Fight MPN | HealthUnlocked

Recently my hydroxy dose was increased to 1500mg / 2000mg on alternating days. I dont know if this is a coincidence or related but im getting strangely out of...

Hi there I have been on Ruxolitinib for just over 4 years for MF, today I was told that I am becoming very anaemic and was recomended to change my medication...

I have been on hydroxyurea for 7 years. I now have to have 5 weeks of chemo radiography for another condition which means stopping the hydroxy for 8 weeks. My...

Hello Everyone, I have almost taken Rux for more than 7 years. and added interferon during the time. Actually my platelets are already very low now because of...

Hello! I was diagnosed with PV 5 years ago and I’ve not seen PV specialist yet. I know I should have. I live in Walnut Creek, CA. Does anyone know PV...

I have ET for last seven years, so far was only on aspirin. But recently my platelets elevated considerably and now dr. Put me on hydroxyurea ( two tablets )...

My granddaughter was recently diagnosed with fifth disease or slap cheek. This is a very common childhood illness. Since I have Polycythemia vera though, I...

Hubby diagnosed Sept 2023 with PV & Jak2. He's taking 500 mg Hydroxyurea daily & after a few adjustments doing & feeling really well. He isn't a worrier..I am...

I’m in my mid 40’s and just diagnosed with polycythemia Vera. I’m nervous about starting Hydrea and would love to hear what to really expect. I enjoy the...

Anyone else on Jakafi/ruxolitinib and have their head “racing” at bedtime? I guess sort of like you’ve had several cups of coffee and laid down to sleep.

Hi all is there concrete evidence that stress can raise platelets in ET jak2 positive please ?

13 neurological, blood, and heart-related medical conditions

I’m curious whether anyone else has been trying red light therapy at home. It‘s given me an energy boost without a doubt. How are others going? #Fatigue

someone forwarded me information on the above subject. Pegasys is mostly used off label for MPN, but it is prescribed and reimbursed for MPN in many...

hi everyone, again need some advice. Three weeks ago my platelets suddenly creeped up 1500. Dr put me on hydroxyurea(2 tablets daily) . Before this I was only...

Hello everyone, I was diagnosed with ET ( triple negative) 7 years ago, was on aspirin only so far. But recently my platelets count came 1500, and dr put me on...

Hi allJust wondering if I can take essential oils to help with my mood and menopause whilst taking interferon for PV. Anyone any experience of this and whether...

Hello again, I am reaching out once more. I was prescribed this medication and havent started taking yet, but after reading up a bit on it I am wondering...

Hello everyone, I have been suffering from MPN for over 10 years, although I am very young. JAK2v617F. Due to misdiagnosis in the beginning few years, that...

Over the last 6 years mine has been aspirin and venesections .

in May I had a small stroke and the same day a retinal detachment. I was released from hospital 3 days later directly to an eye surgeon to repair my eye. I...

Does anyone with ET taking HU drink wine? Any side effects? Thanks

I have early stage MF from ET, and I‘ve had a headache for 12 days, with pressure over the left eye, and lightning flashes in the left eye. I just wondered if...

This result came at random I have zero symptoms so can I have this ene and it mean nothing? Or does it mean I definitely have a MPN? the dna test result...

Things have been coming along pretty well. Iron levels are gradually increasing, resulting in an increase in erythrocytes. On 10/07 at my PCP lab, HCT =...

I have MF with JAK2 V617F for 10 years, now is taking Ruxotinib and Interferon . Spleen contraction and blood control are good. Although I took a lot of...

I am about start Besremi. I just wanted to know how people are doing on it. I am hoping to get it this week. My Hct has done well from the start, took 8mos...

Hi all, I had a JAK2 test which came up positive, at the same time my levels returned to normal so this is all new to me. There appear to be 2 MPN forums on...

Last year at this time I was aware that my red blood cells and platelets were too high. This year I know why. Last year I had only read the words...

https://www.mympnteam.com/resources/understanding-complete-blood-counts-in-mpns