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Experiences with
Peroxisomal acyl-CoA oxidase deficiency
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Supplements for arthritis and rivaoxaban
Hi all My husband has paroxysmal AF and a pacemaker takes digoxin and Rivaoxaban. He has slight arthritis in both knees(too much playing hockey in his younger days!) and not bad enough to take painkillers all the time. Bothers him the most after sitting for a while and then moving again. Before his
Hi all My husband has paroxysmal AF and a pacemaker takes digoxin and Rivaoxaban. He has slight arthritis in both knees(too much playing hockey in his younger days!) and not bad enough to take painkillers all the time. Bothers him the most after sitting for a while and then moving again. Before his
Janau
in
Atrial Fibrillation Support
1 year ago
lightning crotch pain
good morning does anyone experience lightning crotch pain with endo. I’m having an episode of it now and it’s so painful. I’ve taken 2 co-codamol 30/500mg. Any advice on how to deal this pain would be really helpful. thanks Yasmin
good morning does anyone experience lightning crotch pain with endo. I’m having an episode of it now and it’s so painful. I’ve taken 2 co-codamol 30/500mg. Any advice on how to deal this pain would be really helpful. thanks Yasmin
Yas45
in
Endometriosis UK
1 year ago
High Ferrtin level - 3/57 ugL. The range should be between 30 - 250 (Woman)
Since my last two blood test over 4 months, my ferritin level has been Ferritin * 3/57 ugL. The range should be between 30 - 250. This is of a great concern to me as I suffer from the following Conditions: Rheumatoid Arthritis, Sarcoidosis, High Blood Pressure, Lower Back pain - Severe Degenerative
Since my last two blood test over 4 months, my ferritin level has been Ferritin * 3/57 ugL. The range should be between 30 - 250. This is of a great concern to me as I suffer from the following Conditions: Rheumatoid Arthritis, Sarcoidosis, High Blood Pressure, Lower Back pain - Severe Degenerative
gulshanmunshi
in
NRAS
1 year ago
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Diazepam addiction.
Hi, I have been addicted to diazepam for a few years and have finally tapered down over a few months to 1mg per night. I honestly don't think it is strong enough to matter but if I don't have one just before I go to bed I cannot sleep. Also would taking magnesium oxide and 1mg of diazepam interact
Hi, I have been addicted to diazepam for a few years and have finally tapered down over a few months to 1mg per night. I honestly don't think it is strong enough to matter but if I don't have one just before I go to bed I cannot sleep. Also would taking magnesium oxide and 1mg of diazepam interact
John3E
in
Anxiety and Depression Support
2 years ago
Iron Levels with CLL
Ive been having issues with low iron and as a result I'm on/off iron supplements. I also started taking acalabrutinib in May. I see a local doctor who didn't seem too concerned and I also see a doc in Cincinnati that says low iron is not normal with CLL/acalabrutinib, so he wants me to have an upper
Ive been having issues with low iron and as a result I'm on/off iron supplements. I also started taking acalabrutinib in May. I see a local doctor who didn't seem too concerned and I also see a doc in Cincinnati that says low iron is not normal with CLL/acalabrutinib, so he wants me to have an upper
susq9948
in
CLL Support
1 year ago
osteoarthritis hip pain steroid injection
hi, after yet another scan I have been diagnosed with osteoarthritis of my hip along with age related spinal stenosis. It is great is greatly affecting my mobility. After waiting a year I had my steroid injection 3 weeks ago and so far no improvement in my walking so back to taking co codamol/paracetamol
hi, after yet another scan I have been diagnosed with osteoarthritis of my hip along with age related spinal stenosis. It is great is greatly affecting my mobility. After waiting a year I had my steroid injection 3 weeks ago and so far no improvement in my walking so back to taking co codamol/paracetamol
Margie21
in
Osteoarthritis Action
1 year ago
Advice required please
Ten years ago I had ovarian cancer, I’m well now. Gradually ever since the extensive surgery I had, I’ve developed symptoms such as widespread pain, insomnia, stiffness in joints and muscles, severe cramps, fatigue, anxiety/depression, brain fog, irritable bladder, gut issues and restless legs. I’ve
Ten years ago I had ovarian cancer, I’m well now. Gradually ever since the extensive surgery I had, I’ve developed symptoms such as widespread pain, insomnia, stiffness in joints and muscles, severe cramps, fatigue, anxiety/depression, brain fog, irritable bladder, gut issues and restless legs. I’ve
Blueholidaytime
in
Fibromyalgia Action UK
1 year ago
Low Ferritin and iron supplements & Iron Panel interpretation
Further to my post of 24.10.22 Endo increased my Levo to 75 mcg daily and advised TSH to aim for 0.5-2.5, when I mentioned low ferritin she looked at the blood test and said everything is within range? Said my symptoms of brain fog, swimmy head, heaviness and tinitis are unlikely related to thyroid
Further to my post of 24.10.22 Endo increased my Levo to 75 mcg daily and advised TSH to aim for 0.5-2.5, when I mentioned low ferritin she looked at the blood test and said everything is within range? Said my symptoms of brain fog, swimmy head, heaviness and tinitis are unlikely related to thyroid
Watamu
in
Thyroid UK
1 year ago
Magnesium for RLS
Merry Christmas! While I've said the below in various Replies, I thought I'd put it in a post. I've been taking at least 400mg a day of magnesium citrate for some years now, since I had it recommended to me by a relative: 600mg a day initially stopped my RLS within days, and 400mg a day (the amount suggested
Merry Christmas! While I've said the below in various Replies, I thought I'd put it in a post. I've been taking at least 400mg a day of magnesium citrate for some years now, since I had it recommended to me by a relative: 600mg a day initially stopped my RLS within days, and 400mg a day (the amount suggested
ChrisColumbus
in
Restless Legs Syndrome
2 years ago
parietal cell antibody lab results
I’m having trouble interpreting my lab results. My Parietal Cell Antibody IgG value is 33.2 units and it said the standard range is 0.0-24.9 units. So it’s above the standard range but not by much. Apparently above 25 units is positive so that means I’m positive? I just want to confirm.
I’m having trouble interpreting my lab results. My Parietal Cell Antibody IgG value is 33.2 units and it said the standard range is 0.0-24.9 units. So it’s above the standard range but not by much. Apparently above 25 units is positive so that means I’m positive? I just want to confirm.
Purplegirl2
in
Pernicious Anaemia Society
1 year ago
Advice on iron test results please
Having had a history of low ferritin and been prescribed iron tablets, I thought I’d do a test to see if I actually needed them. Surprisingly, my ferritin level has improved but is still not optimal to support my thyroid. Should I take the iron supplements?
Having had a history of low ferritin and been prescribed iron tablets, I thought I’d do a test to see if I actually needed them. Surprisingly, my ferritin level has improved but is still not optimal to support my thyroid. Should I take the iron supplements?
Pastelart
in
Thyroid UK
1 year ago
USA Iron Infusion billing code E83.1
I finally got an iron infusion approved for tomorrow. The doc put request in for anemia but I got the correct billing code from the RLS Foundation:E83.1 Disorder of iron metabolism, unspecified. Excludes1: iron deficiency anemia/ sideroblastic anemia E83 Excludes1: dietary mineral deficiency/ parathyroid
I finally got an iron infusion approved for tomorrow. The doc put request in for anemia but I got the correct billing code from the RLS Foundation:E83.1 Disorder of iron metabolism, unspecified. Excludes1: iron deficiency anemia/ sideroblastic anemia E83 Excludes1: dietary mineral deficiency/ parathyroid
SkyCop
in
Restless Legs Syndrome
1 year ago
Endo to end all Endo!!!
I had a bad turn today, i was busy watching tv, when i had the most horrid griping hot poker in my left groin pain. It made me gasp, so i took a painkiller. Does anyone take anything else for it?. Is there a better painkiller than co-codamol. I've just had another pain as i type. Why won't it leave
I had a bad turn today, i was busy watching tv, when i had the most horrid griping hot poker in my left groin pain. It made me gasp, so i took a painkiller. Does anyone take anything else for it?. Is there a better painkiller than co-codamol. I've just had another pain as i type. Why won't it leave
valgal76
in
Endometriosis UK
1 year ago
Ferritin
Hi everyone,Firstly thank you for all the fantastic advice on this forum. I've got a Serum Ferritin level of 308ng/ml (my GP was concerned that this was a bit too high), Transferrin Saturation of 31% but a Serum Transferrin level of 2.3g/L. Please can you give me your thoughts on this & am I looking
Hi everyone,Firstly thank you for all the fantastic advice on this forum. I've got a Serum Ferritin level of 308ng/ml (my GP was concerned that this was a bit too high), Transferrin Saturation of 31% but a Serum Transferrin level of 2.3g/L. Please can you give me your thoughts on this & am I looking
blades10
in
Restless Legs Syndrome
1 year ago
Anaemia test results
Hi all, I recently did the 'Full health screen' from Monitor My Health and all the vitamin results have come back without proper ranges. Only the graphs. Which is irritating. BUT Would you supplement iron with these results? I can't afford to do a full iron panel, and I had assumed this test would
Hi all, I recently did the 'Full health screen' from Monitor My Health and all the vitamin results have come back without proper ranges. Only the graphs. Which is irritating. BUT Would you supplement iron with these results? I can't afford to do a full iron panel, and I had assumed this test would
Hidden
in
Thyroid UK
1 year ago
Stinging in outer foot area - Nerve pain
Hi, I have had this pain for all of this year, it starts whenever my foot isn't pressing on the ground, eg when I am relaxing in recliner with feet up or even sitting in a chair, it very rarely eases.I am a diabetic type 2, with year on dropping numbers but still needs improving. I am on full doses of
Hi, I have had this pain for all of this year, it starts whenever my foot isn't pressing on the ground, eg when I am relaxing in recliner with feet up or even sitting in a chair, it very rarely eases.I am a diabetic type 2, with year on dropping numbers but still needs improving. I am on full doses of
greekqueen
in
Pain Concern
1 year ago
Iron results-any advice?
Hi! V grateful for all the wisdom from this forum. Just did a full iron panel on Medichecks as ferritin has been consistently low, and I've been on and off ferrous fumarate for years. GP only tests ferritin; advice on here seemed to be to get the full picture. Results below... Ferritin much better
Hi! V grateful for all the wisdom from this forum. Just did a full iron panel on Medichecks as ferritin has been consistently low, and I've been on and off ferrous fumarate for years. GP only tests ferritin; advice on here seemed to be to get the full picture. Results below... Ferritin much better
Penicookie
in
Thyroid UK
1 year ago
Low MCHC
Hello all. I have a new aspect of my cbc report that has just become Low. It is MCHC. Normal is 31.0 gm/dL to 36.5. I am now 30.7. I would love comments from any others who have had low MCHC. Did you eventually need oxygen. Did they start treatment due to this? How low can it go before you physically
Hello all. I have a new aspect of my cbc report that has just become Low. It is MCHC. Normal is 31.0 gm/dL to 36.5. I am now 30.7. I would love comments from any others who have had low MCHC. Did you eventually need oxygen. Did they start treatment due to this? How low can it go before you physically
davidgrush
in
CLL Support
1 year ago
urine test
I have just had all my blood test results back & all look pretty fine however my urine test is showing low protein. Has anyone else had this & should I be worried ? I have GPA on rutuximab, co Trimoxazole & prednisone. tia
I have just had all my blood test results back & all look pretty fine however my urine test is showing low protein. Has anyone else had this & should I be worried ? I have GPA on rutuximab, co Trimoxazole & prednisone. tia
juli-pa
in
Vasculitis UK
1 year ago
ALC is still going up
Well, today I had another CBC. My ALC continues to go up consistently at each 2 week check and I will be seeing my onco at the beginning of Feb. In addition to the rising alc, test shows a few other little changes that i don't fully understand -- my MCV is now reading high (99.50) and my MCHC is low
Well, today I had another CBC. My ALC continues to go up consistently at each 2 week check and I will be seeing my onco at the beginning of Feb. In addition to the rising alc, test shows a few other little changes that i don't fully understand -- my MCV is now reading high (99.50) and my MCHC is low
Moonmyst
in
CLL Support
1 year ago
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