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Hypomyelination and congenital cataract
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still confused about my iron results
I’ve now redone my iron panel with medichecks and have similar results to last time. I can’t work out why my ferritin continues to drop. And what I can do about it as I know I need higher ferritin levels for optimum thyroid hormone function. …………………………… Ferritin……….Iron……….. Trans. Sat………..TIBC……….
I’ve now redone my iron panel with medichecks and have similar results to last time. I can’t work out why my ferritin continues to drop. And what I can do about it as I know I need higher ferritin levels for optimum thyroid hormone function. …………………………… Ferritin……….Iron……….. Trans. Sat………..TIBC……….
Mazes
in
Thyroid UK
4 months ago
A plea from your brother
Click here to securely donate in any currency: https://malecare.org/donate Click here to securely donate in any currency:A Plea from Your Brother My prostate cancer diagnosis introduced me to Malecare - with the commanding encouragement of my urologist. My experiences validated the organization's remarkable
Click here to securely donate in any currency: https://malecare.org/donate Click here to securely donate in any currency:A Plea from Your Brother My prostate cancer diagnosis introduced me to Malecare - with the commanding encouragement of my urologist. My experiences validated the organization's remarkable
Darryl
Partner
in
Prostate Cancer Network
7 months ago
A plea from your brother
Click here to securely donate in any currency: https://malecare.org/donate A Plea from Your Brother My prostate cancer diagnosis introduced me to Malecare - with the commanding encouragement of my urologist. My experiences validated the organization's remarkable efforts in supporting men like me. I'm
Click here to securely donate in any currency: https://malecare.org/donate A Plea from Your Brother My prostate cancer diagnosis introduced me to Malecare - with the commanding encouragement of my urologist. My experiences validated the organization's remarkable efforts in supporting men like me. I'm
Darryl
Partner
in
Advanced Prostate Cancer
7 months ago
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Blood in Urine
Hi fellow fighters Had blood in my urine the last 10 days. Hoped it was a UTI but a course of antibiotics has failed. I had a bladder neck incision last June to help urinary flow. The urologist saw a suspicious patch and a biopsy confirmed it my prostate cancer has spread to my bladder. I’m hoping
Hi fellow fighters Had blood in my urine the last 10 days. Hoped it was a UTI but a course of antibiotics has failed. I had a bladder neck incision last June to help urinary flow. The urologist saw a suspicious patch and a biopsy confirmed it my prostate cancer has spread to my bladder. I’m hoping
Tonyliv
in
Advanced Prostate Cancer
7 months ago
New Challenge!
Hi, I haven’t been on here for a while as was diagnosed with stage 2 breast cancer following a mammogram in late September. I underwent surgery for a mastectomy with a reconstruction on 15 th December and now starting my recovery! So going to be tricky managing my PMR symptoms as well as deal with this
Hi, I haven’t been on here for a while as was diagnosed with stage 2 breast cancer following a mammogram in late September. I underwent surgery for a mastectomy with a reconstruction on 15 th December and now starting my recovery! So going to be tricky managing my PMR symptoms as well as deal with this
GwenTheHen16
in
PMRGCAuk
7 months ago
Scared and Frustrated
The beginning of February i thought i had the beginnings of maybe a stomach bug. Bloating, gas, sudden urge and need to use the bathroom.... only nothing would come, just mucus and very very small amounts if unformed fluff. This continued till I noticed i hadn't had a real movement for nearly two weeks
The beginning of February i thought i had the beginnings of maybe a stomach bug. Bloating, gas, sudden urge and need to use the bathroom.... only nothing would come, just mucus and very very small amounts if unformed fluff. This continued till I noticed i hadn't had a real movement for nearly two weeks
Tummytroubles1
in
Colon Cancer Connected
4 months ago
Maybe an alternative to Nattokinase et al, though not yet
Free link to WSJ article https://www.wsj.com/health/pharma/blood-thinners-prevent-clots-bleeding-abd9fdae?st=ofx7h2a2im27x9c&reflink=desktopwebshare_permalink I will study later, but the chemistry is probably beyond me and, anyway, it is not yet available. Factor XI, it turns out, is crucial for
Free link to WSJ article https://www.wsj.com/health/pharma/blood-thinners-prevent-clots-bleeding-abd9fdae?st=ofx7h2a2im27x9c&reflink=desktopwebshare_permalink I will study later, but the chemistry is probably beyond me and, anyway, it is not yet available. Factor XI, it turns out, is crucial for
cigafred
in
Fight Prostate Cancer
4 months ago
Anal fissure
Hi,just wondering if anyone had to take time off work due to pain from anal fissure?I've had incredible pain and was prescribed rectogesic for the next 6weeks...I'm wondering how I can manage work as the pain has been unbearable..thanks
Hi,just wondering if anyone had to take time off work due to pain from anal fissure?I've had incredible pain and was prescribed rectogesic for the next 6weeks...I'm wondering how I can manage work as the pain has been unbearable..thanks
Dubher
in
IBS Network
4 months ago
My Stuffy Head
Current Trial; Inject 1.5mg hydroxocobalamin, 1mg adenosylcobalamin, 1.5mg methylcobalamin 5 times a day including setting an alarm to inject at night to prevent my body from a period of time without enough B12 available for healing. 50 mg of B6 in the form of P-5-P twice a day to prevent B6 deficiency
Current Trial; Inject 1.5mg hydroxocobalamin, 1mg adenosylcobalamin, 1.5mg methylcobalamin 5 times a day including setting an alarm to inject at night to prevent my body from a period of time without enough B12 available for healing. 50 mg of B6 in the form of P-5-P twice a day to prevent B6 deficiency
WIZARD6787
in
Pernicious Anaemia Society
4 months ago
Suppression of TSH but low T4/T3 levels whilst taking Levo/Lio Combo
A few years ago, my thyroid results were looking a lot better but NHS GP over the last 2 years has told me to reduce my dosage twice (because of the 'risks' of overtreatment). I'm now on 100mcg levothyroxine (75mcg supplied by GP and topped up by myself) and 25mcg liothyronine (self-sourced). I now don't
A few years ago, my thyroid results were looking a lot better but NHS GP over the last 2 years has told me to reduce my dosage twice (because of the 'risks' of overtreatment). I'm now on 100mcg levothyroxine (75mcg supplied by GP and topped up by myself) and 25mcg liothyronine (self-sourced). I now don't
Louise1610
in
Thyroid UK
4 months ago
Scans
Had my first Cat and bone scan since starting Enhertu.All was good.Blood work greatly improved.Tumor markers better Stable with slight improvement overall in bones and liver.Very pleased with Enhertu as I am having no side effects whatsoever 👍
Had my first Cat and bone scan since starting Enhertu.All was good.Blood work greatly improved.Tumor markers better Stable with slight improvement overall in bones and liver.Very pleased with Enhertu as I am having no side effects whatsoever 👍
Figletf
in
SHARE Metastatic Breast Cancer
7 months ago
New Med: Abraxane!!!!
Yep, another change. Enhertu was tolerable but did not see any improvement as expected. Now on round one (3 infusions) of Abraxane. So far ok. A great deal of tummy issues diarrhea etc and definitely hair loss!!! I cut my hair today ; tired of seeing it all over the house. lol I feel ok better than expected
Yep, another change. Enhertu was tolerable but did not see any improvement as expected. Now on round one (3 infusions) of Abraxane. So far ok. A great deal of tummy issues diarrhea etc and definitely hair loss!!! I cut my hair today ; tired of seeing it all over the house. lol I feel ok better than expected
Hotlantaphatz
in
SHARE Metastatic Breast Cancer
7 months ago
Please help 🙏
Hello everyone. Same old story. I booked my 3 monthly b12 injection I've been having for past 15 years. Gp says no more & did blood tests. FBC normal apart from low WBC 1.3. B12 high but low iron. No idea why b12 injections were started in the first place just that my level was 130. I attach his
Hello everyone. Same old story. I booked my 3 monthly b12 injection I've been having for past 15 years. Gp says no more & did blood tests. FBC normal apart from low WBC 1.3. B12 high but low iron. No idea why b12 injections were started in the first place just that my level was 130. I attach his
Irismay
in
Pernicious Anaemia Society
4 months ago
Daridexorant / quvuviq and RLS
Just wondering if anyone else has experience of this sleep aid and RLS? I have bought (not available in my region on NHS yet) a month’s supply of 50mg tablets and ….. I am sleeping normally!!!! It is a new drug to the UK but tried and tested in USA I believe? Apparently minimal side effects. I have
Just wondering if anyone else has experience of this sleep aid and RLS? I have bought (not available in my region on NHS yet) a month’s supply of 50mg tablets and ….. I am sleeping normally!!!! It is a new drug to the UK but tried and tested in USA I believe? Apparently minimal side effects. I have
Lacey_
in
Restless Legs Syndrome
3 months ago
SMALL-CELL NEUROENDOCRINE CARCINOMA
Following prostate cancer first treated with low dose brachytherapy, then ten years later with high dose brachytherapy, from a biopsy following a Turp, I was diagnosed with SMALL-CELL NEUROENDOCRINE CARCINOMA. From a CT scan this was found in my prostate, bladder, and lower colon. I am told that it
Following prostate cancer first treated with low dose brachytherapy, then ten years later with high dose brachytherapy, from a biopsy following a Turp, I was diagnosed with SMALL-CELL NEUROENDOCRINE CARCINOMA. From a CT scan this was found in my prostate, bladder, and lower colon. I am told that it
gegan01
in
Prostate Cancer Network
7 months ago
Help I don’t understand
So for the last 4 months I’ve been having pain in my muscles and head as well as tingling and a burning sensation. Also extreme fatigue and a red rash on my cheeks and trouble swallowing.My doctor gave me prednisone to treat because crp and esr were high. She also started me on plaquenil. Now before
So for the last 4 months I’ve been having pain in my muscles and head as well as tingling and a burning sensation. Also extreme fatigue and a red rash on my cheeks and trouble swallowing.My doctor gave me prednisone to treat because crp and esr were high. She also started me on plaquenil. Now before
Jadaboo4
in
LUPUS UK
3 months ago
Celiac disease or Endo?
Hey girls I hope yous all are well which is probably a silly thing too say when you are all living with a horrible disease. I've went down the terrible rabbit hole off googling non stop from last week and doing alot off research. Firstly if anyone suffers with recurrent UTIs are has IC then I highly
Hey girls I hope yous all are well which is probably a silly thing too say when you are all living with a horrible disease. I've went down the terrible rabbit hole off googling non stop from last week and doing alot off research. Firstly if anyone suffers with recurrent UTIs are has IC then I highly
KB1987
in
Endometriosis UK
4 months ago
Epithelial Haemangiendothelioma - has anyone else been diagnosed with this rare cancer please?
Hello, Having been diagnosed with CLL back in February 2002 (age 50) I was successfully treated with FCR from August 2009 to February 2010 and remain MRD negative as at present. Breast cancer followed in April 2016, then bowel cancer in September 2018. A five year surveillance period followed the
Hello, Having been diagnosed with CLL back in February 2002 (age 50) I was successfully treated with FCR from August 2009 to February 2010 and remain MRD negative as at present. Breast cancer followed in April 2016, then bowel cancer in September 2018. A five year surveillance period followed the
alipali
in
CLL Support
5 months ago
Reconstruction after Mastectomy
Happy Holidays!!! I was wondering if there's anyone who's had a mastectomy with reconstruction and regretted it. I'm 43 MBC and there's a mass in tge same breast they've been watching but I think it's time to have the mastectomy as a preventative measure. Anyone willing to share their experiences?
Happy Holidays!!! I was wondering if there's anyone who's had a mastectomy with reconstruction and regretted it. I'm 43 MBC and there's a mass in tge same breast they've been watching but I think it's time to have the mastectomy as a preventative measure. Anyone willing to share their experiences?
KimberlyB40
in
SHARE Metastatic Breast Cancer
7 months ago
Terrified
47 years old. I had knee surgery almost 2 weeks ago and after the surgery I took the prescribed narcotics for 4 days. Every time I take these I get constipated. I started taking stool softeners (colace) and after a week nothing. I did a Fleet enema and finally 9 days after surgery I had a BM and it was
47 years old. I had knee surgery almost 2 weeks ago and after the surgery I took the prescribed narcotics for 4 days. Every time I take these I get constipated. I started taking stool softeners (colace) and after a week nothing. I did a Fleet enema and finally 9 days after surgery I had a BM and it was
djroo
in
Colon Cancer Connected
4 months ago
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