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Hypomyelination and congenital cataract
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Thank you and more questions
First, thank you for those who have commented/offered advice on my prostate cancer treatment questions. Much appreciated as I move forward on this journey. I have recently read about a new tumor focused cancer treatment out of the City of Hope. Experimental, but seems to be able to focus action on
First, thank you for those who have commented/offered advice on my prostate cancer treatment questions. Much appreciated as I move forward on this journey. I have recently read about a new tumor focused cancer treatment out of the City of Hope. Experimental, but seems to be able to focus action on
Scorpio53
in
Prostate Cancer Network
9 months ago
Unlocking the Maze of B Complexes: A Handy List for Safe Dosages and Bioactive Vitamins
It can be quite challenging to find reliable B-complex supplements that are safe in terms of dosage. Additionally, it is advisable to opt for bioactive vitamins for added safety. To help each other out, I have started compiling a list categorized into low, medium, and high dosages of B6 and B9, which
It can be quite challenging to find reliable B-complex supplements that are safe in terms of dosage. Additionally, it is advisable to opt for bioactive vitamins for added safety. To help each other out, I have started compiling a list categorized into low, medium, and high dosages of B6 and B9, which
Esperanto
in
Cure Parkinson's
4 months ago
feeling Weird
lately I’ve been off as most of you may know. I’m on 30mg of fluox and 2mg of Xanax it helps but. It as much as I would like for it too. I get dizzy feel derealization and Dizzy at times. I know it’s all anxiety I’ve been dealing with it for almost 15yrs and I hate it so Much.
Don’t get me wrong [
lately I’ve been off as most of you may know. I’m on 30mg of fluox and 2mg of Xanax it helps but. It as much as I would like for it too. I get dizzy feel derealization and Dizzy at times. I know it’s all anxiety I’ve been dealing with it for almost 15yrs and I hate it so Much.
Don’t get me wrong [
Mindfulnessxo
in
Anxiety and Depression Support
4 months ago
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omeprazole long term
Hello, advice please on long term use of Omeprazole, one 20mgs a day. I've been on Omeprazole for years now as I suffer from GERD. I recently asked my consultant about coming off Omeprazole but he stated as it is such a low dosage, to keep taking. There is so much on the internet about this medication
Hello, advice please on long term use of Omeprazole, one 20mgs a day. I've been on Omeprazole for years now as I suffer from GERD. I recently asked my consultant about coming off Omeprazole but he stated as it is such a low dosage, to keep taking. There is so much on the internet about this medication
Harley1020
in
IBS Network
7 months ago
MRI results
had scan on 6th July. after many phone calls and forever listening to messages and options finally found out that my results had been sent to my GP. As I was ordering my repeats on patient access put a note on the bottom asking someone to tell me the outcome, within an hour had a call to say they had
had scan on 6th July. after many phone calls and forever listening to messages and options finally found out that my results had been sent to my GP. As I was ordering my repeats on patient access put a note on the bottom asking someone to tell me the outcome, within an hour had a call to say they had
oap74
in
British Liver Trust
9 months ago
RNA Test Outperforms the Fecal Immunochemical Test for Detection of Colorectal Cancer
In the United States, colorectal cancer (CRC) is the second most common cause of cancer deaths when numbers for men and women are combined. It's expected to cause about 52,550 deaths during 2023 https://www.cancer.org/cancer/types/colon-rectal-cancer/about/key-statistics.html As CLL patients, we carry
In the United States, colorectal cancer (CRC) is the second most common cause of cancer deaths when numbers for men and women are combined. It's expected to cause about 52,550 deaths during 2023 https://www.cancer.org/cancer/types/colon-rectal-cancer/about/key-statistics.html As CLL patients, we carry
bennevisplace
in
CLL Support
7 months ago
Intravenous Iron, oxidative stress and vitamin E and selenium
I have been reading about the possibility that some people may experience oxidative stress with intravenous iron therapy. I thought this article was interesting as it states that vitamin E and selenium are powerful antioxidants that can somewhat mitigate this problem. I would not suggest synthetic
I have been reading about the possibility that some people may experience oxidative stress with intravenous iron therapy. I thought this article was interesting as it states that vitamin E and selenium are powerful antioxidants that can somewhat mitigate this problem. I would not suggest synthetic
Goldy700
in
Restless Legs Syndrome
5 months ago
Update re: Gallbladder issue.
I am having my gall bladder removed on the 9th any advice or tips on recovery would be very welcome. Backstory is that I have had intermittent issues for several years. Mentioned to my GP (Male) who to be honest did not seem very interested in my symptoms, was given PPI for "indigestion" as blood
I am having my gall bladder removed on the 9th any advice or tips on recovery would be very welcome. Backstory is that I have had intermittent issues for several years. Mentioned to my GP (Male) who to be honest did not seem very interested in my symptoms, was given PPI for "indigestion" as blood
Manderson27
in
British Liver Trust
4 months ago
Serositis and Hypotension anyone?
Diagnosed with Adult Onset Stills Disease aged 17 in 1979 now 61. Stills manifests as RD for me with many overlaps with RA and Lupus. I have other AI conditions such as Lichen Sclerosis and Enthetitus. Amazingly I’ve been mainly medication free since my mid 20s relying on pain relief and limb splints
Diagnosed with Adult Onset Stills Disease aged 17 in 1979 now 61. Stills manifests as RD for me with many overlaps with RA and Lupus. I have other AI conditions such as Lichen Sclerosis and Enthetitus. Amazingly I’ve been mainly medication free since my mid 20s relying on pain relief and limb splints
Stills
in
NRAS
7 months ago
Histamine Intolerance
Hi all. I've been ill for almost 14 years without a diagnosis. I have learned through my own trial and era that I have an intolerance to foods high in histamine and foods containing gluten. My question is can chemical intolerance go hand in hand with histamine intolerance or Mast Cell Disease? I get
Hi all. I've been ill for almost 14 years without a diagnosis. I have learned through my own trial and era that I have an intolerance to foods high in histamine and foods containing gluten. My question is can chemical intolerance go hand in hand with histamine intolerance or Mast Cell Disease? I get
Dixzeland
in
PMRGCAuk
7 months ago
Continue on Eclipse Trial or not?
After my 3rd LU 177I&T injection my PSA had become nondetectable, and the nuclear bone scans could did not shiw any tumors. Originally had three tumors for spine two very small and one medium. They seem to have disappeared. Given the danger of unnecessary toxins from a fourth injection, the question
After my 3rd LU 177I&T injection my PSA had become nondetectable, and the nuclear bone scans could did not shiw any tumors. Originally had three tumors for spine two very small and one medium. They seem to have disappeared. Given the danger of unnecessary toxins from a fourth injection, the question
SViking
in
Advanced Prostate Cancer
9 months ago
Mrs Alison Joy Bennett bungi 61
I have had 2 colonoscopies 6/7 polyps removed in the space of a month in 2021 polyps where pre-cancerous but not cancer thanks the Doctor/consultant diagnosed Diverticular Disease and IBS given a low fodmap diet shoved out the Hospital and more or less get on with it again reallly bad the start of
I have had 2 colonoscopies 6/7 polyps removed in the space of a month in 2021 polyps where pre-cancerous but not cancer thanks the Doctor/consultant diagnosed Diverticular Disease and IBS given a low fodmap diet shoved out the Hospital and more or less get on with it again reallly bad the start of
bungi1961
in
Bowel Disease Support
9 months ago
Return to driving
I was diagnosed in March 2022 with stage four lung cancer with mets. In April 2022 I was told that I can no longer drive due to mets in my brain. I stopped driving in April 2022. Sold my car etc. However I did not notify DVLA. I spoke to my oncologist in April 2023 and she advised that providing I have
I was diagnosed in March 2022 with stage four lung cancer with mets. In April 2022 I was told that I can no longer drive due to mets in my brain. I stopped driving in April 2022. Sold my car etc. However I did not notify DVLA. I spoke to my oncologist in April 2023 and she advised that providing I have
Gymbuddie
in
The Roy Castle Lung Cancer Foundation
9 months ago
post hysterectomy issues?
I’ve just had a total hysterectomy because I had cancer. The surgeons assistant said there was a LOT of endometriosis stuck to everything. They had never diagnosed this (or indeed a second completely different cancerous tumour on my ovary) so now I’m thinking… what about the endometriosis? Is it all
I’ve just had a total hysterectomy because I had cancer. The surgeons assistant said there was a LOT of endometriosis stuck to everything. They had never diagnosed this (or indeed a second completely different cancerous tumour on my ovary) so now I’m thinking… what about the endometriosis? Is it all
Kazzacupcake
in
Endometriosis UK
9 months ago
PSMA Pylarify Test
Finally getting a PSMA Pylarify test after a PSA rise from 0.64 to 0.90 in 11 weeks. Should be interesting. No symptoms from the cancer so far. At the current PSA level it would appear there is an almost 90% chance of locating cancer somewhere. Also of some great interest to the doctor(s) is my status
Finally getting a PSMA Pylarify test after a PSA rise from 0.64 to 0.90 in 11 weeks. Should be interesting. No symptoms from the cancer so far. At the current PSA level it would appear there is an almost 90% chance of locating cancer somewhere. Also of some great interest to the doctor(s) is my status
Cancer2x
in
Advanced Prostate Cancer
9 months ago
Change in low grade diagnosis -to high grade ovarian carcino sarcoma?
Hi everyone, I am hoping for some advice. I am 47 years old and am nearly 4 weeks post cyto-reductive surgery for stage 3C ovarian cancer - biopsy prior to surgery showed it was low grade serous ovarian cancer (lgsoc) and I had been getting my head round that diagnosis. Surgery went well and multidisciplinary
Hi everyone, I am hoping for some advice. I am 47 years old and am nearly 4 weeks post cyto-reductive surgery for stage 3C ovarian cancer - biopsy prior to surgery showed it was low grade serous ovarian cancer (lgsoc) and I had been getting my head round that diagnosis. Surgery went well and multidisciplinary
Happyhome24
in
My Ovacome
8 months ago
Would you believe it?
Sod's Law. Due for colonoscopy this morning, so spent the last 3 days on a white diet, no alcohol, yesterday went through the Moviprep routine to empty bowels, spent all evening on and off toilet, most unpleasant. Got up at 2am this morning for toilet, and guess what, of course, AF suddenly kicked in
Sod's Law. Due for colonoscopy this morning, so spent the last 3 days on a white diet, no alcohol, yesterday went through the Moviprep routine to empty bowels, spent all evening on and off toilet, most unpleasant. Got up at 2am this morning for toilet, and guess what, of course, AF suddenly kicked in
50568789
in
Atrial Fibrillation Support
7 months ago
FLARE at 5.25mg??
Hi all, I have been in Australia for almost a year and have been doing very well lately. I have steadily been reducing SLOWLY. No flares that I can remember for a very very long time. My Mast Cell Activation Syndrome / Histamine Intolerance / Multiple Chemical Sensitivity issues have been my struggle
Hi all, I have been in Australia for almost a year and have been doing very well lately. I have steadily been reducing SLOWLY. No flares that I can remember for a very very long time. My Mast Cell Activation Syndrome / Histamine Intolerance / Multiple Chemical Sensitivity issues have been my struggle
Slosh
in
PMRGCAuk
7 months ago
splashsplash
UK based, CLL for 15 years, Treatments: FC, FCR, Ibrutinib, Venetoclax for 2.5 years, 6 month break now back on Venetoclax
UK based, CLL for 15 years, Treatments: FC, FCR, Ibrutinib, Venetoclax for 2.5 years, 6 month break now back on Venetoclax
splashsplash
in
CLL Support
4 months ago
Warm sensation in anus
After some bowel movements I'll feel a warm sensation afterwards in the anus. No diarrhea, no straining, no hemorrhoids, no bleeding. Just a warmth in the anus and feels like it isn't relaxing perhaps Anyone else have this? What causes it?
After some bowel movements I'll feel a warm sensation afterwards in the anus. No diarrhea, no straining, no hemorrhoids, no bleeding. Just a warmth in the anus and feels like it isn't relaxing perhaps Anyone else have this? What causes it?
Catsandsunsets
in
IBS Network
7 months ago
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