ovarian fallopian tube mass

[Ova104]

any one have ovarian mass cyst that turned out to be endometriosis related and did it go away

[BoobleDooble]

Hi, I had a similar situation where doctors kept seeing masses on the Ultrasounds. I had one good radiologist who was an older doctor, very well educated. He was the only one that said, this isn't cancer because x, y, and z. He thought it was something with the fallopian tube, some kind of scarring or something. I held onto that and didn't get surgery. A couple more years passed and that radiologist retired. All the new doctors including second opinion doctors said you need to have surgery so we can see what's going on. My blood levels for ca125 were elevated which can also be a sign of ovarian cancer...........or endometriosis. Up until this time I didn't know I had endometriosis. I finally, scared out of my wits, had surgery. They took out all my lady parts. When I woke up I was totally out of it from many, many hours of anesthesia. But the one part I heard was, "it's not cancer, it's endometriosis." The next day the doctor told me I was covered in endometriosis. She and her co-surgeon cleaned up as much as they could. On the bowels everywhere. For years I worried about it being OC but thankfully (?) it was endometriosis.

[Ova104 in reply to BoobleDooble]

omg did they need to take out your lady parts? I am terrified of consultants I am back end of Feb again for my third ultrasound but consultant said at their hospital this time with a specialist endometriosis, had 2 MRI and one TV ultrasound so far. The consultant now is saying it is a complex cyst but mildly complex while the first one said to remove both ovaries, mass and fallopian tubes.

[BoobleDooble in reply to Ova104]

Well, they could have left my lady parts but they took it upon themselves to remove them. I think there was probably so much endometriosis they thought it was best. I probably had agreed to it up front. I was terrified of everything at the time. I had never been in a hospital and never had surgery aside from dental surgery so I was really frightened out of my wits. You can't see endometriosis on an ultrasound so I'm not really sure what an endometriosis specialist would see. Better might be an expert radiologist who can tell if the "complex cyst" is something dangerous or not. They can tell by the blood flow and other things like that. May I ask how old you are?

Glad to answer any questions and/or be a shoulder.

[Ova104 in reply to BoobleDooble]

I'm 52. Thanks so much for coming back to me. I don't have much faith yet in this profession, all seem a bit weird. The first consultant terrified me saying malignant or benign didn't know remove fallopian tubes and ovaries. He was so vague and didn't even have my old scans when I asked... He was a no no gut vibe.. This one now is just bringing me back end of Feb another scan so don't know but said to prepare in my mind for surgery but then when I asked questions told me not to be going down rabbit holes! I felt like saying what is a rabbit hole to you may not be to me! Felt it was cheeky because I have had 3 different opinions. It was like he was nice at start of consultation and then kind of went jeckly and hyde..

[BoobleDooble in reply to Ova104]

Ugh, that's so frustrating. Before getting a surgery I got a second opinion and I really liked the doctor. She seemed smart and she had a female surgeon partner and the two of them did the surgery. She basically said, she couldn't tell either way if it was "c" or not but the proper next step based on the scan result would be surgery.

The scans probably weren't as clear back then as it was more than 10 years ago.

It sounds like your new consultants are experts so I'd try and stay focused on that.

Good luck and let me know how it goes!