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Fight MPN

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Besremi

I am about start Besremi. I just wanted to know how people are doing on it. I ...

Reason for 2 MPN Communities

Hi all, I had a JAK2 test which came up positive, at the same time my levels ret...

Today is World Blood Cancer Day

Last year at this time I was aware that my red blood cells and platelets were to...

An article about understanding CBC’s

https://www.mympnteam.com/resources/understanding-complete-blood-counts-in-mpns

Bloodwork today. 😐

I’m only sharing because no one in my world can really relate. Even I don’t kno...

Shoulder & arm pain

Hi I have terrible pain in shoulders and down my arms, very painful putting on c...

Risks in taking and not taking aspirin with hydroxyruea, especially when older

I have been taking hydroxyurea since Nov 2020 when diagnosed with Essential thro...

Side effects of Anagrelide

A few weeks ago I posted a msg regarding side effects of Interferon and several ...

Diet - A way to treat MPN's

Has anyone found medical support to treat MPN's with diet?

Burning sensation on my feet

Hi, Im 65 with ET, JAK2 since 2013. Since then Im taking Hydrea 1000mg everyday....

RBC Counts decreasing

Hi, Im 65 with ET, JAK2 since 2013. Its been 8 years that Im taking Hydrea medic...

ET and awaiting results

Hi to everyone, Happy Easter! I am awaiting result from genetic testing and ra...

Burning ankles

Over the last few days my ankles and feet have been burning . They feel like the...

Hydrea side effects

I am supposed to start taking Hydrea 500 mg/ day for ET JAK2 +. I am concerned a...

Pain aches interferon

Hi I recently started on interferon switching from Hydrea. I have ET. Since s...

How bad does it have to get?

Hi everyone, My haematology appointment for yesterday was cancelled but on Monda...

Low sodium

Hi I have been feeling user the weather last few days or so. I had blood test do...

Tratamiento Mielofibrosis

Hola, soy nuevo en este grupo. Espero que se encuentren bien durante este tiempo...

Does anyone know if it’s okay to take a COvid vaccine while on hydroxyurea? I have ET with Jack.

Does anyone have information on taking a COvid vaccine while on hydroxyurea? I h...

Anyone else with MDS/MPN suffered compression fractures?

Just found out the pain I have had in my back for over four months is due to com...

Shielded from covid-19

Hi Hope friends on here ,have been sent a letter from there GP advising us to se...

Live ask the expert webinar shortly

Don’t miss TODAY’s important free, live webinar with MPN experts Drs. Michaelis ...

Do we qualify for home delivery of shopping?

Hi All on the Government form on line for getting food shopping delivered , it’s...

Palpitations

How serious are palpitations?

Bone Marrow Biopsy

Hi. I have been recently diagnosed with a MPN, although I don’t know which one ...

Stabbing pain

Hello, I’m new to the group. I’m trying to understand the pain I’m experiencing ...

ET & Statin Usage

Has anyone experienced a reduction in their platelet count as a result of takin...

Patient of ESSENTIAL THROMBOCYTOSIS on medication of hydroxyurea , but gradually RBC ALSO DECREASING !

I am recently on hydroxy urea and hav an okay platlet level ie 5-5,50000 but my ...

Information on MPN

For more information on myeloproliferative neoplasms (MPN), visit: https://www.p...

Community Guidelines

Welcome to the Fight MPN Community for support of Myeloproliferative neoplasms ...
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About us

Welcome to the Fight MPN community! This is a safe space for anyone affected by myeloproliferative neoplasms (...

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