Experiences with

Hypomyelination and congenital cataract

Hi wonderful Forum friends! You might remember that my Rheumatologist was doubtful of my PMR diagnosis, and instead felt my symptoms were due to Covid and post Covid inflammatory syndrome. So he initiated a very swift taper from 20 down to 9 mg in a mater of a few weeks. Sure enough my 3:30 PMR symptoms

Any one been diagnosed with prednisone induced cataracts? Went to the eye dr. 4 months ago and they saw the start of cataracts but said they would keep a watch but they definitely weren't ready for surgery. Went to the eye dr. last week because of cloudish vision and I was thinking my glasses prescription

My doctor has been quite relaxed about my tapering of prednisolone. However my optician is more concerned that I reduce because it is affecting my eyes, the cataract and pressure in the eye. I trust my optician and will restart the reducing plan. Has anyone else had eye issues as a result of taking steroids

Interesting topic: https://pubmed.ncbi.nlm.nih.gov/17702867/ Results of this experiment suggest that loss of locus coeruleus neurons contributes to motor dysfunction in PD. Norepinephrine Deficiency in Parkinson's Disease: The Case for Noradrenergic Enhancement https://www.researchgate.net/publication

I've been poorly so didn't take my Abatacept injection I now need to take itcan I take methotrexate the same day, both are injections x thank you

With my first time with GCA (2017) I tapered to 0 in 4 years. Then, after 1 year of 0 prednisone, I had a relapse . Now it’s 2025 and I’m on my second bout of GCA , this time with Actemra . It’s been over two years now and I’m trying to decide what to do. For the last 8 months, I’ve been on 1.5

I have a cataract that i was told was not ready to have fixed yet that was blurry vision then 2 days later had eye stroke same eye. Vision is like looking through dirty window. I have had an eye injection but vision still the same...dirty window vision. I am wondering if no imorovement is Because

Hi, does anyone know if having ET +JAK2 can contribute to getting cataracts? Had sight test at weekend & was informed sight has changed a lot & that I now have cataracts & put on yearly check ups. Back story is high platelets picked up at a regular blood donation in April 2023, finally referred to

I’ve had a sort of aura thing - area of pulsing light in the middle of my field of vision, gradually extending and flashing, then stopping - every morning for three mornings. Got an appointment with local minor eye clinic on the recommendation of the local eye hospital. I had something less dramatic

Anyone any information on the use of these in helping with parkinsons?

I am due for a combined Vitrectomy and Cataract removal soon. As I also have Glaucoma I must be careful post op not to increase my eye pressures by having my head lower than my heart. Can anyone recommend a suitable aid to help with the possible pronation position post op ? As I could be called in any

hi, Golfforlife...I just saw your 1 yr old post & wanted to relay my experience. I am 75 with CLL & ITP. My maternal grandmother died in her 50s of cervical cancer. When I was the right age. gardasil was not around. Now I know about it & want the immunization. My onc/ hemat said ok & so does my GP, but

I’m ET on Hydroxycarbamide. Have recently had Diflucan treatment for Thrush ( 150 strenght capsule day 1 and 150 strength capsule day 4) I am looking for recommendations for best probiotic .. Thank you

My understanding was that there were 3 disease modifying studies at phase 3 trial.1 Exenatide has failed. 2 Ambroxol is on going 3 lactobacillus acidophilus I can't find any study details for via google. Does anyone know more ?

I had macular hole surgery last year and because of this I developed a cataract pretty quickly . I have been shortsighted in both eyes for a long time but worse in my operated eye . I had a cataract operation just over a week ago and had a check up with the surgeon yesterday who confirmed it’s all looking

Hi all, Im needing another cataract operation as the lens they put in 17 years ago has dislocated and dropped. Now I’m on Acalabrutinib will I have to stop taking it before the op and then after for a week or so, any experience would be appreciated, thanks Will

Hi again everyone. Last time I posted I had had a relapse of the GCA after having to pause the Actemra infusions due to pneumonia and sepsis. I am now back on Actemra (had my first infusion last month) and back down to 15 mg prednisone from the increase to 30 mg when I had the relapse. I have just found

I have GCA and osteoporosis, currently taking 1.5 mg prednisone, Actemra and Boniva. My front teeth have been slowly moving inward, and it was suggested to have Invisalign (clear retainer like braces). The treatment should take 6 months. My rhemy says it’s probably ok, and to check with dentist.

Been see consultant said need cataracts removed already had iridotomy but pressures still too high.I am not sure where to go for surgery and would like best surgeon I can find. Anyone recommend one around west midlands Warwickshire areas please.

Has anyone else had problems with dry eyes when taking bisoprolol? Initially after the op I just thought it was post op issues ( you are warned about it) but it's persisted. Since I been taking it my eyes are gummy rather than moist and can feel sandy . I've been using over the counter dry eye drops