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Hypomyelination and congenital cataract
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recurrence or not? (Liver & stomach wall)
Hi folks just home after a liver biopsy after a CT scan following raised CA125 of 21 (mine usually sits @ 6-7 & never went higher than 80s) raised CEA @ 57 (apparently normal is 5 or under?). Originally in 2016 I was diagnosed with stage 1C endometroid and mucinous OC - Ned since then. I had naively
Hi folks just home after a liver biopsy after a CT scan following raised CA125 of 21 (mine usually sits @ 6-7 & never went higher than 80s) raised CEA @ 57 (apparently normal is 5 or under?). Originally in 2016 I was diagnosed with stage 1C endometroid and mucinous OC - Ned since then. I had naively
Alibee2
in
My Ovacome
9 months ago
Progress report
Oh what a fun week I have had. Those of you that followed the tooth saga will be pleased to hear I am nearly at the finishing line and had the fitting for the implant, another 2 weeks and I will have the new tooth. It wasn’t particularly pleasant but it’s done. My next exiting trip was to have a scan
Oh what a fun week I have had. Those of you that followed the tooth saga will be pleased to hear I am nearly at the finishing line and had the fitting for the implant, another 2 weeks and I will have the new tooth. It wasn’t particularly pleasant but it’s done. My next exiting trip was to have a scan
EdithWales
in
PMRGCAuk
7 months ago
vitamin B12 high
hi , have just had my blood tests results back had to have them done because I take statins and metformin. My vitamin b 12 has come back at 746 which apparently is abnormal, as anyone else had high vitamin B readings when taking statins or metformin ?
hi , have just had my blood tests results back had to have them done because I take statins and metformin. My vitamin b 12 has come back at 746 which apparently is abnormal, as anyone else had high vitamin B readings when taking statins or metformin ?
Kjshep
in
Fibromyalgia Action UK
7 months ago
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Hot off the press. Randomized, double-blind safety trial of high dose nicotinamide riboside in Parkinson’s disease.
Open access Published: 28 November 2023 Abstract Nicotinamide adenine dinucleotide (NAD) replenishment therapy using nicotinamide riboside (NR) shows promise for Parkinson’s disease (PD) and other neurodegenerative disorders. However, the optimal dose of NR remains unknown, and doses exceeding 2000
Open access Published: 28 November 2023 Abstract Nicotinamide adenine dinucleotide (NAD) replenishment therapy using nicotinamide riboside (NR) shows promise for Parkinson’s disease (PD) and other neurodegenerative disorders. However, the optimal dose of NR remains unknown, and doses exceeding 2000
SilentEchoes
in
Cure Parkinson's
5 months ago
CEA Fluctuations
My husband has just completed his 3rd cycle of Carboplatin and Etoposide for prostate cancer liver mets. Before the first cycle his CEA was 38 (should be <5) This number is being used as baseline. After 1st cycle it was 30.3 but after his 2nd cycle it rose to 32.7. Is it normal for CEA to fluctuate
My husband has just completed his 3rd cycle of Carboplatin and Etoposide for prostate cancer liver mets. Before the first cycle his CEA was 38 (should be <5) This number is being used as baseline. After 1st cycle it was 30.3 but after his 2nd cycle it rose to 32.7. Is it normal for CEA to fluctuate
Believeit
in
Advanced Prostate Cancer
9 months ago
Anxiety has risen its ugly head again.
I came 500 miles to visit my mom in an assisted living facility for Thanksgiving. Upon my visit, my mom tested positive for Covid-19, then my wife, then I did. I am stuck in the boondocks of Virginia for a week of quarantine. I have had panic attacks every day in spite of my antidepressants. My father
I came 500 miles to visit my mom in an assisted living facility for Thanksgiving. Upon my visit, my mom tested positive for Covid-19, then my wife, then I did. I am stuck in the boondocks of Virginia for a week of quarantine. I have had panic attacks every day in spite of my antidepressants. My father
Goodwill1954
in
Anxiety and Depression Support
5 months ago
constipation anyone ? Here’s a good solution
hi everyone I ve read here and there posts regarding constipation. If you’re affected you might like to try my homemade rocket muesli! I prefer to make my own because I like organic stuff and knowing what’s gone into my food. you could of course simply buy no sugar muesli and add 2 tablespoons ground
hi everyone I ve read here and there posts regarding constipation. If you’re affected you might like to try my homemade rocket muesli! I prefer to make my own because I like organic stuff and knowing what’s gone into my food. you could of course simply buy no sugar muesli and add 2 tablespoons ground
Loubprv
Volunteer
in
MPN Voice
7 months ago
Mebeverine
Hi….a nurse practitioner prescribed Mebeverine when I had a flare up of IBS a week or so ago. I take 3 a day of 135g and the pains have stopped. Do I now stop taking the tablets or are they like antibiotics where you finish the pack til they’re all gone? She prescribed 84… Thank you
Hi….a nurse practitioner prescribed Mebeverine when I had a flare up of IBS a week or so ago. I take 3 a day of 135g and the pains have stopped. Do I now stop taking the tablets or are they like antibiotics where you finish the pack til they’re all gone? She prescribed 84… Thank you
Veebucks
in
IBS Network
7 months ago
The prognostic impact of non-driver gene mutations and variant allele frequency in primary myelofibrosis.
The prognostic impact of non-driver gene mutations and variant allele frequency in primary myelofibrosis. To the Editor: Myelofibrosis is a Philadelphia-negative chronic myelo-proliferative-neoplasm (MPN) characterized by alteration of the JAK–STAT path-way, primarily through activating mutations in
The prognostic impact of non-driver gene mutations and variant allele frequency in primary myelofibrosis. To the Editor: Myelofibrosis is a Philadelphia-negative chronic myelo-proliferative-neoplasm (MPN) characterized by alteration of the JAK–STAT path-way, primarily through activating mutations in
PhysAssist
in
MPN Voice
2 months ago
Has anyone tried Berberine (supplement) for Afib?
In researching what supplements will help my 93 yr old mom's heart (afib has returned after two ablations that kept her afib-free for 14 months), I found a study on Berberine. She's currently on Tykosin and would stay on Tykosin, but that eventually becomes ineffective (sometimes as soon as 6 to 12
In researching what supplements will help my 93 yr old mom's heart (afib has returned after two ablations that kept her afib-free for 14 months), I found a study on Berberine. She's currently on Tykosin and would stay on Tykosin, but that eventually becomes ineffective (sometimes as soon as 6 to 12
GooseEggs
in
AF Association
9 months ago
Uric Acid [UA] & PCa Mortality
I once had a gouty foot. It was self-induced - I was having a brief but intense craving for high-purine foods, particularly anchovies. (Perhaps PCa was driving the craving - lol.) At some point I looked at the PCa / Uric Acid [UA] literature (more than I expected), but it was mixed & failed to impress
I once had a gouty foot. It was self-induced - I was having a brief but intense craving for high-purine foods, particularly anchovies. (Perhaps PCa was driving the craving - lol.) At some point I looked at the PCa / Uric Acid [UA] literature (more than I expected), but it was mixed & failed to impress
pca2004
in
Fight Prostate Cancer
9 months ago
Just wanted to share my Primary Myelofibrosis journey so far…….
Hi all, My diagnosis is Primary Myelofibrosis +Jak-2 &V617F mutation which was in August 2022. This was found after several visits to GP for chest infections and ultrasound scans which found an enlarged spleen. Also had bloods and bone marrow biopsy sent to Bart’s hospital for confirmation. Initial
Hi all, My diagnosis is Primary Myelofibrosis +Jak-2 &V617F mutation which was in August 2022. This was found after several visits to GP for chest infections and ultrasound scans which found an enlarged spleen. Also had bloods and bone marrow biopsy sent to Bart’s hospital for confirmation. Initial
LFCLove
in
MPN Voice
2 months ago
Vitamin D and Iron
Hi I posted yesterday about my private thyroid results and got some really great advice. Further to that, I was wondering if anyone could help me with iron and vitamin levels. On the Thriva test, it said: Vit D: 68.4 nmol/L (range 50 - 250) Ferritin: 69.1 ug/L (range 30-150) B12: 54.8 pmol/L (range
Hi I posted yesterday about my private thyroid results and got some really great advice. Further to that, I was wondering if anyone could help me with iron and vitamin levels. On the Thriva test, it said: Vit D: 68.4 nmol/L (range 50 - 250) Ferritin: 69.1 ug/L (range 30-150) B12: 54.8 pmol/L (range
Llobs
in
Thyroid UK
7 months ago
B12 deficiency and b12 deficiency anemia
So we went to GP this evening, the antibody tests are back as negative. The GP was sat there with my complaint letter in front of her and was abit funny with us to be honest. I quoted the NICE guidelines and asked why my partner was not being treated for neurological symtoms. She informed me these are
So we went to GP this evening, the antibody tests are back as negative. The GP was sat there with my complaint letter in front of her and was abit funny with us to be honest. I quoted the NICE guidelines and asked why my partner was not being treated for neurological symtoms. She informed me these are
Nic878
in
Pernicious Anaemia Society
7 months ago
Surgery
I an soon to have cataract surgery and because of arthritis problems I am having a General, but I am worried about this because of my AF. I am on warfarin and have been for several. Does anyone know how long I will need to be asleep, thank you.
I an soon to have cataract surgery and because of arthritis problems I am having a General, but I am worried about this because of my AF. I am on warfarin and have been for several. Does anyone know how long I will need to be asleep, thank you.
nemisis2
in
AF Association
1 year ago
Further info on blood panel
Hello! I posted a couple of weeks back with some questions about low B12 investigations and was about to have a very full and detailed blood panel. I've got some further info from my blood tests. I don't have a copy yet, they're on the way, so I'll have to be vague about actual numbers for some of them
Hello! I posted a couple of weeks back with some questions about low B12 investigations and was about to have a very full and detailed blood panel. I've got some further info from my blood tests. I don't have a copy yet, they're on the way, so I'll have to be vague about actual numbers for some of them
Onefish
in
Pernicious Anaemia Society
7 months ago
Fibre in the diet
I have probably written about this before, but I am really unsure where to go. So it appears that lots of things play up with my stomach particularly fibre. I tried porridge (smooth quick cook) this within half an hour will give me stomach ache and many trips to the toilet tmi. I then tried peanut
I have probably written about this before, but I am really unsure where to go. So it appears that lots of things play up with my stomach particularly fibre. I tried porridge (smooth quick cook) this within half an hour will give me stomach ache and many trips to the toilet tmi. I then tried peanut
huggit
in
IBS Network
7 months ago
LENS Neurofeedback Low Energy Neurofeedback System update.
I have had agoraphobia for the past 4 1/2 years. What has helped me may not be available in your area. It is called LENS Neurofeedback. LENS stands for Low Energy Neurofeedback System. It is different from traditional Neurofeedback in that it introduces a low current into your brain rather than just
I have had agoraphobia for the past 4 1/2 years. What has helped me may not be available in your area. It is called LENS Neurofeedback. LENS stands for Low Energy Neurofeedback System. It is different from traditional Neurofeedback in that it introduces a low current into your brain rather than just
gajh
in
Anxiety and Depression Support
5 months ago
Iron results help
Good Morning, i had these done this week by medichecks as my gp only does ferritin and that goes up and down too much i cant use that to see how im at with my actual iron stores which i believe im lacking as my diet hardly contains iron rich foods especially this year my ferritin test by my Gp June
Good Morning, i had these done this week by medichecks as my gp only does ferritin and that goes up and down too much i cant use that to see how im at with my actual iron stores which i believe im lacking as my diet hardly contains iron rich foods especially this year my ferritin test by my Gp June
Nellie2016
in
Thyroid UK
7 months ago
soft, sticky stool which is hard to pass - any advice?
I feel embarrassed describing my poop but am at the end of my rope with my gut issues. I’ve had IBS for 25 years but the last 5 years have been non-stop, daily issues. Over the last 4 years I have had endless tests. A colonoscopy and gastroscope in 2019 which was clear, a clear ct scan later that year
I feel embarrassed describing my poop but am at the end of my rope with my gut issues. I’ve had IBS for 25 years but the last 5 years have been non-stop, daily issues. Over the last 4 years I have had endless tests. A colonoscopy and gastroscope in 2019 which was clear, a clear ct scan later that year
rustydog
in
IBS Network
7 months ago
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