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Hypomyelination and congenital cataract
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I have my colonoscopy this Thursday
hi all I have been request by my gp to go for a colonoscopy after my fit test came back with a score of 129… at the time I didn’t really ask what the score meant because my mind was racing after being told that individual stool sample was positive. My symptoms started at the start of January, going
hi all I have been request by my gp to go for a colonoscopy after my fit test came back with a score of 129… at the time I didn’t really ask what the score meant because my mind was racing after being told that individual stool sample was positive. My symptoms started at the start of January, going
Villaboy76
in
Colon Cancer Connected
2 months ago
Sigmoidoscopy
Hi Had a sigmoidoscopy on Saturday, which I had under sedation, I found it a bit uncomfortable. Diverticulosis found, which I already knew about from a colonoscopy a few years ago. Biopsies taken. Yesterday bowel felt fine, however today I am in quite a bit of lower bowel pain. Just wondering why I
Hi Had a sigmoidoscopy on Saturday, which I had under sedation, I found it a bit uncomfortable. Diverticulosis found, which I already knew about from a colonoscopy a few years ago. Biopsies taken. Yesterday bowel felt fine, however today I am in quite a bit of lower bowel pain. Just wondering why I
heartmatters1
in
IBS Network
2 months ago
Diet?
I now realise that many if not all, who have hypothyroidism, also have gut problems. When I first started trying to inform myself about all this, I got into a stalemate regarding diet - I’d always loved broccoli, cabbage, swede mash, kimchi etc, not to excess but whenever I felt like having them. But
I now realise that many if not all, who have hypothyroidism, also have gut problems. When I first started trying to inform myself about all this, I got into a stalemate regarding diet - I’d always loved broccoli, cabbage, swede mash, kimchi etc, not to excess but whenever I felt like having them. But
Calceolaria
in
Thyroid UK
2 months ago
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Vitamin D level of 174 😱
Am I overdoing it with my vitamin D spray!!? 😬😬
Am I overdoing it with my vitamin D spray!!? 😬😬
ThyroidObsessed
in
Thyroid UK
2 months ago
When to test?
Good morning.....I have PA diagnosed in 2016. My younger daughter has Sapho Syndrome (autoimmune) and has also suffered Endometriosis (?autoimmune) for nearly 30 years....She is about to have an endoscopy, also several bi opsies. I keep feeling that a lot of her symptoms could be PA...I have eventually
Good morning.....I have PA diagnosed in 2016. My younger daughter has Sapho Syndrome (autoimmune) and has also suffered Endometriosis (?autoimmune) for nearly 30 years....She is about to have an endoscopy, also several bi opsies. I keep feeling that a lot of her symptoms could be PA...I have eventually
edeuweed
in
Pernicious Anaemia Society
2 months ago
Newly Diagnosed Panicking
Ive just had a pelvic ultrasound and was told I have 6 ovarian cysts on the left. Is that a lot? Consultant said ovaries are stuck together and looks like endo. Had Ca125 elevated at 53. Having had thyroid cancer at 26 im worried about ovarian cancer now. Waiting on MRI and gynae referrals. I've had
Ive just had a pelvic ultrasound and was told I have 6 ovarian cysts on the left. Is that a lot? Consultant said ovaries are stuck together and looks like endo. Had Ca125 elevated at 53. Having had thyroid cancer at 26 im worried about ovarian cancer now. Waiting on MRI and gynae referrals. I've had
DarkStar85
in
Endometriosis UK
6 months ago
My Pet Scan Results. Where does this put me? TIA
IMPRESSION: There has been some interval treatment response. There still remain multiple osseous metastatic lesions, however, the remaining are decreased in activity and some have resolved. There is also been treatment response in active retroperitoneal/retrocrural lymph nodes. Only a single upper abdominal
IMPRESSION: There has been some interval treatment response. There still remain multiple osseous metastatic lesions, however, the remaining are decreased in activity and some have resolved. There is also been treatment response in active retroperitoneal/retrocrural lymph nodes. Only a single upper abdominal
Blueribbon63
in
Advanced Prostate Cancer
6 months ago
Ovarian cancer recurrence
Firstly, hi to anyone who may stumble across my post. Long story short, I was diagnosed with stage 4 ovarian cancer back in 2020. I had an ultra radical debulking surgery in August that year, followed by 6 rounds of carbo/taxol and maintenance via olaparib. I had a CT scan back in August which highlighted
Firstly, hi to anyone who may stumble across my post. Long story short, I was diagnosed with stage 4 ovarian cancer back in 2020. I had an ultra radical debulking surgery in August that year, followed by 6 rounds of carbo/taxol and maintenance via olaparib. I had a CT scan back in August which highlighted
Guitarplayinghobbit
in
My Ovacome
5 months ago
Betaine Hydrochloride and ACV-low stomach acid
Hi there, I have a hiatus hernia, jus a small one by all accounts. Recently I have been having tests for thyroid problems due to finding a Nodulars on my thyroid with 1 dominate one 2.6cm. Also all vits and iron in bloods extremely low. Anyway in the past 2 weeks my GERD has been so so bad, its
Hi there, I have a hiatus hernia, jus a small one by all accounts. Recently I have been having tests for thyroid problems due to finding a Nodulars on my thyroid with 1 dominate one 2.6cm. Also all vits and iron in bloods extremely low. Anyway in the past 2 weeks my GERD has been so so bad, its
madeline05
in
Thyroid UK
2 months ago
ADT for almost 2 years
Hi everyone, It is the first time I post in this network and I still feel a bit strange and with my heart beating stronger ... sorry for this! Well, I have gone through surgery, radiotherapy, ADT, since my diagnosis in February 2018. It will be 2 years in February next since I started ADT and PSA has
Hi everyone, It is the first time I post in this network and I still feel a bit strange and with my heart beating stronger ... sorry for this! Well, I have gone through surgery, radiotherapy, ADT, since my diagnosis in February 2018. It will be 2 years in February next since I started ADT and PSA has
Paulo1968
in
Advanced Prostate Cancer
6 months ago
B12 deficiency
Hi has anyone been diagnosed with a B12 deficiency and did it affect your Hugh's syndrome Thanks
Hi has anyone been diagnosed with a B12 deficiency and did it affect your Hugh's syndrome Thanks
Calver10
in
Hughes Syndrome APS Forum
2 months ago
1st Recurrence
Hi, we received the results of my mums recent scan last week and it showed that she has lesions on both of her lungs and her liver. They are numerous and all around 1cm in size. It was a shock although not unexpected as her CA125 had been rising over the last 6 months. She is due to start the same
Hi, we received the results of my mums recent scan last week and it showed that she has lesions on both of her lungs and her liver. They are numerous and all around 1cm in size. It was a shock although not unexpected as her CA125 had been rising over the last 6 months. She is due to start the same
Pitchperfec
in
My Ovacome
6 months ago
Timings of NDT and iron supplements
Hi all, I'm struggling to maintain ferritin levels whilst also trying to adhere to the timings of iron supplements around my NDT and other vitamins. My ferritin is rarely higher than 20s (in the last ten years the highest it has been was 52 just once). I've been on NDT for a year and am gradually
Hi all, I'm struggling to maintain ferritin levels whilst also trying to adhere to the timings of iron supplements around my NDT and other vitamins. My ferritin is rarely higher than 20s (in the last ten years the highest it has been was 52 just once). I've been on NDT for a year and am gradually
Maldeerum
in
Thyroid UK
2 months ago
natural modified fet
hi can anyone explain whats involved with a natural modified fet pls? Dr has suggested to me this as i suffered an allergic reaction to progynova and to my surprise I can’t believe there aint alternative for someone who would have an allergic reaction to progynova😫 The thought of a natural modified
hi can anyone explain whats involved with a natural modified fet pls? Dr has suggested to me this as i suffered an allergic reaction to progynova and to my surprise I can’t believe there aint alternative for someone who would have an allergic reaction to progynova😫 The thought of a natural modified
keepfaith1982
in
Fertility Network UK
2 months ago
Things I Like About ADT
I know that no one, like NO ONE, actually wants to be on ADT. There are a lot of downsides to it, and complaints about the fatigue, lack of sex drive, etc. are a common theme on this forum. I'm about a year out now from starting on Zoladex shots (a drug that works in the same way as Lupron), and I
I know that no one, like NO ONE, actually wants to be on ADT. There are a lot of downsides to it, and complaints about the fatigue, lack of sex drive, etc. are a common theme on this forum. I'm about a year out now from starting on Zoladex shots (a drug that works in the same way as Lupron), and I
32Percenter
in
Advanced Prostate Cancer
6 months ago
Last vitamin results
last ferritin was 65 ug/L vitamin D 104 nmol/L Both done in December
last ferritin was 65 ug/L vitamin D 104 nmol/L Both done in December
Thywotsit
in
Thyroid UK
2 months ago
FYI: from the VA research information on Veterans
➤ Prostate cancer Prostate cancer is the most common malignancy affecting men in the United States. It is also the most commonly diagnosed solid tumor in VA. In 2016, VA and the Prostate Cancer Foundation established a partnership to promote prevention, screening, and research to find new treatments
➤ Prostate cancer Prostate cancer is the most common malignancy affecting men in the United States. It is also the most commonly diagnosed solid tumor in VA. In 2016, VA and the Prostate Cancer Foundation established a partnership to promote prevention, screening, and research to find new treatments
MouseAddams
in
Advanced Prostate Cancer
6 months ago
Gastric endo - help!
I haven’t posted in the longest time but really need some help. I have extensive disease requiring surgery, thought to be bowel involvement. MRI due in the next week. I’ve been having dreadful constipation the last few weeks requiring manual evacuation (sorry TMI but it has been awful). Then two days
I haven’t posted in the longest time but really need some help. I have extensive disease requiring surgery, thought to be bowel involvement. MRI due in the next week. I’ve been having dreadful constipation the last few weeks requiring manual evacuation (sorry TMI but it has been awful). Then two days
applebird
in
Endometriosis UK
2 months ago
looking for positive stories….
Hi, following on from my last post I wondered if anyones prognosis has been wrong? I am not sure our moderators will allow my post but I am in a sad hole.. My chemo ( 3rd line carbo then cisplatin and Gemcitabine) has been stopped after 3 treatments due to toxicity. I was really unwell on it . Ct shows
Hi, following on from my last post I wondered if anyones prognosis has been wrong? I am not sure our moderators will allow my post but I am in a sad hole.. My chemo ( 3rd line carbo then cisplatin and Gemcitabine) has been stopped after 3 treatments due to toxicity. I was really unwell on it . Ct shows
Laz66
in
My Ovacome
6 months ago
High Folate with PA terrible GP
Hello everyone, Im afraid this might be a little long, but i hope someone can help me. It has been a long and upsetting morning. It started with a 630am ER visit for excruciating groin/hip pain for past 6 days and very hard to walk. Anyway, I'm confused. Some of my tests came back surprising. I
Hello everyone, Im afraid this might be a little long, but i hope someone can help me. It has been a long and upsetting morning. It started with a 630am ER visit for excruciating groin/hip pain for past 6 days and very hard to walk. Anyway, I'm confused. Some of my tests came back surprising. I
EllaNore
in
Pernicious Anaemia Society
2 months ago
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