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Hypomyelination and congenital cataract
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My Cancer and other health issues update.
After months of pretty bad news over my bladder cancer which is high grade and had spread to the inner linings of my bladder. I was told I could not have BCG anymore and that was gloomy news. I have an appointment tomorrow for a new three bladder cancer BCG Treatment. I was surprised I was having
After months of pretty bad news over my bladder cancer which is high grade and had spread to the inner linings of my bladder. I was told I could not have BCG anymore and that was gloomy news. I have an appointment tomorrow for a new three bladder cancer BCG Treatment. I was surprised I was having
Ern007
in
Lung Conditions Community Forum
7 months ago
Autophagy could be bad for those who have cancer?
I was already aware for a few years that autophagy, which is triggered by intermittent fasting and long fasts, is very useful to prevent cancer as it is recycles old damaged proteins that could otherwise turn into cancer and also because it helps your body produce new cells and refreshes your immune
I was already aware for a few years that autophagy, which is triggered by intermittent fasting and long fasts, is very useful to prevent cancer as it is recycles old damaged proteins that could otherwise turn into cancer and also because it helps your body produce new cells and refreshes your immune
Mascouche
in
Advanced Prostate Cancer
7 months ago
Post Pred motivation?
Hi all, I'm finally off Pred after starting at 50mg back in Aug '21 for a crippling PMR attack. I took my final (hopefully) 0.5 mg about three weeks ago. However, I'm now often feeling very slow and lacking in motivation to do much at all. "Brain dead" would be a good way to express it. This is not
Hi all, I'm finally off Pred after starting at 50mg back in Aug '21 for a crippling PMR attack. I took my final (hopefully) 0.5 mg about three weeks ago. However, I'm now often feeling very slow and lacking in motivation to do much at all. "Brain dead" would be a good way to express it. This is not
Hidden
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PMRGCAuk
1 year ago
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Feeling scared
My husband was diagnosed with pancreatic cancer 2/11after a CT scan.Seen by the consultant on 20/11, requested an MRI which he Is having on the 7/12.The only assistance I have had is by contacting pancreatic cancer UK, they helped me get Creon after I looked up online.Just some back ground history my
My husband was diagnosed with pancreatic cancer 2/11after a CT scan.Seen by the consultant on 20/11, requested an MRI which he Is having on the 7/12.The only assistance I have had is by contacting pancreatic cancer UK, they helped me get Creon after I looked up online.Just some back ground history my
very
in
Pancreatic Cancer Action
7 months ago
CRS4PC and Zytiga side effects ?
My hubby is 69 and recently started Zytiga three weeks ago and it seems that he has developed moderate fatigue and low appetite since one week ago. I’m wondering if this could be a side effect of the Zytiga or if anyone thinks it’s an immunity infection attack.
My hubby is 69 and recently started Zytiga three weeks ago and it seems that he has developed moderate fatigue and low appetite since one week ago. I’m wondering if this could be a side effect of the Zytiga or if anyone thinks it’s an immunity infection attack.
Corgi16
in
Advanced Prostate Cancer
5 months ago
Colonoscopy
Hello, I’ve been having various bowel issues for the past few months, ie. constipation, bloating, slight pain in lower back, bit of diarrhoea and my Dr would like me to go for a colonoscopy. As there’s no bleeding, I assumed it could be something else. Am I wrong to think this? Any advice welcome
Hello, I’ve been having various bowel issues for the past few months, ie. constipation, bloating, slight pain in lower back, bit of diarrhoea and my Dr would like me to go for a colonoscopy. As there’s no bleeding, I assumed it could be something else. Am I wrong to think this? Any advice welcome
CoffeeLover55
in
Bowel Disease Support
5 months ago
Oxynorm
I'm too .... shattered... to give a nicely put story even a short n sweet would be too much right now. So in the meantime I would love to hear your thoughts on Oxynorm as pain relief for brutal endometriosis. It's helping reasonably well for me (though not fully I may add) Many thanks in advance
I'm too .... shattered... to give a nicely put story even a short n sweet would be too much right now. So in the meantime I would love to hear your thoughts on Oxynorm as pain relief for brutal endometriosis. It's helping reasonably well for me (though not fully I may add) Many thanks in advance
Roellen
in
Endometriosis UK
5 months ago
Long time sufferer from gastric problems
I am female, 83 years old and have had stomach problems for most of my life, I have not been diagnosed with IBS but have all the symptoms. I keep trying probiotics, imodium , kaolin and morphine mixture but nothing helps for long.
I am female, 83 years old and have had stomach problems for most of my life, I have not been diagnosed with IBS but have all the symptoms. I keep trying probiotics, imodium , kaolin and morphine mixture but nothing helps for long.
cal428orie
in
IBS Network
5 months ago
carbimazole and iron supplements
hi all, I have very low ferritin and need to supplement iron. Do I need to take my carbimazole away from iron or it doesn’t matter?
hi all, I have very low ferritin and need to supplement iron. Do I need to take my carbimazole away from iron or it doesn’t matter?
Kari55
in
Thyroid UK
5 months ago
I have questions about Tamoxifen, aka Hormonal Therapy
Hello all, & blessed wishes during the Holiday Season. 🎄 I must admit I haven't been on here for a while, but I hope someone can give me some answers. I was diagnosed with Clear Cell Ovarian Cancer stage 4 in 2021. I have had 6 rounds of Chemo, & a total hysterectomy. I've been doing Avastin since
Hello all, & blessed wishes during the Holiday Season. 🎄 I must admit I haven't been on here for a while, but I hope someone can give me some answers. I was diagnosed with Clear Cell Ovarian Cancer stage 4 in 2021. I have had 6 rounds of Chemo, & a total hysterectomy. I've been doing Avastin since
gta03
in
SHARE Ovarian Cancer Support
8 months ago
Extravasation
We are writing to reach out to individuals who may have experienced an extravasation during their medical treatment. Many patients are unaware of this patient-safety issue and we are hoping to bring it to light. We are kindly asking that you contribute to enforcing a safer healthcare environment while
We are writing to reach out to individuals who may have experienced an extravasation during their medical treatment. Many patients are unaware of this patient-safety issue and we are hoping to bring it to light. We are kindly asking that you contribute to enforcing a safer healthcare environment while
Extravasation
in
Blue Faery Liver Cancer
8 months ago
Antidepressants
Hi all, Increased anxiety has become one of my worst symptoms of B12 deficiency and (possible*) PA. I’m on 4 weekly B12 injections (Hydrocobalamin 1mg) on the NHS but I’ve not noticed any improvements so far. I’ve had the 6 loading doses and 2 further injections so far. I’m taking D3/K2 (3000iu/100ug
Hi all, Increased anxiety has become one of my worst symptoms of B12 deficiency and (possible*) PA. I’m on 4 weekly B12 injections (Hydrocobalamin 1mg) on the NHS but I’ve not noticed any improvements so far. I’ve had the 6 loading doses and 2 further injections so far. I’m taking D3/K2 (3000iu/100ug
Pa234aw
in
Pernicious Anaemia Society
5 months ago
Started on piqray & fulvestrant yesterday
Hello to all I now know that on the trial I decided to be on, I’ve I’ve been alloted piqray with fulvestrant shots. I had my two first ever fulvestrant injections! Wow. They hurt. But nurse put ice packs on before. And also after. What a new onslaught to my system. Here we go. I never knew the ibrance
Hello to all I now know that on the trial I decided to be on, I’ve I’ve been alloted piqray with fulvestrant shots. I had my two first ever fulvestrant injections! Wow. They hurt. But nurse put ice packs on before. And also after. What a new onslaught to my system. Here we go. I never knew the ibrance
Timtam56
in
SHARE Metastatic Breast Cancer
8 months ago
Further to my post of 9 months ago
Hi Until December last I was taking 40 mg iron bisglycinate with orange juice every two days. Since this had little impact on my RLS I increased the iron dose to 40mg every day from December until now. As yet I have noticed little change to my RLS symptoms. A blood test this month showed my ferritin
Hi Until December last I was taking 40 mg iron bisglycinate with orange juice every two days. Since this had little impact on my RLS I increased the iron dose to 40mg every day from December until now. As yet I have noticed little change to my RLS symptoms. A blood test this month showed my ferritin
Rameau
in
Restless Legs Syndrome
4 months ago
Incomplete Evacuation and Diarrhoea
Hi there, 26yo female suffering with debilitating daily morning diarrhoea followed by incomplete evacuation, where it feels like my muscles just stop moving and there's an obstruction. I was diagnosed with IBS in 2020 when symptoms started, tried fodmap diet, mebeverine, linseeds, anitbiotics for suspected
Hi there, 26yo female suffering with debilitating daily morning diarrhoea followed by incomplete evacuation, where it feels like my muscles just stop moving and there's an obstruction. I was diagnosed with IBS in 2020 when symptoms started, tried fodmap diet, mebeverine, linseeds, anitbiotics for suspected
UnroolyGut
in
IBS Network
5 months ago
Had a 5 day transfer 14/2 boobs no longer hurt does this mean it’s failed?
hi guys I’m 3 days post transfer and my boobs have stopped hurting and I feel less bloated does this mean it’s not worked . I had a 5 day blasocyst transferred Wednesday 14th and test is due next Friday . All my back ache bloating and constipation is all fading now .
hi guys I’m 3 days post transfer and my boobs have stopped hurting and I feel less bloated does this mean it’s not worked . I had a 5 day blasocyst transferred Wednesday 14th and test is due next Friday . All my back ache bloating and constipation is all fading now .
Lemons1986
in
Fertility Network UK
5 months ago
Help Needed! Have I got Pernicious Anaemia?
I hope this isn't too long and/or too boring. I suspect I have PA but as with a lot of people here, no-one seems to take B12 deficiency seriously. I also have hypothyroidism so as my symptoms got increasingly worse over the past few years, I blamed my thyroid - the two conditions have many symptoms
I hope this isn't too long and/or too boring. I suspect I have PA but as with a lot of people here, no-one seems to take B12 deficiency seriously. I also have hypothyroidism so as my symptoms got increasingly worse over the past few years, I blamed my thyroid - the two conditions have many symptoms
Grannypants
in
Pernicious Anaemia Society
5 months ago
SIBO and antibiotics
l am now feeling so out of my depth. Having been screened and cleared for obvious causes I have seen an NHS Consultant who says I am positive for SIBO. I have tried to work with low fodmap diet previously but without much success. My test with lactose was “equivocal” but a following one with glucose
l am now feeling so out of my depth. Having been screened and cleared for obvious causes I have seen an NHS Consultant who says I am positive for SIBO. I have tried to work with low fodmap diet previously but without much success. My test with lactose was “equivocal” but a following one with glucose
Skyline4
in
IBS Network
5 months ago
70 M Stage 1 Lung cancer & Lobectomy next week and scared and worried
I have smoked for more than 50 of these 70 years. I waited too long to quit and here i am. I am worried about losing part of my lung. I am afraid of the effects of chemo as an alternative. I want to cancel the surgery and just hope for the best. 18mm mass in lower left lobe. I still work, i am fairly
I have smoked for more than 50 of these 70 years. I waited too long to quit and here i am. I am worried about losing part of my lung. I am afraid of the effects of chemo as an alternative. I want to cancel the surgery and just hope for the best. 18mm mass in lower left lobe. I still work, i am fairly
LarryGaryBobTerry
in
Lung Cancer Support
8 months ago
Why would Active B12 blood test not be recognised by GP when I have lots of symptoms?
I had previously had a blood test for B12 which was apparently normal if a little low. I was told that no treatment was required.I continued to have most of the symptoms of a B12 deficiency so after 4 months and some research I paid for an Active B12 test which showed I was low. I took this to my doctor
I had previously had a blood test for B12 which was apparently normal if a little low. I was told that no treatment was required.I continued to have most of the symptoms of a B12 deficiency so after 4 months and some research I paid for an Active B12 test which showed I was low. I took this to my doctor
GSDLover17
in
Pernicious Anaemia Society
5 months ago
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