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Experiences with
Peroxisomal acyl-CoA oxidase deficiency
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PIP advice
hello there. I’m looking for some thoughts regarding PIP. I will be 65 in January 24. In 2012 I had my left lung removed as a result of lung cancer. Ergo I now have 50 % less breathing capacity. I was retired early and had my pension was released. At that time I applied for DLA, and received the higher
hello there. I’m looking for some thoughts regarding PIP. I will be 65 in January 24. In 2012 I had my left lung removed as a result of lung cancer. Ergo I now have 50 % less breathing capacity. I was retired early and had my pension was released. At that time I applied for DLA, and received the higher
hbowling
in
NRAS
8 months ago
Haemophilus influenzae
When I get a chest infection it is alway with the HIB bacteria, usually Doxycycline taken for two weeks rids it ,this time two weeks of Doxycycline plus another two weeks of Amoxicillin still hasn't gone had results of sputum test yesterday saying I've still got Hib.My gp has given me another two weeks
When I get a chest infection it is alway with the HIB bacteria, usually Doxycycline taken for two weeks rids it ,this time two weeks of Doxycycline plus another two weeks of Amoxicillin still hasn't gone had results of sputum test yesterday saying I've still got Hib.My gp has given me another two weeks
Alice70
in
Lung Conditions Community Forum
8 months ago
Iron low
Hello, I just got back my blood work test and the iron read a little low, so I was wondering if anyone else here on the panel with pernicious anemia has had low iron. My iron binding is within range. Iron level is in range but iron percent transferring saturation is reading slightly low
Hello, I just got back my blood work test and the iron read a little low, so I was wondering if anyone else here on the panel with pernicious anemia has had low iron. My iron binding is within range. Iron level is in range but iron percent transferring saturation is reading slightly low
25092
in
Pernicious Anaemia Society
1 year ago
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blood test back - any thoughts?
So now I am off all my meds, and started taking 200mg iron a night a month ago, my ferritin level just came back as 80, which I was quite surprised. The last one in 2020 was over 120. Should I double the dose and split it through the day or take 2 tabs before bed? Also my white blood count came back
So now I am off all my meds, and started taking 200mg iron a night a month ago, my ferritin level just came back as 80, which I was quite surprised. The last one in 2020 was over 120. Should I double the dose and split it through the day or take 2 tabs before bed? Also my white blood count came back
Phantom38
in
Restless Legs Syndrome
1 year ago
Symptoms suddenly taking a turn for the worse
Hello everyone. I am new to the forum, and have some questions to ask, but also want to share my RLS story, as well as some things that I have found helpful in living with RLS. I have had RLS for over 40 years. At first it was fairly easily controlled with a good run or long walk, and later with magnesium
Hello everyone. I am new to the forum, and have some questions to ask, but also want to share my RLS story, as well as some things that I have found helpful in living with RLS. I have had RLS for over 40 years. At first it was fairly easily controlled with a good run or long walk, and later with magnesium
restlegs1
in
Restless Legs Syndrome
9 months ago
Iron Deficiency Without Anemia (IDWA)
In my "I'm Alive!" post yesterday I discussed my crashing with effectively no iron in my system with a condition called Iron Deficiency Without Anemia (IDWA). As promised here is a more detail discussion of that condition that anyone with autoimmune PA/AIG should keep their eye on. Knowing that iron
In my "I'm Alive!" post yesterday I discussed my crashing with effectively no iron in my system with a condition called Iron Deficiency Without Anemia (IDWA). As promised here is a more detail discussion of that condition that anyone with autoimmune PA/AIG should keep their eye on. Knowing that iron
Rexz
in
Pernicious Anaemia Society
1 year ago
PAIN RELIEF?
I have been on Co-codamol for the last 12 years for another problem osteoarthritis and think I have got immune to them!!! but I am wondering if If or how do I go about getting ametatriplyne ( sorry 4 my spellings ) I am no Doctor or medically trained as I think that they could be adding to my problem
I have been on Co-codamol for the last 12 years for another problem osteoarthritis and think I have got immune to them!!! but I am wondering if If or how do I go about getting ametatriplyne ( sorry 4 my spellings ) I am no Doctor or medically trained as I think that they could be adding to my problem
bungi1961
in
Bowel Disease Support
8 months ago
Had enough, constant pain
have woken up in such pain today, and been in bed most Of the day. I’ve taken 2 lots of codeine, paracetamol and hot water bottle. I’ve never felt bed bound with this I can usually at least watch tv. I’m on day 4 since having my first Zoladex injection. I’m so fed up of this. Sorry a pointless message
have woken up in such pain today, and been in bed most Of the day. I’ve taken 2 lots of codeine, paracetamol and hot water bottle. I’ve never felt bed bound with this I can usually at least watch tv. I’m on day 4 since having my first Zoladex injection. I’m so fed up of this. Sorry a pointless message
Sunflower738882
in
Endometriosis UK
8 months ago
Recently Diagnosed
I was recently diagnosed with stage 3/ 4 endometriosis after a long drawn out process of back and forth to my GP because I was in constant agonising pain and heavy periods. I have sharp stabbing pain in my lower tummy that flares up at any time throughout my menstrual cycle. My pain is always in my stomach
I was recently diagnosed with stage 3/ 4 endometriosis after a long drawn out process of back and forth to my GP because I was in constant agonising pain and heavy periods. I have sharp stabbing pain in my lower tummy that flares up at any time throughout my menstrual cycle. My pain is always in my stomach
LilacPetals
in
Endometriosis UK
8 months ago
Iron tabs.help
Hi fellow suffererers, I've just been reading the posts re.Iron supplements. I take two Gentle Iron 20mg every other night, I notice that the first ingredient listed on the bottle is a Bulking Agent(Microcrystalline Cellulose),I was wondering if I can purchase a Gentle Iron without any Bulking Agent,
Hi fellow suffererers, I've just been reading the posts re.Iron supplements. I take two Gentle Iron 20mg every other night, I notice that the first ingredient listed on the bottle is a Bulking Agent(Microcrystalline Cellulose),I was wondering if I can purchase a Gentle Iron without any Bulking Agent,
Whymelord
in
Restless Legs Syndrome
1 year ago
Does anyone use ‘Active Iron’ in UK?
I searched for ferrous bisglycinate on Amazon UK which came up with Active Iron 25mg. I’ve now received it and found it contains ferrous sulfate 25mg! Now I don’t know if this is the right product or dose. Can anyone help?
I searched for ferrous bisglycinate on Amazon UK which came up with Active Iron 25mg. I’ve now received it and found it contains ferrous sulfate 25mg! Now I don’t know if this is the right product or dose. Can anyone help?
Dires
in
Restless Legs Syndrome
1 year ago
Iron supplements dosage
Is 20mg of gentle iron each night enough? It worked well the first night. What a wonderful relief it was. The second night it did work within 70 mins but returned within 3 hours.. I wonder why it didn't last as long? Would a slow release be better, like ferrous sulphate 325mg? Or will it need to be
Is 20mg of gentle iron each night enough? It worked well the first night. What a wonderful relief it was. The second night it did work within 70 mins but returned within 3 hours.. I wonder why it didn't last as long? Would a slow release be better, like ferrous sulphate 325mg? Or will it need to be
pennygates
in
Restless Legs Syndrome
1 year ago
Vibrating Sensation
Hi Everyone First time writing, please forgive any mistakes I make I suffer terrible brain fog. This may seem like a weird question but does anyone on here suffer a vibrating sensation throughout their body? The best way I can describe what I have is a vibrating sensation, I have spoken to GP
Hi Everyone First time writing, please forgive any mistakes I make I suffer terrible brain fog. This may seem like a weird question but does anyone on here suffer a vibrating sensation throughout their body? The best way I can describe what I have is a vibrating sensation, I have spoken to GP
AlphaWolf5195
in
Fibromyalgia Action UK
8 months ago
Minoxidil
As most of you can relate to, I have given up so much in my life due to RLS. Every possible RLS trigger is in fact a trigger for me. I have given up HRT, SSRIs, statins, caffeine, alcohol, spicy foods (I used to put fresh jalapeno peppers on EVERYTHING), sugar, all processed foods, most carbs, and the
As most of you can relate to, I have given up so much in my life due to RLS. Every possible RLS trigger is in fact a trigger for me. I have given up HRT, SSRIs, statins, caffeine, alcohol, spicy foods (I used to put fresh jalapeno peppers on EVERYTHING), sugar, all processed foods, most carbs, and the
Birdland
in
Restless Legs Syndrome
1 year ago
RLS returned after taking Duloxetine
Had RLS for many years, associated with Fibromyalgia. Having taken Amitriptylene, Nortriptyline , Pregabalin for my Fibro, my RLS has been under control. Recently started taking Duloxetine to help my Fibro and my RLS has returned with a vengeance. I get very little sleep, as soon as my head hits pillow
Had RLS for many years, associated with Fibromyalgia. Having taken Amitriptylene, Nortriptyline , Pregabalin for my Fibro, my RLS has been under control. Recently started taking Duloxetine to help my Fibro and my RLS has returned with a vengeance. I get very little sleep, as soon as my head hits pillow
Fra3021
in
Restless Legs Syndrome
8 months ago
Any advice for pain for a broken shoulder
I will try not to offend anyone haha. Could anyone give me some advice for my husband? 3 weeks ago he had a nasty fall playing walking football he is 73 years old and very fit. He broke his shoulder, bruised his ribs and his arm turned black and blue. Since then he has been to orthopedics to check
I will try not to offend anyone haha. Could anyone give me some advice for my husband? 3 weeks ago he had a nasty fall playing walking football he is 73 years old and very fit. He broke his shoulder, bruised his ribs and his arm turned black and blue. Since then he has been to orthopedics to check
Imagine1
in
Pain Concern
9 months ago
Rheumy Appointment
Hi I have a rheumy appointment today . I’m really concerned that she will fob me off about my ‘PMR’ . I’ve seen her once before , in June . She confirmed I didn’t have GCA , which I was treated for due to symptoms of GCA . I was in on a high dose of pred - 40mg per day , she tapered me over 8weeks
Hi I have a rheumy appointment today . I’m really concerned that she will fob me off about my ‘PMR’ . I’ve seen her once before , in June . She confirmed I didn’t have GCA , which I was treated for due to symptoms of GCA . I was in on a high dose of pred - 40mg per day , she tapered me over 8weeks
TedTheMaineCoon
in
PMRGCAuk
9 months ago
Ibuprofen
I am having a lot of joint pain just now and been taking cocodamol. 30mg per day. Struggling with walking .I have now also just been double vaccinated so have 2 Sore arms . I don't want to take more co-codamol. Can I risk even one dose of ibuprofen. I do suffer from AF and take Edoxoban , bendohydrofluorine
I am having a lot of joint pain just now and been taking cocodamol. 30mg per day. Struggling with walking .I have now also just been double vaccinated so have 2 Sore arms . I don't want to take more co-codamol. Can I risk even one dose of ibuprofen. I do suffer from AF and take Edoxoban , bendohydrofluorine
Aberd0ur
in
AF Association
9 months ago
Has anyone ever had an Iron infusion?
Having suffered from underactive thyroid for years and taking Levothyroxine with mixed results, I also suffer from low iron and ferritin and Vitamin D. I find it hard to get my levels of iron up despite eating red meat and green veg and supplementing, and wondered if anyone had tried an iron infusion
Having suffered from underactive thyroid for years and taking Levothyroxine with mixed results, I also suffer from low iron and ferritin and Vitamin D. I find it hard to get my levels of iron up despite eating red meat and green veg and supplementing, and wondered if anyone had tried an iron infusion
doingitfordad
in
Thyroid UK
1 year ago
Blood results
Hi, i have now received my blood results and would like some advice please Sue/Jools. Transferrin Saturation 44% Serum Iron 25umol/l (normal 14-29) Serum Transferrin 2.28g/l Serum Ferritin 50 I hopefully have an appointment today
Hi, i have now received my blood results and would like some advice please Sue/Jools. Transferrin Saturation 44% Serum Iron 25umol/l (normal 14-29) Serum Transferrin 2.28g/l Serum Ferritin 50 I hopefully have an appointment today
Dires
in
Restless Legs Syndrome
1 year ago
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