time posting, recently been diagnosed with catamenial pneumothorax have suffered with very painful heavy periods for as long as I can...

Hi new here and first time posting, recently been diagnosed with catamenial pneu...

Cat2019

•4 years ago

4 Replies

Can anyone recommend a good pillow for my back or legs?

As with many I struggle with back ache. I’ve recently had to switch to sleeping on my back but need a good pillow for the small of my back or my knees to help....

As with many I struggle with back ache. I’ve recently had to switch to sleeping ...

Bethleah

•4 years ago

3 Replies

The anti hormone/chemical menopause injection

Hello all, hope you are keeping safe in these worrying times. I haven't posted here for months as things have not been good for me at all. I had a lap in...

Hello all, hope you are keeping safe in these worrying times. I haven't posted h...

Sez1988-

•4 years ago

2 Replies

3 month decapeptyl/ triptorelin

Hello. I suffer with stage 4 endometriosis. 6 weeks ago I was given the 1 month triptoerlin/ decapeptyl injection which gave me terrible side effects which I...

Hello. I suffer with stage 4 endometriosis. 6 weeks ago I was given the 1 month...

Lily1986

•4 years ago

5 Replies

Started Zoladex today

Hey all, I've been really struggling with my endometriosis for the last couple of months to the point that I've been signed off work. I always get really...

Hey all, I've been really struggling with my endometriosis for the last couple ...

fdennis07

•4 years ago

14 Replies

In pain all the time and no diagnosis feel stuck in limbo

Hi all this is my first post sorry it’s a long one! I’m not yet diagnosed but have a lot of the symptoms and was awaiting laparoscopy this month until the...

Hi all this is my first post sorry it’s a long one! I’m not yet diagnosed but ha...

Bluetiger1

•4 years ago

6 Replies

Advice following op to remove ovaries & Fallopian tubes

Post laparoscopic recovery advice to remove ovaries & Fallopian tubes. Hi everyone, I had a laparoscopy on Friday to remove my ovaries & Fallopian tubes due...

Post laparoscopic recovery advice to remove ovaries & Fallopian tubes. Hi ever...

Redforestcat

•4 years ago

Be the first to reply

Trying for a baby

Hi, I’m 22 and I have endometriosis. I’ve had two laparoscopies one were the endo was burnt out and another when it was cut out but this was a few year back....

Hi, I’m 22 and I have endometriosis. I’ve had two laparoscopies one were the end...

Chloealice

•4 years ago

2 Replies

Flare ups triggered by foods?

Hello, I'm curious what the time frame is between eating a food that usually causes a flare up and the actual flare. I am trying to see what foods may by...

Hello, I'm curious what the time frame is between eating a food that usually cau...

DeeMart

•4 years ago

3 Replies

Cramps in my lower stomach/upper pelvic area?

I’ve got this cramping feeling in my lower stomach/upper pelvic area. It almost feels like period pains expect I am not on and not due on for another 9 days....

I’ve got this cramping feeling in my lower stomach/upper pelvic area. It almost ...

BRYAS

•4 years ago

8 Replies

Nosebleed

Does anyone get monthly nosebleeds??. I had a hysterectomy 3 yrs ago but due another lap due to ongoing pains. I still have ovaries.

Does anyone get monthly nosebleeds??. I had a hysterectomy 3 yrs ago but due ano...

EndoJaz

•4 years ago

1 Reply

Sorry I’m back - any ideas to get my through the night

I didn’t ring 111 but am ringing my dr again in the morning as I’m still in agony and pills aren’t helping a great deal. I’ve got a hot water bottle - any...

I didn’t ring 111 but am ringing my dr again in the morning as I’m still in agon...

rossemma1

•4 years ago

3 Replies

Tailbone pain

Does anyone experience tailbone pain with their endometriosis?

anonymous182

•4 years ago

3 Replies

Endometriosis or Tuberculosis Abdominal Symptoms/Pain? Help Please

I started with abdominal/liver right sided pain last May. Then in August stomach infection started stomach churning, so I stopped eating fruit and anything...

I started with abdominal/liver right sided pain last May. Then in August stomach...

snow22

•4 years ago

Be the first to reply

Please help - extreme pain

Hi all. Sorry to be on here again - I don’t know what to do, I’m laying in bed in agony, got a hot water bottle but crying with pain... I’ve taken my...

Hi all. Sorry to be on here again - I don’t know what to do, I’m laying in bed i...

rossemma1

•4 years ago

14 Replies

Feeling desperate, in lots of pain, please help!

OK Ladies so I really need some support, I suspect that my Endo may have developed as I am getting bad pain in my pelvis and down the back of my bullock, I'm...

OK Ladies so I really need some support, I suspect that my Endo may have develop...

Emma-endo

•4 years ago

2 Replies

Kidneys?

Hi all hope your all well! Hope someone can help me! I’ve not yet been diagnosed with endo just adeno but waiting for lap apt although gynae is certain I hve...

Hi all hope your all well! Hope someone can help me! I’ve not yet been diagnose...

Adeno2020

•4 years ago

2 Replies

How to treat a surgical menopause? Level 4 Endometriosis .

Hi All Please could anybody advise how they dealt or are dealing with the menopause ( I have had a total abdominal hysterectomy - no ovaries, so a forced...

Hi All Please could anybody advise how they dealt or are dealing with the menopa...

45Bumbleb

•4 years ago

2 Replies

Generally feeling unwell with endo? Feeling hot but no temp, happens all the time!

Hi all! I’m wondering if anyone suffers from the same symptoms as me? I haven’t yet had the laparoscopy to diagnose endo but gynaecologist is pretty certain...

Hi all! I’m wondering if anyone suffers from the same symptoms as me? I haven’t ...

Elliem22

•4 years ago

3 Replies

Fasting

Hi Was wondering about fasting during Ramadan and what other people have done. I’m going to struggle but I feel bad having to miss them. During the period we...

Hi Was wondering about fasting during Ramadan and what other people have done. I...

Pinkqueen8

•4 years ago

2 Replies

Zoladex and pregnancy

Im 26 years of age married from 1.5 years. I had recently gone through open surgery last feb. I had severe endometriosis on left ovary (3 cysts including...

Im 26 years of age married from 1.5 years. I had recently gone through open surg...

Mukaramwasim92

•4 years ago

6 Replies

Copper coil

Good morning everyone, has anyone ever had the copper coil after having there endo removed? I've read in a few places it's not recommended to have the coil if...

Good morning everyone, has anyone ever had the copper coil after having there en...

Rachaellouiset

•4 years ago

1 Reply

Bladder pain?

Hey guys, So this is my first time posting here, I am currently waiting for keyhole surgery to properly diagnose my endometriosis. Recently I have had alot of...

Hey guys, So this is my first time posting here, I am currently waiting for keyh...

Nrooney747

•4 years ago

15 Replies

Please share your experience if anyone stop taking the Dienogest

I am a patient of endometriosis since 15 years. I am 32 years old. Now my endometriosis is in stage 4 and my laparoscopy surgery was planned to be held on 6th...

I am a patient of endometriosis since 15 years. I am 32 years old. Now my endome...

trishabhowmik

•4 years ago

Be the first to reply

Posts - Endometriosis UK | HealthUnlocked

Endometriosis UK

All posts for April 2020

Lack of sleep

Skin

I’m in so much pain

Pain specialist

Picolax sachet

Weakness in limbs

Help with support and info

Can anyone recommend a good pillow for my back or legs?

The anti hormone/chemical menopause injection

3 month decapeptyl/ triptorelin

Started Zoladex today

In pain all the time and no diagnosis feel stuck in limbo

Advice following op to remove ovaries & Fallopian tubes

Trying for a baby

Flare ups triggered by foods?

Cramps in my lower stomach/upper pelvic area?

Nosebleed

Sorry I’m back - any ideas to get my through the night

Tailbone pain

Endometriosis or Tuberculosis Abdominal Symptoms/Pain? Help Please

Please help - extreme pain

Feeling desperate, in lots of pain, please help!

Kidneys?

How to treat a surgical menopause? Level 4 Endometriosis .

Generally feeling unwell with endo? Feeling hot but no temp, happens all the time!

Fasting

Zoladex and pregnancy

Copper coil

Bladder pain?

Please share your experience if anyone stop taking the Dienogest

Search posts

Pinned Posts

Latest poll

If you were eligible to take part in a medical research trial about endometriosis, how would you like to find out about it?

Topics

Archive