Prostate Cancer Network

4,260 members • 2,461 posts

Another one has left this earth

My husband, Roger took his last breath after a 6 1/2 year journey with prostate cancer. When diagnosed with aggressive prostate cancer (12/12 cores, Gleason 8,...

My husband, Roger took his last breath after a 6 1/2 year journey with prostate ...

Rsdutcher7

•25 days ago

70 Replies

WORDS AND THOUGHTS

KAHIL GIBRAN WROTE: Don't enhance what is, but in advancing toward what will be............ I believe If we learn, improve and empower our lives, and try...

KAHIL GIBRAN WROTE: Don't enhance what is, but in advancing toward what will be...

Lrv44221

•26 days ago

50 Replies

$13K for 6 months of Orgovyx. Is it worth it?

My RO wants me on 6 months of Orgovyx as part of my upcoming SRT. My private insurance has rejected Orgovyx coverage in favor of Eligard or Firmagon. RO says...

My RO wants me on 6 months of Orgovyx as part of my upcoming SRT. My private ins...

Rams91

•4 days ago

18 Replies

Active Surveillance/2nd Biopsy

Hello everyone, I just received the results from my 2nd prostate bx while on active surveillance. The Urologists office just called me to see if I wanted to...

Hello everyone, I just received the results from my 2nd prostate bx while on act...

ironmanburg

•22 days ago

38 Replies

What is "high volume" GL 6?

I was watching Dr. Klotz's video on AS. He mentioned that people with "high volume GL 6" should reconsider AS. What exactly is high volume GL 6? He never...

I was watching Dr. Klotz's video on AS. He mentioned that people with "high volu...

witantric

•4 days ago

13 Replies

Positive Margins -- Will I need additional treatment?

3 months post RALP and PSA is undetectable by standard test. My surgical pathology results are pasted below. Do you think I will need additional treatment?...

3 months post RALP and PSA is undetectable by standard test. My surgical pathol...

SmasherOfAjumma

•10 days ago

20 Replies

Night time fasting

Any credence to this theory? https://www.mdpi.com/2072-6643/13/8/2662

witantric

•2 days ago

7 Replies

Followup on friend I mentioned.

He just got biopsy back. Lotta 4+3. His wife however, is telling me the Doc is saying it's Stage 1., which is absurd unless I'm woefully ill-informed. There...

He just got biopsy back. Lotta 4+3. His wife however, is telling me the Doc is...

WhatHump

•9 days ago

16 Replies

Decided to have a robot assisted laparoscopic radical prostatectomy - update

Reasons for my decision: I made a decision based on my understanding, see below. Radiation - no effect on urinary leakage, sexual function initially preserved...

Reasons for my decision: I made a decision based on my understanding, see below....

Hockeyforever

•10 days ago

15 Replies

Viagra

Is it worth trying viagra now I had my last ADT injection 3 months ago.

Coggeshall

•1 month ago

28 Replies

treatment decision

Anyone on here been treated with MSK Precise® Radiation Therapy? I was diagnosed with G 3+4 one year ago & after researching & second opinions and more...

Anyone on here been treated with MSK Precise® Radiation Therapy? I was diagnosed...

930911

•17 days ago

19 Replies

Inquiring about HIFU and/or Beth Israel in Boston

I am wondering if there might be members of the group who have undergone HIFU (High Intensity Focused Ultrasound) who might be able to share from their...

I am wondering if there might be members of the group who have undergone HIFU (H...

allshallbewell

•19 days ago

20 Replies

maybe decision time???

I started May 21 with a diag of aggressive Stage 4 with vast mets, skull, clavicle, sternum, entire spine, sacrum pelvis and hips. Spots in lungs, liver,...

I started May 21 with a diag of aggressive Stage 4 with vast mets, skull, clavic...

katartizo61

•1 month ago

26 Replies

NHS urology referral rejected twice despite abnormal PSA and abnormal DRE

My GP showed me the referral he made. It has all the information. But the hospital refuses to help saying inadequate information has been provided and they...

My GP showed me the referral he made. It has all the information. But the hospi...

JFC87

•24 days ago

20 Replies

Rising PSA

I had another MRI in January 2023 and showed the same thing as the other three, all about the same, Pirads-2. My concern is my rising PSA since August 2022 ,...

I had another MRI in January 2023 and showed the same thing as the other three, ...

ironmanburg

•28 days ago

19 Replies

Will miss 2 daily doses of Orgovyx (repercussions?)

The pharmacy sent me several bottles of Orgovyx in Jan.. As a result I mindlessly assumed I had another bottle when I ran out of my last pill today! The...

The pharmacy sent me several bottles of Orgovyx in Jan.. As a result I mindlessl...

Scooter22

•12 days ago

12 Replies

Oncotype and active surveillance

I am on AS (1 core 10% GL6 in mri guided biopsy). Oncotype score is 40, so in the middle :-( Thoughts. I am super confused now

I am on AS (1 core 10% GL6 in mri guided biopsy). Oncotype score is 40, so in th...

witantric

•2 days ago

5 Replies

How long of a delay in treatment is too long? And how does weak urinary flow interface with RT?

I canceled my RP after some of you gently suggested that I get a second opinion from an RO. I will now be treated by Dr. Biagioli at the SMH Radiation...

I canceled my RP after some of you gently suggested that I get a second opinion ...

Smarks42

•1 month ago

18 Replies

Is it time to see a Radiation Oncologist?

Hi, I had surgery in December 2021 and my PSA has been rising steadily since. My reading since surgery were: Jan 2022 0.025 Apr 2022 0.023 July...

Hi, I had surgery in December 2021 and my PSA has been rising steadily since. M...

Rams91

•1 month ago

18 Replies

New NEJ 10 year study RE: "Active Monitoring shows 99% same survival rate for localized Cancer" as Surgery & Radiation

What are your thoughts on the following:"New NEJ 10 year study RE: "Active Monitoring shows 99% same survival rate for localized Prostate Cancer" as Surgery &...

What are your thoughts on the following:"New NEJ 10 year study RE: "Active Monit...

JWS13

•18 days ago

13 Replies

quick update

just spoke with my urology nurse consultant, my PSA is now 0.05, looks like the hormone treatment is working, looking like radiotherapy will start April/ May,...

just spoke with my urology nurse consultant, my PSA is now 0.05, looks like the ...

ukpete

•6 days ago

7 Replies

Moving to 6 month psa check

I wonder if anyone in this forum felt like they wish they would have stayed with the 3 month psa check rather than moving to 6 month psa checks

I wonder if anyone in this forum felt like they wish they would have stayed with...

twostrats

•20 days ago

12 Replies

Treatment Options Analysis Paralysis

Currently suffering from "analysis paralysis" as I go back and forth between radiation (Cyberknife) and Surgery. I was set to go with Cyberknife at Georgetown...

Currently suffering from "analysis paralysis" as I go back and forth between rad...

BMT07

•23 days ago

13 Replies

New Study Result Being Dangerously Oversimplified

Was watching the National News on ABC a day or two ago. One of the major stories was a "breakthrough study" regarding Prostate Cancer. They refer to a...

Was watching the National News on ABC a day or two ago. One of the major storie...

jazj

•18 days ago

11 Replies

Experiences with Salvage Radiation, tips and advice

My husband will be undergoing 39 sessions of salvage radiation in a few weeks and I am looking for any tips or advice on what to expect as far as side effects...

My husband will be undergoing 39 sessions of salvage radiation in a few weeks an...

JLR65

•23 days ago

11 Replies

zoladex 3.6mg injection

Hi, I will be having radiotherapy in about 3/4 weeks I’ve had a course of Bicalutamide 150mg tablets and I’m having a monthly zoladex injection in my...

Hi, I will be having radiotherapy in about 3/4 weeks I’ve had a course of Bical...

ukpete

•6 days ago

5 Replies

Trimix storage

I've searched the archives here, but couldn't find information on storing trimix. I've read recommendations stating that it can be frozen for up to a year....

I've searched the archives here, but couldn't find information on storing trimix...

Smallfall

•5 days ago

4 Replies

Grass roots and prostate cancer

me on the radio 2019 - blast from the past https://on.soundcloud.com/ktjoJ

me on the radio 2019 - blast from the past https://on.soundcloud.com/ktjoJ ...

Darryl

Partner•1 day ago

2 Replies

Pain after intercourse

First I would like to thank all the people in this community for providing excellent advice and encouragement. I had radiation and Lupron in 2020, and my PSA...

First I would like to thank all the people in this community for providing excel...

paladin7

•5 days ago

4 Replies

Low blood pressure and pulse -Orgovyx and flomax -AND CIALIS?

I just finished 20 IMRT at UCLA. I am also on Orgovyx for a month.( 3 months to go) I am also taking flomax . I am supposed to start taking Cialis .5 mg per...

I just finished 20 IMRT at UCLA. I am also on Orgovyx for a month.( 3 months to ...

JWS13

•25 days ago

9 Replies

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