The anti hormone/chemical menopause injection

[Sez1988-]

Hello all, hope you are keeping safe in these worrying times. I haven't posted here for months as things have not been good for me at all.

I had a lap in september last year that diagnosed a tiny bit of endometriosis and was fully removed, but the consultant was certain I had adenomyosis, as my womb seemed much softer than it should be and would explain a lot of the pain I get every month, and also speculated whether I had something called central sensitisation. I was given the mirena but my body would NOT tolerate it and I had it removed after just over a month and things were a bit better. But since then my symptoms have slowly worsened and completely ruined my life. I now have severe anxiety and feel scared to go far from home a lot of the time, can no longer have sex with my husband, and I am overall exhausted all the time.

When my pains flare up, especially when I ovulate, try to have sex, or come on my period, I get severe pains in my womb, in my sides, and strangely up my rectum and in my urthrea. When I ovulate the side pain is always just in one side so I assume that's the side I ovulate from each time. I was due to have a colonoscopy for the rectal pain to check I didn't have anything there like a polyp or inflammation but obviously all this corona thing stopped it for now. It's become so bad now, the pains used to just last a few hours in one day but now they go on for about 3 or 4 days, and for one of these days without fail I can barely move off the sofa, it's just so upsetting. I've tried all hormonal contraceptives apart from the depo, though I don't even know if that is worth trying at this stage, it's a bit unsettling that it's a 3 month long thing.

I managed to get a telephone appointment but unfortunately my two main consultants who I see are both off as they had symptoms of the virus, so it was a new one, he seemed okay though. He suggested that the last thing left to try away from a hysterectomy is this anti hormone injection which would be me into a chemical menopause.

Now my usual consultant who did my surgery said he only ever uses that as a sort of test to see if a hysterectomy would solve the problems as it has strong side effects and is not a long term solution, and he never uses it for more than a few months. I do have one person in my family who has had this for the same problem as me and she said it was awful with the side effects and she only had the one injection as it was so bad for her. He said if I couldnt tolerate this then it would be right into a hysterectomy, which to be honest, I really want at this point as I'm terrified every day at what is going on in my body. I'd rather go through the menopause and have a life for my family than live like this and keep holding everyone in my house back too.

Anyway, I just wanted to ask what everyone else experiences are of this injection?

Thank you for reading and be safe.

[Moon_maiden]

Hi

I’ve had two Zoladex so far, out of six. On Tibolone as well.

So far no effects good or bad that I’ve noticed. The second was last week so likely too soon.

I know what you mean about having hysterectomy to try and get rid of the discomfort and pain.

I thought I’d give it a go to see if it works, may not need op if it kick starts actual menopause and things improve. Poor body has never had so much medication.

As we’ve discovered with this condition, it’s going down routes that aren’t usual, ie op just to confirm, etc.

Take care 😊

[Cookie-crumbling]

I have been on the injection for about 15 months now (was due a hysterectomy but it got pushed back once and then cancelled again because of current situation!) and I have to say that I am much better now than I ever was before it. There are definitely some side effects, but it has meant that I can generally function better as a human! I’d say it’s certainly worth a try to see if it gives you some reprieve and also how you might react to the hormone change after the hysterectomy. Thinking of you xx