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Experiences with
Hypomyelination and congenital cataract
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Anesthesia and PD
I’m planning on having Morton’s neuroma surgery in a few weeks, unless I chicken out! I’m concerned about any negative effects because of anesthesia . I’m going to check to see if doing some type of block instead of General, is a possibility. Has anyone had that operation, or have experience with different
I’m planning on having Morton’s neuroma surgery in a few weeks, unless I chicken out! I’m concerned about any negative effects because of anesthesia . I’m going to check to see if doing some type of block instead of General, is a possibility. Has anyone had that operation, or have experience with different
Ob6842
in
Cure Parkinson's
15 days ago
Improvement of Blood Plasmalogens and Clinical Symptoms in Parkinson's Disease by Oral Administration of Ether Phospholipids:
You got plasmalogen? Any one likes scallops? It is a lengthy article, but our HU scientists will give us their opinion. I have to find the supplement now! https://www.ncbi.nlm.nih.gov/pmc/articles/PMC7049862/
You got plasmalogen? Any one likes scallops? It is a lengthy article, but our HU scientists will give us their opinion. I have to find the supplement now! https://www.ncbi.nlm.nih.gov/pmc/articles/PMC7049862/
Despe
in
Cure Parkinson's
20 days ago
Taking Betmiga with Pred for Urine Control?
Just wondered if anyone takes Betmiga (Mirabegron) for better urine control and if it is advisable? Since having PMR from 2022 I have frequency and urgency bladder issues, particularly at night. I would love to sleep the night through or travel without angst! While I am on, glad to say I had the
Just wondered if anyone takes Betmiga (Mirabegron) for better urine control and if it is advisable? Since having PMR from 2022 I have frequency and urgency bladder issues, particularly at night. I would love to sleep the night through or travel without angst! While I am on, glad to say I had the
Motida
in
PMRGCAuk
22 days ago
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Actemra and Extremely Fast Taper off of Prednisone
I didn't expect the following during my last appointment with my Rheumatologist: I told her that some symptoms were resurfacing after having reduced from 20mg for 2 weeks to 17.5mg, for 2 weeks (due to go down to 15mg. 2 days after appt), slight pressure in left temple and newly developed persistent
I didn't expect the following during my last appointment with my Rheumatologist: I told her that some symptoms were resurfacing after having reduced from 20mg for 2 weeks to 17.5mg, for 2 weeks (due to go down to 15mg. 2 days after appt), slight pressure in left temple and newly developed persistent
newsusy
in
PMRGCAuk
2 months ago
Is there a link with taking Forstair and cataracts?
I was diagnosed with late onset asthma just before the first Covid lockdown. My eyes were always fine until then, but within a year of taking Forstair I was diagnosed with cataracts in both eyes. My research suggests the steroid in the inhaler might be responsible, but it has been dismissed by my GP
I was diagnosed with late onset asthma just before the first Covid lockdown. My eyes were always fine until then, but within a year of taking Forstair I was diagnosed with cataracts in both eyes. My research suggests the steroid in the inhaler might be responsible, but it has been dismissed by my GP
AllotmentNanna
in
Asthma Community Forum
3 months ago
is elective surgery safe to have when you are having an Ra flare ?
hello I am due to have surgery soon, my flare is still ongoing, waiting for new drugs to work, added hydroxy 200mg daily to my ongoing mtx 15mg weekly because stopping the hydroxy caused the flare. been 7 weeks since restarting hydroxy and no sign of hydroxy working yet. my elective surgery is due
hello I am due to have surgery soon, my flare is still ongoing, waiting for new drugs to work, added hydroxy 200mg daily to my ongoing mtx 15mg weekly because stopping the hydroxy caused the flare. been 7 weeks since restarting hydroxy and no sign of hydroxy working yet. my elective surgery is due
lindyloo2018
in
NRAS
3 months ago
cataract surgery and prednisolone dose
This morning I had my eyes tested. This time last year I was told I had the beginnings of a cataract in my left eye, due to prednisolone. Today I was told that, thanks to prednisolone, the cataract is now ready for surgery. I said I didn't want it yet, because I am trying to get my prednisolone dose
This morning I had my eyes tested. This time last year I was told I had the beginnings of a cataract in my left eye, due to prednisolone. Today I was told that, thanks to prednisolone, the cataract is now ready for surgery. I said I didn't want it yet, because I am trying to get my prednisolone dose
musicalJ
in
PMRGCAuk
7 days ago
UPDATE ON CATARACT SURGERY
Hi all! Had my right eye done yesterday. Seems to have gone very well. Easy peezy. Good drugs. Took about 20 minutes at the most. Everything is so much brighter today. I can now see the dirt on my floors. Nasty! I didn't realize how difficult reading was and my specs weren't helping. Lol. I do have 3
Hi all! Had my right eye done yesterday. Seems to have gone very well. Easy peezy. Good drugs. Took about 20 minutes at the most. Everything is so much brighter today. I can now see the dirt on my floors. Nasty! I didn't realize how difficult reading was and my specs weren't helping. Lol. I do have 3
Missus835
in
PMRGCAuk
17 days ago
Heart meds and sunlight sensitivity
I am currently taking these post cardioversion (procedure successful early November 2022) meds: morning: Entresto sacubitril/valsartan 24mg/26mg Apixiban 5mg Bisoprolol Fumarate 5 mg Spironolactone 25mg Dapagliflozin 10mg evening: Entresto sacubitril/valsartan 24mg/26mg Apixiban 5mg Bisoprolol
I am currently taking these post cardioversion (procedure successful early November 2022) meds: morning: Entresto sacubitril/valsartan 24mg/26mg Apixiban 5mg Bisoprolol Fumarate 5 mg Spironolactone 25mg Dapagliflozin 10mg evening: Entresto sacubitril/valsartan 24mg/26mg Apixiban 5mg Bisoprolol
thurstonloveseva
in
AF Association
3 months ago
CATARACT SURGERY & PRED
Hi all. On Monday past I was supposed to drop my pred down to 10 mg. Instead, since Ive been in so much arm, shoulder, and neck pain I felt like I was flaring due to the fast taper rheumy has me on - I upped it to 16 mg for a few days. Today they called to say I could have my right eye cataract surgery
Hi all. On Monday past I was supposed to drop my pred down to 10 mg. Instead, since Ive been in so much arm, shoulder, and neck pain I felt like I was flaring due to the fast taper rheumy has me on - I upped it to 16 mg for a few days. Today they called to say I could have my right eye cataract surgery
Missus835
in
PMRGCAuk
22 days ago
upcoming cataract surgery
Any advice? do I take prednisone after surgery since I will be fasting overnight? How long do I have to wait until I can bend over? Does it take longer to heal with prednisone? I'm on 3 mg.
Any advice? do I take prednisone after surgery since I will be fasting overnight? How long do I have to wait until I can bend over? Does it take longer to heal with prednisone? I'm on 3 mg.
Paperroses
in
PMRGCAuk
2 months ago
Finger misbehaving (!) ...Ulnar Deviation
Hello, I recently noticed my middle finger has gone bent towards the pinky finger. I couldn't believe my eyes and did internet search. It happens to people with RA and Lupus. A bit shocking. I have been doing mild squeezing exercise daily to help increase my hand strength. I think it may be due to
Hello, I recently noticed my middle finger has gone bent towards the pinky finger. I couldn't believe my eyes and did internet search. It happens to people with RA and Lupus. A bit shocking. I have been doing mild squeezing exercise daily to help increase my hand strength. I think it may be due to
Paprika60
in
LUPUS UK
4 months ago
GCA Concerns, Cold and Eyes
I hope everyone had as wonderful a Christmas as I did, despite our health battles. I flew to Arkansas where 2 of my adult kids and 4 of my grandkids live. 2 other adult kids and their spouse and fiancé came, and it’s been a wonderful time. A cold was going around, and I caught it. Just the sniffles,
I hope everyone had as wonderful a Christmas as I did, despite our health battles. I flew to Arkansas where 2 of my adult kids and 4 of my grandkids live. 2 other adult kids and their spouse and fiancé came, and it’s been a wonderful time. A cold was going around, and I caught it. Just the sniffles,
Lenore58
in
PMRGCAuk
4 months ago
Frequent Eye Prescription Changes and Cataract Surgery
Hi all, I am a GCA patient since AUG 22. I started on 60 MG Prednisone and have tapered to 5.5 mg since then using DSNS. I have had vision problems almost from the start -- blurry vision mostly, but now I have significant cataracts -- AND I've had to change my prescription 4 times since AUG 22. My
Hi all, I am a GCA patient since AUG 22. I started on 60 MG Prednisone and have tapered to 5.5 mg since then using DSNS. I have had vision problems almost from the start -- blurry vision mostly, but now I have significant cataracts -- AND I've had to change my prescription 4 times since AUG 22. My
montebello
in
PMRGCAuk
3 months ago
Right Atrial Hypertrophy
Good morning. Has anyone ever been diagnosed with right atrial enlargement (RAH)? If yes, what was/is the experience? What were the options as it relates to medication?
Good morning. Has anyone ever been diagnosed with right atrial enlargement (RAH)? If yes, what was/is the experience? What were the options as it relates to medication?
Ocean3
in
AF Association
4 months ago
Vitamin B6 Toxicity: Available Testing of B6 Plasma Level Does NOT Tell You What You Need to Know
[u]
Background
[/u]: Vitamin B6 participates as a coenzyme in over 100 different biochemical reactions. When it does so it is converted to the inactive form, pyridoxine. The body contains a recycling loop that restores the pyridoxine to the active form, P5P. Vitamin B2 is required for this process
[u]
Background
[/u]: Vitamin B6 participates as a coenzyme in over 100 different biochemical reactions. When it does so it is converted to the inactive form, pyridoxine. The body contains a recycling loop that restores the pyridoxine to the active form, P5P. Vitamin B2 is required for this process
park_bear
in
Cure Parkinson's
4 months ago
New treatment plan GCA
Hi! I met with my rheumy yesterday and now seven months into my treatment for GCA. Initially I was told that I would be on Actemra for one year with Prednisone and then Methotrexate. Yesterday, I was informed that there will be no Methotrexate and from month ten, I move to fortnightly Actemra injections
Hi! I met with my rheumy yesterday and now seven months into my treatment for GCA. Initially I was told that I would be on Actemra for one year with Prednisone and then Methotrexate. Yesterday, I was informed that there will be no Methotrexate and from month ten, I move to fortnightly Actemra injections
Bessyg
in
PMRGCAuk
4 months ago
Methotrexate or Prednisone which is more damaging?(also update on eyes)
Hi, it's me again. During an eye exam, I was told my optic nerve was narrow, and that I needed to be seen asap due to the risk of blindness with GCA. I got in to see a neuro ophthalmologist who told me that my optic nerve isn't narrow, it's just turned on an angle. Probably from my connective disease
Hi, it's me again. During an eye exam, I was told my optic nerve was narrow, and that I needed to be seen asap due to the risk of blindness with GCA. I got in to see a neuro ophthalmologist who told me that my optic nerve isn't narrow, it's just turned on an angle. Probably from my connective disease
potterylady
in
PMRGCAuk
5 months ago
Rate of Decrease in RBC Count
Recent diagnosis of MPN, all three counts elevated. RBC count was 1.2 million, but lowered by phlebotomy to 922,000. I have started on Hydroxyurea. Are there any resources that provide information on the rate I could expect my RBC count to go down? 100K/month, 50K/month, etc. Thanks! hsdale3
Recent diagnosis of MPN, all three counts elevated. RBC count was 1.2 million, but lowered by phlebotomy to 922,000. I have started on Hydroxyurea. Are there any resources that provide information on the rate I could expect my RBC count to go down? 100K/month, 50K/month, etc. Thanks! hsdale3
hsdale3
in
MPN Voice
5 months ago
Possible new treatments for PMR and GCA?
Thanks for the info on your blog. I’ve just rejoined as CANUKUS. I’ve had GCA and PMR for about 11 years now. All I’m taking that’s directly related to those maladies is Pred , down to 2.5 mg- occasionally 5mg daily and Paracetamol 1/2 gram when I get an occasional flare. GCA seriously affected my
Thanks for the info on your blog. I’ve just rejoined as CANUKUS. I’ve had GCA and PMR for about 11 years now. All I’m taking that’s directly related to those maladies is Pred , down to 2.5 mg- occasionally 5mg daily and Paracetamol 1/2 gram when I get an occasional flare. GCA seriously affected my
Canuk
in
PMRGCAuk
19 hours ago
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