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Hypomyelination and congenital cataract
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Ovarian cancer recurrence
Firstly, hi to anyone who may stumble across my post. Long story short, I was diagnosed with stage 4 ovarian cancer back in 2020. I had an ultra radical debulking surgery in August that year, followed by 6 rounds of carbo/taxol and maintenance via olaparib. I had a CT scan back in August which highlighted
Firstly, hi to anyone who may stumble across my post. Long story short, I was diagnosed with stage 4 ovarian cancer back in 2020. I had an ultra radical debulking surgery in August that year, followed by 6 rounds of carbo/taxol and maintenance via olaparib. I had a CT scan back in August which highlighted
Guitarplayinghobbit
in
My Ovacome
8 months ago
Ibandronic Acid
With aggravated osteoporosis my partner has been offered the choice of monthly doses of Bonviva or a six monthly injection. Which would be most effective to mitigate the osteoporosis while remaining compatible with an AF/pacemaker regime that includes Amias, Sotalol, Furosemide, and Apixaban?.
With aggravated osteoporosis my partner has been offered the choice of monthly doses of Bonviva or a six monthly injection. Which would be most effective to mitigate the osteoporosis while remaining compatible with an AF/pacemaker regime that includes Amias, Sotalol, Furosemide, and Apixaban?.
rathlee
in
AF Association
7 months ago
Private specialist recommendation?
I’m not sure if this is allowed? I’m looking for a private Lupus specialist in the Gloucestershire / Wales area. Is there anyone that can be recommended? Despite positive ANA & ANCA my gp says she won’t refer me because other tests were ok and I saw one a few years ago that diagnosed fibromyalgia. Most
I’m not sure if this is allowed? I’m looking for a private Lupus specialist in the Gloucestershire / Wales area. Is there anyone that can be recommended? Despite positive ANA & ANCA my gp says she won’t refer me because other tests were ok and I saw one a few years ago that diagnosed fibromyalgia. Most
Puckster01
in
LUPUS UK
6 months ago
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11 months Post SCT
I’ve been wanting to update my Stem Cell Transplant journey with good news and today I was going to post that, instead I’ve been told that a lot of my lymph nodes are enlarged again. It’s so disappointing to say the least, not what I was expecting as I feel quite well and most of the GVHD issues have
I’ve been wanting to update my Stem Cell Transplant journey with good news and today I was going to post that, instead I’ve been told that a lot of my lymph nodes are enlarged again. It’s so disappointing to say the least, not what I was expecting as I feel quite well and most of the GVHD issues have
Billarina
in
CLL Support
25 days ago
Taking Biotin prior to full Blood count
Good morning all. Should I stop taking B complex prior to having a Full Blood Count, I have been screened for bowel cancer and am having further tests. I always stop B complex when I have Advanced Thyroid (via medichecks) my recent test shows low ferritin and a higher inflammation I wonder if this
Good morning all. Should I stop taking B complex prior to having a Full Blood Count, I have been screened for bowel cancer and am having further tests. I always stop B complex when I have Advanced Thyroid (via medichecks) my recent test shows low ferritin and a higher inflammation I wonder if this
dipsyqueen
in
Thyroid UK
7 months ago
bum issues
hello, I began bleeding bright red blood from my bum in May so I I went to a walk in service as they checked my bum. They said nothing seems abdominal. Again more blood in June, so I went up A & E the doctor just looked at bum and said to get cream from the pharmacy. Next week again more bleeding.
hello, I began bleeding bright red blood from my bum in May so I I went to a walk in service as they checked my bum. They said nothing seems abdominal. Again more blood in June, so I went up A & E the doctor just looked at bum and said to get cream from the pharmacy. Next week again more bleeding.
Pinkizzy
in
IBS Network
7 months ago
Having panic attacks almost daily
why is this happening ! I’ve had Panic attacks in the past but nothing like this! It’s been a week and I wake up with Hot flashes and Then Boom panic attack! I’ve been to the ER got EKG ECG you name it! Everything BACK NORMAL including my blood work! What’s wrong with me?!?!
why is this happening ! I’ve had Panic attacks in the past but nothing like this! It’s been a week and I wake up with Hot flashes and Then Boom panic attack! I’ve been to the ER got EKG ECG you name it! Everything BACK NORMAL including my blood work! What’s wrong with me?!?!
Mindfulnessxo
in
Anxiety and Depression Support
5 months ago
ovarian fallopian tube mass
any one have ovarian mass cyst that turned out to be endometriosis related and did it go away
any one have ovarian mass cyst that turned out to be endometriosis related and did it go away
Ova104
in
Endometriosis UK
9 months ago
What Treatment - Or No Treatment Advice?
I am interested in what would be advised for a fit and active almost 78-year-old, In NED from stage 4 UTUC upper tract urothelial carcinoma. Initial prognosis 6 - 9 months in April 2017. Now only one kidney (GFR 42) No other co-morbidities. Good BMI. Never smoker or drinker. Not on any medication
I am interested in what would be advised for a fit and active almost 78-year-old, In NED from stage 4 UTUC upper tract urothelial carcinoma. Initial prognosis 6 - 9 months in April 2017. Now only one kidney (GFR 42) No other co-morbidities. Good BMI. Never smoker or drinker. Not on any medication
Nordman
in
Advanced Prostate Cancer
9 months ago
uMRD 6
I have been living for the one year point on V plus O to get the clonal sequence uMRD6 bone marrow test done so I could decide if I wanted to continue with a Venetaclax. Technically, I consider myself partially treated rather than relapsed or refractory, because I only received three of the six cycles
I have been living for the one year point on V plus O to get the clonal sequence uMRD6 bone marrow test done so I could decide if I wanted to continue with a Venetaclax. Technically, I consider myself partially treated rather than relapsed or refractory, because I only received three of the six cycles
skipro
in
CLL Support
5 months ago
4 year old (5 in May) soiling at school
Hi, first time poster. My son started school in September (Reception) and wasn’t potty trained at that point - we had tried numerous time - absolutely not interested. We cracked the potty training in the October half term and he went back to school in pants - there was the occasional wee accident
Hi, first time poster. My son started school in September (Reception) and wasn’t potty trained at that point - we had tried numerous time - absolutely not interested. We cracked the potty training in the October half term and he went back to school in pants - there was the occasional wee accident
Senmumma
in
ERIC
7 months ago
antispasmodic medication for irritable bowel syndrome
Hi, lately I have been going through a very difficult time with my physical problems. I am suffering from irritable bowel syndrome and have frequent severe cramps after eating something disagreeable. The anticholinergic or antispasmodic med Hyoscyamine Sulf 0.125 mg worsens my restless legs big time
Hi, lately I have been going through a very difficult time with my physical problems. I am suffering from irritable bowel syndrome and have frequent severe cramps after eating something disagreeable. The anticholinergic or antispasmodic med Hyoscyamine Sulf 0.125 mg worsens my restless legs big time
halperinchen
in
Restless Legs Syndrome
7 months ago
2nd Opinion Recommendation for North Carolinia/Virginia/DC
Hello, New to the board looking for some advice on Doctors in North Carolina/Virginia/DC area for 2nd opinion. I underwent MRI, and MRI guided Transperineal Biopsy with Inova Schar Cancer Institute in Fairfax VA. MRI on Oct 9 2023 resulted in PI-Rad 5 Score for 1 suspicious lesion, Seminal Vesticles
Hello, New to the board looking for some advice on Doctors in North Carolina/Virginia/DC area for 2nd opinion. I underwent MRI, and MRI guided Transperineal Biopsy with Inova Schar Cancer Institute in Fairfax VA. MRI on Oct 9 2023 resulted in PI-Rad 5 Score for 1 suspicious lesion, Seminal Vesticles
Seminole0412
in
Prostate Cancer Network
9 months ago
SCT journey update No.4
Hi all, just to give you an update on my journey towards my *Allogenic Stem cell Transplant. Last tests @ Addenbrookes yesterday, was a very early start as Lung function testing was @ 8.30am and it’s about 2 hour journey. Wife and I were up about 3-4am ( to be fair, couldn’t sleep anyway ) The drive
Hi all, just to give you an update on my journey towards my *Allogenic Stem cell Transplant. Last tests @ Addenbrookes yesterday, was a very early start as Lung function testing was @ 8.30am and it’s about 2 hour journey. Wife and I were up about 3-4am ( to be fair, couldn’t sleep anyway ) The drive
LFCLove
in
MPN Voice
1 month ago
Cutie Woolly Jumpers
Hello EveryoneJust thought I'd post these lovely lambs in their woolly's . Much needed aren't they as its gone so chilly?. I thought they looked really cute and i hope you do too. Thank you all so much for your kind messages of support for my gallbladder surgery. I've been really touched at them all
Hello EveryoneJust thought I'd post these lovely lambs in their woolly's . Much needed aren't they as its gone so chilly?. I thought they looked really cute and i hope you do too. Thank you all so much for your kind messages of support for my gallbladder surgery. I've been really touched at them all
misty14
in
LUPUS UK
5 months ago
Royal Free visit
Hi all, I just thought I would give a quick update. I attended the Royal Free Hospital last Thursday ,I was seen in the Scleroderma clinic by a member of the team. She asked questions and examined me, she then went and got a senior colleague,(not Prof Denton) unfortunately can’t remember their names
Hi all, I just thought I would give a quick update. I attended the Royal Free Hospital last Thursday ,I was seen in the Scleroderma clinic by a member of the team. She asked questions and examined me, she then went and got a senior colleague,(not Prof Denton) unfortunately can’t remember their names
Buttsy
in
Scleroderma & Raynaud's UK (SRUK)
7 months ago
GERD help
Hi everyone. Apologies if this is not in the right place. I am new here. Been recently diagnosed with GERD. Waiting on tests for Hospital. What symptoms do you guys have with it as I am worrying myself sick
Hi everyone. Apologies if this is not in the right place. I am new here. Been recently diagnosed with GERD. Waiting on tests for Hospital. What symptoms do you guys have with it as I am worrying myself sick
Lozza111
in
Pain Concern
7 months ago
ASXL1 mutation 39% Worried about MF turning into leukemia
Hello Everyone, I have almost taken Rux for more than 7 years. and added interferon during the time. Actually my platelets are already very low now because of prolonged suppression of signaling pathways and the use of interferon. China site only available Rux in the markets. and I also have the ASXL1
Hello Everyone, I have almost taken Rux for more than 7 years. and added interferon during the time. Actually my platelets are already very low now because of prolonged suppression of signaling pathways and the use of interferon. China site only available Rux in the markets. and I also have the ASXL1
merlisa
in
Fight MPN
1 month ago
panic attacks
I have panic attacks every morning. I lie down for hours. It has gotten to be a habit. they say to face the fear but I’m not able to. I feel anxious all day. I have tried many medications but none have helped. Clonazepam helps a little and mirtazapine for sleep
I have panic attacks every morning. I lie down for hours. It has gotten to be a habit. they say to face the fear but I’m not able to. I feel anxious all day. I have tried many medications but none have helped. Clonazepam helps a little and mirtazapine for sleep
TaliaTalia5
in
Anxiety Support
5 months ago
Forstair Next
Hi, I've been on combi forstair Next inhaler and my symptoms has greatly improved! However I have 2 horrible side effects . 1 . Bouts of oral thrush and 2 . What I can only describe as a plug of mucus every morning which leads me to cough and clear my throat, does anybody have any tips? I regularly
Hi, I've been on combi forstair Next inhaler and my symptoms has greatly improved! However I have 2 horrible side effects . 1 . Bouts of oral thrush and 2 . What I can only describe as a plug of mucus every morning which leads me to cough and clear my throat, does anybody have any tips? I regularly
Mini2020
in
Asthma Community Forum
5 months ago
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