Posts - Advanced Prostate Cancer | HealthUnlocked

Advanced Prostate Cancer

21,446 members • 26,866 posts

All posts for August 2021

Clinical trials phase 2 with new drug ESK 981

Unleashing immunotherapy against "cold" prostate tumors. (Michigan Rogel Cancer Center) Any comments?

Unleashing immunotherapy against "cold" prostate tumors. (Michigan Rogel Cancer ...

donits

•3 years ago

2 Replies

Blood Test results -3 weeks after 2nd LU-177 infusion

Just got my blood test results done, 3 weeks after my 2nd LU 177 infusion. PSA came down from 4.08 to 0.814. Great improvement. Both Oncologist and Radiologist...

Just got my blood test results done, 3 weeks after my 2nd LU 177 infusion. PSA c...

bellyhappy

•3 years ago

20 Replies

No Alcohol - evidence??

Ive seen this advice for us PCa fighters so many times. I used to be a beer drinker (British beers) and home brewer - but stopped abruptly after PCa diagnosis...

Ive seen this advice for us PCa fighters so many times. I used to be a beer drin...

Stoneartist

•3 years ago

62 Replies

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Fructus Gardiniae?

I am always adding to my morning tea as I get suggestions. For a while I was using it to help with urination and kept using it. You need to boil it for 30...

I am always adding to my morning tea as I get suggestions. For a while I was usi...

spencoid2

•3 years ago

14 Replies

Alternative to prednesone?

I am taking prednesone not near bed time and am still having difficulty sleeping. Predbesone is supposed to be essential with Firmagon and Aberaterone. My...

I am taking prednesone not near bed time and am still having difficulty sleeping...

spencoid2

•3 years ago

16 Replies

do I have to change Lupron?

tomorrow I will have 3.Lucrin injection and have appointment with MO. T value is high compared with last April data. So I think myself that Lupron has lost...

tomorrow I will have 3.Lucrin injection and have appointment with MO. T value is...

LastMohikan

•3 years ago

15 Replies

21 years on Lupron without a break . Saved my life since 1999.

I can only share my experiences with Continuous ADT for 21 years with , no breaks . Stage IV metastatic PSA 30 . Six mo the to live. 1999x yup another Century....

I can only share my experiences with Continuous ADT for 21 years with , no break...

ShenStone

•3 years ago

52 Replies

Small update on my Jeff

Since the Zytiga/Prednisone can potentially make Jeff sick, while he’s in the hospital, they have suspended his cancer treatment. Currently, it’ll be at least...

Since the Zytiga/Prednisone can potentially make Jeff sick, while he’s in the ho...

Pancake_Lefse

•3 years ago

13 Replies

Worn Out Wings

Greetings all, First time Wading into the deep waters here from a newbie on site. The information and conversations here are the best Ive ever read and I...

Greetings all, First time Wading into the deep waters here from a newbie on sit...

Scar3crow

•3 years ago

28 Replies

Update on Spiraling Scans....

Based on my appointment with Duke on Friday I am going to proceed with GemOx Chemo. Platinum based chemo component will better treat my liver metastasis....

Based on my appointment with Duke on Friday I am going to proceed with GemOx Che...

noirhole

•3 years ago

3 Replies

The Best Therapy Ever

Here is a picture of my therapy providers. The light girl is Saffron (Saffie) The little guy is Darcy who has been with us for three days. He is a show quality...

Here is a picture of my therapy providers. The light girl is Saffron (Saffie) Th...

spencoid2

•3 years ago

9 Replies

regular physical

Hey all, Do you all still get yearly physicals in spite of all the bloodwork and scans we get on a regular basis? I so blood panels every 2 months and scans...

Hey all, Do you all still get yearly physicals in spite of all the bloodwork an...

Survivor1965

•3 years ago

15 Replies

Support forum for spouses, partners

Can anyone tell me if we have a support group in the forum community for wives, partners, etc.? My wife really needs one. Thanks brothers

Can anyone tell me if we have a support group in the forum community for wives, ...

Savoy

•3 years ago

3 Replies

Is drug treatment the only way to go?

Are my MO's doing the right thing? At 67, both Fox Chase and Moffit oncologists are of the same opinion that I should/can hold off starting any further...

Are my MO's doing the right thing? At 67, both Fox Chase and Moffit oncologists ...

mickeypb

•3 years ago

15 Replies

metastasized to brain

I just don’t have the heart to retype/edit an update. Please forgive my “family version” dialogue: After a painfully long and concerning wait dealing with...

I just don’t have the heart to retype/edit an update. Please forgive my “family ...

Pancake_Lefse

•3 years ago

51 Replies

Latest PSA 0.019

I was diagnosed last April, 2020 with locally advanced PC. Gleason 8. Stage: T3, N1, M0. Presenting PSA: 93. Had a PSMA/PET: no sign of mets other than three...

I was diagnosed last April, 2020 with locally advanced PC. Gleason 8. Stage: T3,...

dexy1234

•3 years ago

27 Replies

Advice on incontinent overnight products? Also, TURP experience?

Hey, Can anyone recommend a preferred overnight product (preferably not the full ‘diaper’ depends type…so hot) for my husband? He’s tried several of the pads...

Hey, Can anyone recommend a preferred overnight product (preferably not the ful...

Newdiag-NC

•3 years ago

18 Replies

Has anyone found a successful way to minimize hot flashes from ADT therapy without creating more problems with additional side effects?

Prostrate Cancer and Hot Flashes from ADT Therapy

Sam1962

•3 years ago

59 Replies

My PSA Level

Hello Good People Date 21/06/2021 i had PSA level 0.99 ,i did psma /pet/ ct ,no cancer signs even a suspicious 1cm in my right kidney and 2 Noduls 6mm on the...

Hello Good People Date 21/06/2021 i had PSA level 0.99 ,i did psma /pet/ ct ,no ...

NOCanceros

•3 years ago

11 Replies

Am I Crazy???

Let me preface this post by saying that I’m one of those guys who values quality of life over longevity, within reason. I know this stance is very...

Let me preface this post by saying that I’m one of those guys who values quality...

Murph256

•3 years ago

123 Replies

Difficulty urinating

My hubby has been in and out of the ER many times since January of this year and prior to getting the most realization and and hormone meds. The reason for...

My hubby has been in and out of the ER many times since January of this year and...

Madbeach

•3 years ago

8 Replies

31 months since prostate removal - and now I am a .1ng/ml

from all your experiences with this is that a long time, normal? what does that mean for prognosis. 3+4 Gleason 5.4 pre-op PSA all final path, clean margins,...

from all your experiences with this is that a long time, normal? what does that ...

plato123

•3 years ago

5 Replies

Peripheral neuropathy and Zytiga

After ten months Zytiga has failed me and my PSA doubling time is about two months. I am switching to Xtandi. For At least four months I have had...

After ten months Zytiga has failed me and my PSA doubling time is about two mont...

Frigataflyer

•3 years ago

18 Replies

Use of Betnesol 5mg/100 ml ...for occasional traces of rectal bleeding

18 months after RT on pelvic parts, I have occasional rectal bleeding visible on toilet paper ... red color. It is visible about every 10 days, difficult to...

18 months after RT on pelvic parts, I have occasional rectal bleeding visible on...

Karmaji

•3 years ago

6 Replies

A word of Caution Concerning Ketogenic Diets

"Ketogenic diets may provide short-term improvement and aid in symptom management for some chronic diseases. Such diets affect diet quality, typically...

"Ketogenic diets may provide short-term improvement and aid in symptom managemen...

cashlessclay

•3 years ago

11 Replies

Profound fatigue from Zytiga

My Jeff just started taking Zytiga/Prednisone. We knew to expect fatigue, but he is profoundly fatigued and is struggling to stay awake. I’ve read that...

My Jeff just started taking Zytiga/Prednisone. We knew to expect fatigue, but h...

Pancake_Lefse

•3 years ago

16 Replies

Sleep problems on Xtandi

Hi all, I'm wondering has anyone experienced sleep problems on Xtandi? My Father takes it at 10am, he does have fatigue during the day which is increasing and...

Hi all, I'm wondering has anyone experienced sleep problems on Xtandi? My Father...

Nickhmcg

•3 years ago

37 Replies

Acute Bone Pain

Hi Guys Advice on Which Medication to use to ease the pain in Femur, Groin and hips caused by Bone Mets..Blessings

Hi Guys Advice on Which Medication to use to ease the pain in Femur, Groin and h...

Andrevz

•3 years ago

4 Replies

Cannabis Instead of Opioids for Chronic Pain reduction - summary of research from goodrx

An interesting article worth a read. These are just some excerpts. Though personally, I would stay away from Cannabinoids unless and until your reach...

An interesting article worth a read. These are just some excerpts. Though pers...

cesanon

•3 years ago

16 Replies

Persistent psa

I’m wondering if anyone has had experience with benign prostatic tissue left behind after RP. My husband was diagnosed in 2019 with psa 16 and gleason 3+4....

I’m wondering if anyone has had experience with benign prostatic tissue left beh...

Bkln77

•3 years ago

11 Replies

Posts - Advanced Prostate Cancer | HealthUnlocked

Advanced Prostate Cancer

All posts for August 2021

Clinical trials phase 2 with new drug ESK 981

Blood Test results -3 weeks after 2nd LU-177 infusion

No Alcohol - evidence??

Fructus Gardiniae?

Alternative to prednesone?

do I have to change Lupron?

21 years on Lupron without a break . Saved my life since 1999.

Small update on my Jeff

Worn Out Wings

Update on Spiraling Scans....

The Best Therapy Ever

regular physical

Support forum for spouses, partners

Is drug treatment the only way to go?

metastasized to brain

Latest PSA 0.019

Advice on incontinent overnight products? Also, TURP experience?

Has anyone found a successful way to minimize hot flashes from ADT therapy without creating more problems with additional side effects?

My PSA Level

Am I Crazy???

Difficulty urinating

31 months since prostate removal - and now I am a .1ng/ml

Peripheral neuropathy and Zytiga

Use of Betnesol 5mg/100 ml ...for occasional traces of rectal bleeding

A word of Caution Concerning Ketogenic Diets

Profound fatigue from Zytiga

Sleep problems on Xtandi

Acute Bone Pain

Cannabis Instead of Opioids for Chronic Pain reduction - summary of research from goodrx

Persistent psa

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