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Peroxisomal acyl-CoA oxidase deficiency
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Best Medication
Please can anyone tell me what's the best medication for Fibromyalgia? I am on Gabapentin and co-codamol 30/500 x4 times a day but suffer from massive brain fog! I need to wrk as I'm self employed as a nail tech h but it is now affecting my job ! My client thought I had rpilepsy cos I'd fallen asleep
Please can anyone tell me what's the best medication for Fibromyalgia? I am on Gabapentin and co-codamol 30/500 x4 times a day but suffer from massive brain fog! I need to wrk as I'm self employed as a nail tech h but it is now affecting my job ! My client thought I had rpilepsy cos I'd fallen asleep
Lesblackbox
in
My Fibro Community
1 year ago
Tired
Hello, I hope you're all well :) I've been trying to cope with a pain condition for well over 5 years now. Started with rectal and back pain mid month and now it's become a case of just 1 week out of a month (post period) where I don't experience pain and symptoms. I had a laparoscopy in 2021 and
Hello, I hope you're all well :) I've been trying to cope with a pain condition for well over 5 years now. Started with rectal and back pain mid month and now it's become a case of just 1 week out of a month (post period) where I don't experience pain and symptoms. I had a laparoscopy in 2021 and
Jennyjenjen01
in
Endometriosis UK
1 year ago
Could anyone help me with my results please
18/11/22 Serum iron 24 .4 range 5.8-34.5 Transferrin 2.34 range 2-3.6 Unsat binding capacity 59 range 50-90 % transf sat 41% range 16-40% Haemoglobin 138 range 120-160 RBC 4.49 range 4.1-5.1 RDW 12 2% range 11.5-15.7 MCV 93.1 range 80-100 MCH 330 range 30.7 range 27-33 MCHC 30.7 range 320-369
18/11/22 Serum iron 24 .4 range 5.8-34.5 Transferrin 2.34 range 2-3.6 Unsat binding capacity 59 range 50-90 % transf sat 41% range 16-40% Haemoglobin 138 range 120-160 RBC 4.49 range 4.1-5.1 RDW 12 2% range 11.5-15.7 MCV 93.1 range 80-100 MCH 330 range 30.7 range 27-33 MCHC 30.7 range 320-369
Paula1710
in
Pernicious Anaemia Society
1 year ago
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Low B12 and headaches
I suffer with low iron and low b12. I had an iron infusion 10 days ago, prior that I and a persistent headache for a week. I had a b12 injection 2 days after the iron infusion. The headache went 2 days after the b12 jab, but then came back 3 days later with really bad dizziness. I’ve had another b12
I suffer with low iron and low b12. I had an iron infusion 10 days ago, prior that I and a persistent headache for a week. I had a b12 injection 2 days after the iron infusion. The headache went 2 days after the b12 jab, but then came back 3 days later with really bad dizziness. I’ve had another b12
Beee2
in
Pernicious Anaemia Society
1 year ago
how much gentle iron?
what dose should i start on… i have bought iron bisglycinate 20 mg. But have been recommended 320 mcg ferrous sulphate. So very confused at the different levels. How do these figures relate to each other? And do you have to take gentle iron on an empty stomach? The bottle says to take with food. Any
what dose should i start on… i have bought iron bisglycinate 20 mg. But have been recommended 320 mcg ferrous sulphate. So very confused at the different levels. How do these figures relate to each other? And do you have to take gentle iron on an empty stomach? The bottle says to take with food. Any
Jukebox55
in
Restless Legs Syndrome
1 year ago
Contraceptive pill
I’ve recently been prescribed onto this pill to regulate mood swings and periods. Does anyone know if you can take cod liver oil pills and multivitamins along side? Thank!
I’ve recently been prescribed onto this pill to regulate mood swings and periods. Does anyone know if you can take cod liver oil pills and multivitamins along side? Thank!
Liss_rabbit
in
BASHH
1 year ago
PA with iron deficiency
Hi all.I think I told you guys that my Iron is very low. Ferritin is 5, iron saturation is 4 and always low rbc. I finally got set up with an infusion center for iron and start next. I'll do one a week for 10 weeks. I've felt off, breathy and tired for a year or so now. Someday's, i just can't get off
Hi all.I think I told you guys that my Iron is very low. Ferritin is 5, iron saturation is 4 and always low rbc. I finally got set up with an infusion center for iron and start next. I'll do one a week for 10 weeks. I've felt off, breathy and tired for a year or so now. Someday's, i just can't get off
Wowo23
in
Pernicious Anaemia Society
1 year ago
Iron/Ferritin
Dear All,I have now had my latest blood tests back and my ferritin levels, with the help of iron tablets, has risen from 45 to 120. However, unlike others in our group, my RLS are still pretty awful. Do I have to be patient and hope the RLS now improve???? Otherwise it will be pretty depressing. Sue
Dear All,I have now had my latest blood tests back and my ferritin levels, with the help of iron tablets, has risen from 45 to 120. However, unlike others in our group, my RLS are still pretty awful. Do I have to be patient and hope the RLS now improve???? Otherwise it will be pretty depressing. Sue
Simkin
in
Restless Legs Syndrome
1 year ago
Dad not waking up from induced coma after Sudden Cardiac Arrest, What are his chances? Signs of 'waking up'?
My Dad is 54 years old and collapsed at work last Friday 03/03/2023 from Sudden Cardiac Arrest. No symptoms, no chest pains, no warning signs. He is moderately fit, not a heavy drinker but is a heavy smoker and they found a blocked valve that had built up for months allegedly due to the smoking. His
My Dad is 54 years old and collapsed at work last Friday 03/03/2023 from Sudden Cardiac Arrest. No symptoms, no chest pains, no warning signs. He is moderately fit, not a heavy drinker but is a heavy smoker and they found a blocked valve that had built up for months allegedly due to the smoking. His
BimJeam
in
ICUsteps
1 year ago
Dad’s iron studies
Hello all My dad has just collected his latest iron studies prior to call from GP at some point today. Would you mind taking a look and interpreting please. Have tried to use the Polish calculator to work out percentages but there’s an error and I can’t use it. 23/11/22 CRP <4 (0 - 9) Ferritin
Hello all My dad has just collected his latest iron studies prior to call from GP at some point today. Would you mind taking a look and interpreting please. Have tried to use the Polish calculator to work out percentages but there’s an error and I can’t use it. 23/11/22 CRP <4 (0 - 9) Ferritin
musicaljune
in
Thyroid UK
1 year ago
Prophylactics
Hi I have been on Acalabrutinib for two weeks now along with prophylactics, one being Co trimoxazole , which I seemed to react to. I have now been offered Pentamidine, which I have read up on and don’t like the sound of plus it does not sound as if it protects as well. Is anyone else on these drugs
Hi I have been on Acalabrutinib for two weeks now along with prophylactics, one being Co trimoxazole , which I seemed to react to. I have now been offered Pentamidine, which I have read up on and don’t like the sound of plus it does not sound as if it protects as well. Is anyone else on these drugs
Sunshine2422
in
CLL Support
1 year ago
cryoablation
Back again with an old problem. Had my cryoablation 15 months ago and went through the usual recovery with the help of all you nice folks. So I need some more help. The past 3 weeks my flutters have been returning. I've been stressed lately and I'm sure that helped to start them. So I went on Klor-con
Back again with an old problem. Had my cryoablation 15 months ago and went through the usual recovery with the help of all you nice folks. So I need some more help. The past 3 weeks my flutters have been returning. I've been stressed lately and I'm sure that helped to start them. So I went on Klor-con
mlp3434
in
AF Association
1 year ago
Pain relief for R.A - alternatives to what I'm using...
Hi there, I've had R.A since last September. I've been on MTX for the last 5 months and it hasn't worked, so I'm waiting to start on Adalimumab which I'm led to believe can take up to 12 weeks to become effective. So far I've had 3 steroid injections, along a 10 week course of Prednisolone to help
Hi there, I've had R.A since last September. I've been on MTX for the last 5 months and it hasn't worked, so I'm waiting to start on Adalimumab which I'm led to believe can take up to 12 weeks to become effective. So far I've had 3 steroid injections, along a 10 week course of Prednisolone to help
cuppa69
in
NRAS
1 year ago
Why you should NOT supplement high-dose D3
https://youtu.be/GsomcvdT7Po This random video I came across deserves more views. If you're baffled about how to get enough vitamin D when not exposed to regular sunlight, try supplementing raw cold-pressed cod liver oil instead along with vitamin K. https://www.westonaprice.org/health-topics/cod-liver-oil
https://youtu.be/GsomcvdT7Po This random video I came across deserves more views. If you're baffled about how to get enough vitamin D when not exposed to regular sunlight, try supplementing raw cold-pressed cod liver oil instead along with vitamin K. https://www.westonaprice.org/health-topics/cod-liver-oil
rescuema
in
Cure Parkinson's
1 year ago
Letterbox.
I do find this condition puzzling, you think you are getting a handle on it and then it jumps on you from another angle. Most of my difficulties with Osteoradionecrosis were associated with the right hand side of my jaw which I was finally starting to manage to a reasonable level of discomfort (I also
I do find this condition puzzling, you think you are getting a handle on it and then it jumps on you from another angle. Most of my difficulties with Osteoradionecrosis were associated with the right hand side of my jaw which I was finally starting to manage to a reasonable level of discomfort (I also
AncientMariner
in
PMRGCAuk
1 year ago
What pain relief do you use?
Following on from my thread, I just wondered what pain relief you use? Naproxen, paracetamol, Mefenamic acid have done nothing for me. I'm currently on co-codamol 30/500 which is working but is saying my constipation to be worse than it is already. Does anyone use Amitriptyline? Thinking it might help
Following on from my thread, I just wondered what pain relief you use? Naproxen, paracetamol, Mefenamic acid have done nothing for me. I'm currently on co-codamol 30/500 which is working but is saying my constipation to be worse than it is already. Does anyone use Amitriptyline? Thinking it might help
Mindfullness4791
in
Endometriosis UK
1 year ago
how to get IV iron infusion
i have had RLS for 30 years. Been on dopamine for 6 years. Shocked to read about how iron can help. Has anyone been able to get IV iron infusion? Who from? How best to go about it?? thanks!!!
i have had RLS for 30 years. Been on dopamine for 6 years. Shocked to read about how iron can help. Has anyone been able to get IV iron infusion? Who from? How best to go about it?? thanks!!!
Jukebox55
in
Restless Legs Syndrome
2 years ago
IMPORTANT: Nicotinamide riboside (or NAD+ or Tru Niagen) may be involved in neoplastic and metastatic processes
Some of us were taking nicotinamide riboside for RLS. A few days ago a paper was published with data suggesting it could be involved neoplastic and metastatic processes. Hence, please take this in consideration if you were taking nicotinamide riboside. Here is the reference: A bioluminescent-based
Some of us were taking nicotinamide riboside for RLS. A few days ago a paper was published with data suggesting it could be involved neoplastic and metastatic processes. Hence, please take this in consideration if you were taking nicotinamide riboside. Here is the reference: A bioluminescent-based
enjoy2013
in
Restless Legs Syndrome
2 years ago
IFAB testing guidelines per Mayo clinic laboratory website
I found this IFAB test guideline. I found a few things pretty interesting. This particular lab which is the lab that did my IFAB test says that you should be fasting for 8 hours before you take this test and you should not have had any B12 injections within 2 weeks prior to the test. Another interesting
I found this IFAB test guideline. I found a few things pretty interesting. This particular lab which is the lab that did my IFAB test says that you should be fasting for 8 hours before you take this test and you should not have had any B12 injections within 2 weeks prior to the test. Another interesting
EllaNore
in
Pernicious Anaemia Society
2 years ago
pain after surgery
Hi, I have been struggling with a wound on my left foot for over two years, it became very infected last September, and I had to be put on several different antibiotics for a month, they did mri scans testing for osteomylitis, but I was clear of that, also various other scans. They said that if the wound
Hi, I have been struggling with a wound on my left foot for over two years, it became very infected last September, and I had to be put on several different antibiotics for a month, they did mri scans testing for osteomylitis, but I was clear of that, also various other scans. They said that if the wound
salamander160
in
Pain Concern
1 year ago
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