Experiences with

Hypomyelination and congenital cataract

I am due for a combined Vitrectomy and Cataract removal soon. As I also have Glaucoma I must be careful post op not to increase my eye pressures by having my head lower than my heart. Can anyone recommend a suitable aid to help with the possible pronation position post op ? As I could be called in any

hi, Golfforlife...I just saw your 1 yr old post & wanted to relay my experience. I am 75 with CLL & ITP. My maternal grandmother died in her 50s of cervical cancer. When I was the right age. gardasil was not around. Now I know about it & want the immunization. My onc/ hemat said ok & so does my GP, but

I’m ET on Hydroxycarbamide. Have recently had Diflucan treatment for Thrush ( 150 strenght capsule day 1 and 150 strength capsule day 4) I am looking for recommendations for best probiotic .. Thank you

My understanding was that there were 3 disease modifying studies at phase 3 trial.1 Exenatide has failed. 2 Ambroxol is on going 3 lactobacillus acidophilus I can't find any study details for via google. Does anyone know more ?

I had macular hole surgery last year and because of this I developed a cataract pretty quickly . I have been shortsighted in both eyes for a long time but worse in my operated eye . I had a cataract operation just over a week ago and had a check up with the surgeon yesterday who confirmed it’s all looking

Hi all, Im needing another cataract operation as the lens they put in 17 years ago has dislocated and dropped. Now I’m on Acalabrutinib will I have to stop taking it before the op and then after for a week or so, any experience would be appreciated, thanks Will

I have GCA and osteoporosis, currently taking 1.5 mg prednisone, Actemra and Boniva. My front teeth have been slowly moving inward, and it was suggested to have Invisalign (clear retainer like braces). The treatment should take 6 months. My rhemy says it’s probably ok, and to check with dentist.

Hi everyone, just looking your thoughts , i take bisoprolol and multaq, my chadsvasc score is 0 but next may changes to 1, when first diagnosed was given bisop as pill in pocket , then upped to smaller 1.25mg daily along with multaq 2x400 per day, what are your thoughts on returning to bisoprol plus

Has anyone here had problems arise with their vision after taking HU for a long time.?? I’ve got field vision loss …, been in HU over 10 years. My neuro ophthalmologist has said that Hu is known to cause problems with oeripha field vision. I now also have peripheral neuropathy - another known side

My husband was diagnosed in June of this year (2024) with GCA, unfortunately, lost complete and permanent sight in one eye, was treated with three days of prednisone infusions, started at 80 mg of oral preds, went on Actemra weekly injection and had been tapering off until down to 12 1/2. A few days

Hi again everyone. Last time I posted I had had a relapse of the GCA after having to pause the Actemra infusions due to pneumonia and sepsis. I am now back on Actemra (had my first infusion last month) and back down to 15 mg prednisone from the increase to 30 mg when I had the relapse. I have just found

Morning, all, a quick question: I've got to have cataract surgery and I wondered how those of you with lupus - and particularly Sjorgren's - have dealt with this. Did you have any problems, especially with dry eyes? is there anything I should definitely do/not do? All experiences gratefully listened

I am having cataract surgery on my right eye on 10-28, then on my left 11-25. My cornea thickness is normal at this point so I don’t need the mini cornea transplants yet. I am currently on zanubrutinib and have been for 17 months. I have an appointment with my oncology nurse practitioner tomorrow. I

Hi everyone I'm back but with problems.....🧐Due to large doses of prednisolone my cataracts have grown. I can't lay flat on my back and breath ,,,,,. tried it once with almost disastrous consequences .... I need to sit upright in a chair., I know this happens , but where, and which NHS hospital

Hello PMR/GCA friends! I had GCA/PMR in 2017, and slowly tapered prednisone over 4 years to 0. Then after almost a full year off of prednisone, in 2021 I had a relapse. Started again on 60 mg prednisone and Actemra injections . Right now I’m taking 1.5 mg prednisone and Actemra every other

Did my first workout after my op this morning. Im only allowed to do cardio on a bike for now and hopefully in a months time i can back to some strength workouts. When i tell people about what comes with glaucoma surgery they are surprised at how much recovery is needed and i was surprised too. Ive had

Hi, I am relatively new to Migraine with headache I had 1st Aura in 2015, nothing major until 2023, then following cataract surgery, they have ramped up. I had 1st Headache last September, again March thus year, lasted a day then again April worse than before, lasted 5 days now latest was end of

Anyone know why my right eye after cataract surgery was right eye visual acuity 6/6 2 years later, it was 6/9 Left eye 6/19 with cataract

had my first cataract band I stent b surgery yesterday Can’t remember or if they said what I needed to do about my glasses Someone did mention getting optican to take out existing lens from your current specs and replace with clear lens What has anyone else been told My correct artificial lens

I have glaucoma, diagnosed 17 years ago. My (wonderful!) consultant put my name on the waiting list for left cataract removal at the beginning of May. I check (every day, sadly) on my NHS app, hoping to see an update. The average waiting time is apparently 11 weeks. I don’t want to hassle anyone & I