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Hypomyelination and congenital cataract
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Continue Forever on Low Dose Prednisone?
Hello PMR/GCA friends! I had GCA/PMR in 2017, and slowly tapered prednisone over 4 years to 0. Then after almost a full year off of prednisone, in 2021 I had a relapse. Started again on 60 mg prednisone and Actemra injections . Right now I’m taking 1.5 mg prednisone and Actemra every other
Hello PMR/GCA friends! I had GCA/PMR in 2017, and slowly tapered prednisone over 4 years to 0. Then after almost a full year off of prednisone, in 2021 I had a relapse. Started again on 60 mg prednisone and Actemra injections . Right now I’m taking 1.5 mg prednisone and Actemra every other
Pamk1949
in
PMRGCAuk
1 month ago
Disopyramide Replacement?
Hi all, I have been on Disopyramide (Rhythmodan Retard 250mg) for the past 5/6 years, but now finding it almost impossible to obtain from the pharmacists in the Wiltshire area, so I am looking for an alternative. Back in January, my GP switched me to Bisprolol, but that didn't work as its rate rather
Hi all, I have been on Disopyramide (Rhythmodan Retard 250mg) for the past 5/6 years, but now finding it almost impossible to obtain from the pharmacists in the Wiltshire area, so I am looking for an alternative. Back in January, my GP switched me to Bisprolol, but that didn't work as its rate rather
DE-AF
in
Atrial Fibrillation Support
2 months ago
Positive Effect of Tocotrienol on T2D subjects
Of late, I have been reading the effect of a compound called Tocotrienols (one of the two classes of compounds available in Vitamin E) on type-2 diabetes subjects. According to some of the research papers published (links provided below) , having 250 to 400 mg of tocotrienol for around 6 months reduced
Of late, I have been reading the effect of a compound called Tocotrienols (one of the two classes of compounds available in Vitamin E) on type-2 diabetes subjects. According to some of the research papers published (links provided below) , having 250 to 400 mg of tocotrienol for around 6 months reduced
barani19
Administrator
in
Diabetes India
2 months ago
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actemra, kevzara, tocillizumab, sarilumab
Dorset lady advised me to open a new post regarding the yes/ no’s/ maybe s of actemra, kevzara, tocillizumab and sarilumab as medications for PMR. In stead of prednisolone/ prednison. Thanks Dorset lady. may I ask to add comments re. methotrexate too…. i am embarrassed to say that I did nt even
Dorset lady advised me to open a new post regarding the yes/ no’s/ maybe s of actemra, kevzara, tocillizumab and sarilumab as medications for PMR. In stead of prednisolone/ prednison. Thanks Dorset lady. may I ask to add comments re. methotrexate too…. i am embarrassed to say that I did nt even
Kaaswinkel72
in
PMRGCAuk
2 months ago
Eye Supplement Concern
Eye doctor highly recommended taking supplement Preservision. I cleared with hematology re peginterferon but after buying it, researching ingredients and checking interactions am concerned. Twice a day ingredients: C = 250 mg, E = 90 mg, zinc= 40 mg, copper = 1 mg, Lutein = 5 mg. Except Lutein,
Eye doctor highly recommended taking supplement Preservision. I cleared with hematology re peginterferon but after buying it, researching ingredients and checking interactions am concerned. Twice a day ingredients: C = 250 mg, E = 90 mg, zinc= 40 mg, copper = 1 mg, Lutein = 5 mg. Except Lutein,
Mishie14
in
MPN Voice
3 months ago
GCA-Diagnosis
So far on my journey after diagnosis of GCA was put on 60 mg Prednisone and went down slowly to none. Have been on Actemra shot weekly for 16 months now with no flare. Has anyone gotten of Actemra as well as Prednisone with no problems?
So far on my journey after diagnosis of GCA was put on 60 mg Prednisone and went down slowly to none. Have been on Actemra shot weekly for 16 months now with no flare. Has anyone gotten of Actemra as well as Prednisone with no problems?
LRevell
in
PMRGCAuk
3 months ago
Get Your Cataracts Treated!
Age-Related Macular Degeneration sufferers experience a gradual deterioration in their sight due to changes in the macular. Most sufferers are, of a certain age! Another common age-related eye condition is the development of a cataract, so it is not unusual to suffer from both conditions simultaneously
Age-Related Macular Degeneration sufferers experience a gradual deterioration in their sight due to changes in the macular. Most sufferers are, of a certain age! Another common age-related eye condition is the development of a cataract, so it is not unusual to suffer from both conditions simultaneously
Engineer46
in
Macular Society
3 months ago
new glasses?
hello everyone This forum is so helpful, supportive and encouraging. I have meant so much from everyone’s contribution. I’m about to have my 5th injection R eye for AMD. 8 week gap since 4th loading dose. I realised when my dry AMD turned wet that I was unable to read a car number plate at 20
hello everyone This forum is so helpful, supportive and encouraging. I have meant so much from everyone’s contribution. I’m about to have my 5th injection R eye for AMD. 8 week gap since 4th loading dose. I realised when my dry AMD turned wet that I was unable to read a car number plate at 20
Birchermu
in
Macular Society
13 days ago
Urgent! Cataract surgery info.
I was booked to have cataract surgery this coming Monday and the hospital contacted the surgeon and said because of APS I have to have single use instruments because the eye tissue is delicate?? My surgeon is a skilled man and I have complete faith in him but he said in all his years of doing this surgery
I was booked to have cataract surgery this coming Monday and the hospital contacted the surgeon and said because of APS I have to have single use instruments because the eye tissue is delicate?? My surgeon is a skilled man and I have complete faith in him but he said in all his years of doing this surgery
Ozchick
in
Hughes Syndrome APS Forum
15 days ago
Cataract surgery
Has anyone had successful cataract surgery with high myopia along with BRVO? I'm due to have surgery at the end of September but know that it is more risky in very shortsighted people. Also added complications with having a retinol occlusion. I opted to go to Moorfields because of their good reputation
Has anyone had successful cataract surgery with high myopia along with BRVO? I'm due to have surgery at the end of September but know that it is more risky in very shortsighted people. Also added complications with having a retinol occlusion. I opted to go to Moorfields because of their good reputation
kateanne
in
Macular Society
17 days ago
Steroid injection and surgery
Hi all , I'm just wondering if anyone knows how long you have to wait after steroid injection in the bottom before having gallbladder removal I've been told operation will be in 2 to 3 mths unless a cancellation comes in. But a friend said I'll have to wait 3mths now
Hi all , I'm just wondering if anyone knows how long you have to wait after steroid injection in the bottom before having gallbladder removal I've been told operation will be in 2 to 3 mths unless a cancellation comes in. But a friend said I'll have to wait 3mths now
Trishfrog1
in
NRAS
4 months ago
PMR/GCA and Sjogrens disease
Does anyone have Sjogren’s disease along with PMR/CGA? For months I’ve been struggling with worsening vision in my left eye, and trying to figure out if I was having a flare. The left eye vision is like it was before cataract surgery, worse some times than others, especially after reading. Opthomologist
Does anyone have Sjogren’s disease along with PMR/CGA? For months I’ve been struggling with worsening vision in my left eye, and trying to figure out if I was having a flare. The left eye vision is like it was before cataract surgery, worse some times than others, especially after reading. Opthomologist
Mstiles
in
PMRGCAuk
1 month ago
Cataract surgery
Good morning Everyone I had my cataract surgery yesterday lunchtime on my good eye. To get that strong again to start with. So I am struggling at present because my other eyehas always not been very good. The surgery went well I was told. I was worried because I have Corneal Dystrophy in my eyes as
Good morning Everyone I had my cataract surgery yesterday lunchtime on my good eye. To get that strong again to start with. So I am struggling at present because my other eyehas always not been very good. The surgery went well I was told. I was worried because I have Corneal Dystrophy in my eyes as
Bingo88
in
Lung Conditions Community Forum
2 months ago
Anesthesia and PD
I’m planning on having Morton’s neuroma surgery in a few weeks, unless I chicken out! I’m concerned about any negative effects because of anesthesia . I’m going to check to see if doing some type of block instead of General, is a possibility. Has anyone had that operation, or have experience with different
I’m planning on having Morton’s neuroma surgery in a few weeks, unless I chicken out! I’m concerned about any negative effects because of anesthesia . I’m going to check to see if doing some type of block instead of General, is a possibility. Has anyone had that operation, or have experience with different
Ob6842
in
Cure Parkinson's
4 months ago
Get Your Cataracts Treated - Part 2
Please read my earlier "Get Your Cataracts Treated" post first and, if it sounds as if you may be having a similar experience, you can use a simple test to see how your eyes compare with other people who don't have cataracts. The test determines how well you can read very faint type. It consists of
Please read my earlier "Get Your Cataracts Treated" post first and, if it sounds as if you may be having a similar experience, you can use a simple test to see how your eyes compare with other people who don't have cataracts. The test determines how well you can read very faint type. It consists of
Engineer46
in
Macular Society
3 months ago
Improvement of Blood Plasmalogens and Clinical Symptoms in Parkinson's Disease by Oral Administration of Ether Phospholipids:
You got plasmalogen? Any one likes scallops? It is a lengthy article, but our HU scientists will give us their opinion. I have to find the supplement now! https://www.ncbi.nlm.nih.gov/pmc/articles/PMC7049862/
You got plasmalogen? Any one likes scallops? It is a lengthy article, but our HU scientists will give us their opinion. I have to find the supplement now! https://www.ncbi.nlm.nih.gov/pmc/articles/PMC7049862/
Despe
in
Cure Parkinson's
4 months ago
Taking Betmiga with Pred for Urine Control?
Just wondered if anyone takes Betmiga (Mirabegron) for better urine control and if it is advisable? Since having PMR from 2022 I have frequency and urgency bladder issues, particularly at night. I would love to sleep the night through or travel without angst! While I am on, glad to say I had the
Just wondered if anyone takes Betmiga (Mirabegron) for better urine control and if it is advisable? Since having PMR from 2022 I have frequency and urgency bladder issues, particularly at night. I would love to sleep the night through or travel without angst! While I am on, glad to say I had the
Motida
in
PMRGCAuk
4 months ago
cataract surgery and wet macular degeneration?
does anyone know if you can have cataract surgery whilst on injections for wet amd? I have just had the surgery in my other eye (dry amd) and the improvement is remarkable. thank you
does anyone know if you can have cataract surgery whilst on injections for wet amd? I have just had the surgery in my other eye (dry amd) and the improvement is remarkable. thank you
Eyecloud
in
Macular Society
8 days ago
Refractive outcome
Has anybody eles had refractive outcome after cataract surgery. Or I the only one ?
Has anybody eles had refractive outcome after cataract surgery. Or I the only one ?
Janebirch1
in
Glaucoma UK
24 days ago
Refractive outcome
Has anybody had cataract surgery and had Refractive outcome that has eye pressure
Has anybody had cataract surgery and had Refractive outcome that has eye pressure
Janebirch1
in
Glaucoma UK
29 days ago
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