Search
Search
About
Log in
Join
Experiences with
Hypomyelination and congenital cataract
Posts
Communities
38,147 public posts
Filter results
Metastasized to Bones
I have been seeing post saying poeple being diagnosed with metastasized PC. I was diagnosed with PC metastasized to my bones, after being under urologist care for 18 months I am wondering if poeple who get initially diagnosed with metastasized PC, whether it is because they were not under medical care
I have been seeing post saying poeple being diagnosed with metastasized PC. I was diagnosed with PC metastasized to my bones, after being under urologist care for 18 months I am wondering if poeple who get initially diagnosed with metastasized PC, whether it is because they were not under medical care
hopefull99
in
Advanced Prostate Cancer
9 months ago
Prostate cancer in liver
Have recently had a PSMA scan. This did show some hot spots for sure. But also, three smaller spots on my liver that did not give off PSMA. Did a liver Biopsy. which is rather painful I might add. Will meet with my 0ncologist on Monday to look at options. Any suggestion for the three rather small spots
Have recently had a PSMA scan. This did show some hot spots for sure. But also, three smaller spots on my liver that did not give off PSMA. Did a liver Biopsy. which is rather painful I might add. Will meet with my 0ncologist on Monday to look at options. Any suggestion for the three rather small spots
Parscore
in
Advanced Prostate Cancer
9 months ago
Thank you all
I wanted to get on here and thank everyone for there input on my questions about PIQRAY. After all my do diligence on PIQRAY my oncologist threw me a curve ball and decided to go with Verzenio faslodex and xgeva. Because i had higher % of Ers1 mutations then Pik3ca mutations. So this past thursday i
I wanted to get on here and thank everyone for there input on my questions about PIQRAY. After all my do diligence on PIQRAY my oncologist threw me a curve ball and decided to go with Verzenio faslodex and xgeva. Because i had higher % of Ers1 mutations then Pik3ca mutations. So this past thursday i
Justme153
in
SHARE Metastatic Breast Cancer
9 months ago
Want to take advantage of all our features? Just log in!
Log in
or
Join
Nausea & Buprenorphine
I am waiting for my doctor to advise on an alternative anti nausea drug and to get him to prescribe sublingual Zofran. I have completed, without any success, the prescription the GP gave me for 5 days of Zofran and I am currently really struggling with the nausea 24 hours a day (milder during day though
I am waiting for my doctor to advise on an alternative anti nausea drug and to get him to prescribe sublingual Zofran. I have completed, without any success, the prescription the GP gave me for 5 days of Zofran and I am currently really struggling with the nausea 24 hours a day (milder during day though
davchar23
in
Restless Legs Syndrome
4 months ago
Colonoscopy next week
Hello everyone, I am 40 years of age, living in Scotland, on waiting list for Hysterectomy (88 weeks so far) I have suspected endometriosis - symptoms of pain and heavy bleeding from womb. In past 6 months, have also been having issues with my bowel - extreme pain with toileting and anything vaguely
Hello everyone, I am 40 years of age, living in Scotland, on waiting list for Hysterectomy (88 weeks so far) I have suspected endometriosis - symptoms of pain and heavy bleeding from womb. In past 6 months, have also been having issues with my bowel - extreme pain with toileting and anything vaguely
Kittie5117
in
Endometriosis UK
6 months ago
Let’s Talk Intrusive Thoughts
Happy Thursday everyone! Has anyone else been diagnosed with having obsessive/intrusive thoughts? I am working with my therapist on this, but it is so hard to hear that this is what’s going on. I know we’ll work on regaining control of my thoughts, but I feel like I have no control right now and I feel
Happy Thursday everyone! Has anyone else been diagnosed with having obsessive/intrusive thoughts? I am working with my therapist on this, but it is so hard to hear that this is what’s going on. I know we’ll work on regaining control of my thoughts, but I feel like I have no control right now and I feel
Itmewithanxiety
in
Anxiety and Depression Support
4 months ago
Blood in Stool
I have found some blood in stool. I had a postive Qfit Test but just postive at 14. My GP said he was not overly concerned. I have an external hemorrid. I was referred and saw a Gastronelogist today he did a rectal exam and said there was not concerning. I did tell him that I was concerned of
I have found some blood in stool. I had a postive Qfit Test but just postive at 14. My GP said he was not overly concerned. I have an external hemorrid. I was referred and saw a Gastronelogist today he did a rectal exam and said there was not concerning. I did tell him that I was concerned of
Shanlissanna
in
Colon Cancer Connected
9 months ago
persistent oral thrush
I've been on an increased dose of prednisolone since August last year. I've started reducing since January (tried before with a flare-up). I also use a steroid inhaler for asthma (and rinse afterwards). I have frequent problems with oral thrush. Unfortunately the stuff that seemed to work best - the
I've been on an increased dose of prednisolone since August last year. I've started reducing since January (tried before with a flare-up). I also use a steroid inhaler for asthma (and rinse afterwards). I have frequent problems with oral thrush. Unfortunately the stuff that seemed to work best - the
oldtimer2
in
NRAS
4 months ago
Feeling very not like myself, feeling like I can't control my thoughts during panic attacks. I want to go back to normal, what should I do?
I (20F) have always had anxiety, it is primarily situational and has never lasted more than a day, it was way worse when I was a kid but I've learned how to deal with it and control it more as an adult. fast-forward to now I've moved to college and have been doing pretty well so far (school and being
I (20F) have always had anxiety, it is primarily situational and has never lasted more than a day, it was way worse when I was a kid but I've learned how to deal with it and control it more as an adult. fast-forward to now I've moved to college and have been doing pretty well so far (school and being
Hidden
in
Anxiety and Depression Support
4 months ago
Taking hours to fall asleep
Gabapentin has controlled my RLS for last year or so. I only take 600 mg at bedtime for last 3/4 months now. I have recently started having difficulty falling asleep (no RLS, just wide awake for 3/4 hours). I thought about asking for a sleep aid from GP but didn't want to take anything that would aggrevate
Gabapentin has controlled my RLS for last year or so. I only take 600 mg at bedtime for last 3/4 months now. I have recently started having difficulty falling asleep (no RLS, just wide awake for 3/4 hours). I thought about asking for a sleep aid from GP but didn't want to take anything that would aggrevate
Opie__
in
Restless Legs Syndrome
6 months ago
Xeloda
This may be long! Moms journey with mbc started in 2020 . At the time lung Mets . She started ibrance and femara which worked great untill it didn’t this summer 2023. The cancer had spread to bones and 2 small liver and lesion and tiny brain lesion . Which was been taken care of with radiation and
This may be long! Moms journey with mbc started in 2020 . At the time lung Mets . She started ibrance and femara which worked great untill it didn’t this summer 2023. The cancer had spread to bones and 2 small liver and lesion and tiny brain lesion . Which was been taken care of with radiation and
Flower1513
in
SHARE Metastatic Breast Cancer
9 months ago
Provenge Underway
Morning folks, Well I completed my first cycle of Provenge yesterday and all seems well so far. I also met with MO to review recent genetic testing results and have confirmed a mutation BRiP1 which is associated with autosomal dominant hereditary ovarian cancer, autosomal recessive Fanconia anemia,
Morning folks, Well I completed my first cycle of Provenge yesterday and all seems well so far. I also met with MO to review recent genetic testing results and have confirmed a mutation BRiP1 which is associated with autosomal dominant hereditary ovarian cancer, autosomal recessive Fanconia anemia,
Pmann
in
Advanced Prostate Cancer
9 months ago
So down today 🥺 Why does everything take so long and nothing helps
I'm in my late 40s and have a provisional diagnosis of Adenomyosis I don't think I've ever felt so low, as today. I'm waiting for urgent mri scan results, that I had 5 weeks ago. I am in crippling pain. My bowels are all over the place and everyday I have rectal bleeding. I can't tolerate stronger pain
I'm in my late 40s and have a provisional diagnosis of Adenomyosis I don't think I've ever felt so low, as today. I'm waiting for urgent mri scan results, that I had 5 weeks ago. I am in crippling pain. My bowels are all over the place and everyday I have rectal bleeding. I can't tolerate stronger pain
Mindfullness4791
in
Endometriosis UK
7 months ago
STAGE 1C1 Grade 2
Hello all Hope everyone is doing ok. I am new here. I found out end of August that I had a 17cm cyst on my left ovary. The MRI did not determine if the cyst was malignant or benign. My gynae-oncologist arranged for emergency surgery on the 6th September but during surgery it burst. I had my left
Hello all Hope everyone is doing ok. I am new here. I found out end of August that I had a 17cm cyst on my left ovary. The MRI did not determine if the cyst was malignant or benign. My gynae-oncologist arranged for emergency surgery on the 6th September but during surgery it burst. I had my left
Kscott10
in
My Ovacome
9 months ago
IBS Diarrhoea
Hi Just wondered if other people have experienced the same as me, I have had diarrhoea for over 5 weeks now and gone through 5 boxes of Imodium and severe stomach pain with several trips to the hospital in the last month. I have not been able to work in the last month and have no idea what to eat
Hi Just wondered if other people have experienced the same as me, I have had diarrhoea for over 5 weeks now and gone through 5 boxes of Imodium and severe stomach pain with several trips to the hospital in the last month. I have not been able to work in the last month and have no idea what to eat
Buddybella
in
IBS Network
7 months ago
chronic rectal bleeding, colonoscopy normal
I have been dealing with chronic rectal bleeding for at least 8 months, if not more. Been blown off by doctors. My family doctor finally sent me to a general surgeon who ordered a colonoscopy. Was instantly not a fan of him. My consultation was literally a minute long. He was very arrogant, and didn’
I have been dealing with chronic rectal bleeding for at least 8 months, if not more. Been blown off by doctors. My family doctor finally sent me to a general surgeon who ordered a colonoscopy. Was instantly not a fan of him. My consultation was literally a minute long. He was very arrogant, and didn’
Bulldogmomma73
in
Colon Cancer Connected
7 months ago
Lupus diagnosis yesterday
Hello everyone, been a tricky few months. You all know what it's like.just wanted to update and i feel a bit overwhelmed. In 2020 was diagnosed with UCTD. Positive ANA. Take hydroxychloquine. Last year ENT diagnosed sjogrens, it was an urgent 2 week referral as my throat had been sore for months
Hello everyone, been a tricky few months. You all know what it's like.just wanted to update and i feel a bit overwhelmed. In 2020 was diagnosed with UCTD. Positive ANA. Take hydroxychloquine. Last year ENT diagnosed sjogrens, it was an urgent 2 week referral as my throat had been sore for months
BonnyB
in
LUPUS UK
6 months ago
ADAA Blog: Tackling Shy Bladder Syndrome: Understanding and Managing Paruresis
Does the thought of using a public restroom fill you with dread? Shy bladder syndrome, or paruresis, is more than a minor inconvenience; it represents a significant performance anxiety disorder affecting countless individuals. An estimated two to seven percent of the population may navigate this challenge
Does the thought of using a public restroom fill you with dread? Shy bladder syndrome, or paruresis, is more than a minor inconvenience; it represents a significant performance anxiety disorder affecting countless individuals. An estimated two to seven percent of the population may navigate this challenge
ADAATeamRachel
Partner
in
Anxiety and Depression Support
4 months ago
STAGE 1C1 Grade 2
Hello all Hope everyone is doing ok. I am new here. I found out end of August that I had a 17cm cyst on my left ovary. The MRI did not determine if the cyst was malignant or benign. My gynae-oncologist arranged for emergency surgery on the 6th September but during surgery it burst. I had my left
Hello all Hope everyone is doing ok. I am new here. I found out end of August that I had a 17cm cyst on my left ovary. The MRI did not determine if the cyst was malignant or benign. My gynae-oncologist arranged for emergency surgery on the 6th September but during surgery it burst. I had my left
Kscott10
in
SHARE Ovarian Cancer Support
9 months ago
Buprenorphine
Good Morning, I wondered if anyone could help with the following. I have had a call from my GP asking me to go in to see him about a couple of Liver Blood Tests I have had recently which show elevated SERUM GAMMA GT and ALT/SGPT serum levels. I want to be prepared in case he says that the Buprenorphine
Good Morning, I wondered if anyone could help with the following. I have had a call from my GP asking me to go in to see him about a couple of Liver Blood Tests I have had recently which show elevated SERUM GAMMA GT and ALT/SGPT serum levels. I want to be prepared in case he says that the Buprenorphine
Ced60
in
Restless Legs Syndrome
4 months ago
1
...
89
90
91
...
100
Next page
50
60
70
80
90
100
Filter results
Clear filters
Posted in
All communities
Advanced Prostate Cancer
3339 results
My Ovacome
2918 results
Thyroid UK
2813 results
View top 10 communities
Sort by
Most Relevant
Newest