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New arrival but old and new issues dbs, cbd oil, constipation, Kemadrin
I am new to this. Constipation is a big issue as the dosage of Movicol combined with Senekot does not work consistently and PD medication on time reduces from 3 hours down. I am considering a home enema kit as I seem to be permanently constipated. Anyone tried an enema kit? DBS application now in process
I am new to this. Constipation is a big issue as the dosage of Movicol combined with Senekot does not work consistently and PD medication on time reduces from 3 hours down. I am considering a home enema kit as I seem to be permanently constipated. Anyone tried an enema kit? DBS application now in process
billyboy11
in
Cure Parkinson's
6 years ago
Plz help me with some questions..
i am on gluten free diet...since two wek my symtomps.doesbt go aways.. Only lil inflamyion reduced on face.. But.its still deformed right side.is more.swollen than left.. Heart burn alot... I.have strted to tale.probiotics.with water during.food.heart burn doesnt go aways so i started to take it by disolving
i am on gluten free diet...since two wek my symtomps.doesbt go aways.. Only lil inflamyion reduced on face.. But.its still deformed right side.is more.swollen than left.. Heart burn alot... I.have strted to tale.probiotics.with water during.food.heart burn doesnt go aways so i started to take it by disolving
Dils
in
Thyroid UK
6 years ago
Robbed
hi im mick 57 and retired due to Parkinsons i feel robbed of my ability to work as i loved my job and the lads i worked with my weight has increased since retiring as my work was very physical ive undergone DBS surgery but that was not successfull still having treatment (very dissapointed) is there anyone
hi im mick 57 and retired due to Parkinsons i feel robbed of my ability to work as i loved my job and the lads i worked with my weight has increased since retiring as my work was very physical ive undergone DBS surgery but that was not successfull still having treatment (very dissapointed) is there anyone
mckchart
in
Cure Parkinson's
6 years ago
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Underactive thyroid and Gluten free
Hi I have been diagnosed with underactive thyroid. I have no idea what this means and was given no explanation from GP except the clinical one he read from the screen twice. I’m now reading things from the internet and getting in a right muddle. One thing I would like to know is ‘What is the connection
Hi I have been diagnosed with underactive thyroid. I have no idea what this means and was given no explanation from GP except the clinical one he read from the screen twice. I’m now reading things from the internet and getting in a right muddle. One thing I would like to know is ‘What is the connection
Maydy
in
Thyroid UK
6 years ago
Test results. Antibodies even higher than before!!
Hi, I am totally confused. Following my first test results from medichecks back in April I have been following a strict gluten-free diet. Some of my symptoms have decreased and I’ve lost a bit of weight too! I thought I’d do a follow up and found my antibodies are even higher than before! I know there
Hi, I am totally confused. Following my first test results from medichecks back in April I have been following a strict gluten-free diet. Some of my symptoms have decreased and I’ve lost a bit of weight too! I thought I’d do a follow up and found my antibodies are even higher than before! I know there
Blahfeelingblah
in
Thyroid UK
6 years ago
DBS Surgery in IL
I am hoping to get the OK for DBS surgery soon. Would love to hear from anyone who has had this done in the Rush Shore Medical center Chicago IL or Evanston Hiospital in IL. Good or bad, I need to know.
I am hoping to get the OK for DBS surgery soon. Would love to hear from anyone who has had this done in the Rush Shore Medical center Chicago IL or Evanston Hiospital in IL. Good or bad, I need to know.
luba1
in
Cure Parkinson's
6 years ago
Anti GAD antibodies and Gluten
Does a strict gluten free diet help get rid of Anti GAD antibodies as well has the gluten antibodies? I've got Anti GAD Ataxia, Gluten Ataxia and Stiff person syndrome.
Does a strict gluten free diet help get rid of Anti GAD antibodies as well has the gluten antibodies? I've got Anti GAD Ataxia, Gluten Ataxia and Stiff person syndrome.
Colredrovers
in
Ataxia UK
6 years ago
Multi nodular goitre
Hello all. I just had another scan (not yet got GP's comments) but was informed I (still) have a multinodular goitre (as far as I know same as 20 years ago no treatment). Swelling worse on left side, again I expected this as swallowing difficult for past year. Had private Medichecks tests, took to
Hello all. I just had another scan (not yet got GP's comments) but was informed I (still) have a multinodular goitre (as far as I know same as 20 years ago no treatment). Swelling worse on left side, again I expected this as swallowing difficult for past year. Had private Medichecks tests, took to
jib70
in
Thyroid UK
6 years ago
not again :-(
Pain enough to have me on ibruprofen, am now tubigripped and using
deep
freeze
gel. I don't know if this is the return of the muscle spasm or an actual strain but i am gutted. Had plans for an 8k on saturday. why me :-(
Pain enough to have me on ibruprofen, am now tubigripped and using
deep
freeze
gel. I don't know if this is the return of the muscle spasm or an actual strain but i am gutted. Had plans for an 8k on saturday. why me :-(
alisonx
Graduate10
in
Bridge to 10K
6 years ago
Everyone needs a rant sometimes - Especially with Endo!
So I don't post on here very often but I feel like I need a rant and where else better to do it! So I am always in a constant battle to look after myself as best I can - After growing up watching my mum suffer with Endo for years when there was no info out there about it I now feel that it is my duty
So I don't post on here very often but I feel like I need a rant and where else better to do it! So I am always in a constant battle to look after myself as best I can - After growing up watching my mum suffer with Endo for years when there was no info out there about it I now feel that it is my duty
LauraJayne92
in
Endometriosis UK
6 years ago
DBS & Balance
Those people who have had DBS done, do you or did you have balance issues, and did the settings have any effect on it. Thanks
Those people who have had DBS done, do you or did you have balance issues, and did the settings have any effect on it. Thanks
Dwest022
in
Cure Parkinson's
6 years ago
High TPO 461.7 U/ml yet normal TSH/T4. Abnormal B12 + folate. Not getting anywhere, please advise.
Hi, just looking for some advice regarding my recent blood tests... Thyroid Antibody TPO 461.7U/ml - Normal 0.0 - 9.0 (ABNORMAL) Free T4 8.4pmol/L - Normal 7.9 - 14.0 (IN-RANGE) TSH 2.194 mU/L - Normal 0.570 - 3.600 (IN-RANGE) Serum B12 88ng/L - Normal > 203 (ABNORMAL) Serum Folate 3.0 ug/L - Normal
Hi, just looking for some advice regarding my recent blood tests... Thyroid Antibody TPO 461.7U/ml - Normal 0.0 - 9.0 (ABNORMAL) Free T4 8.4pmol/L - Normal 7.9 - 14.0 (IN-RANGE) TSH 2.194 mU/L - Normal 0.570 - 3.600 (IN-RANGE) Serum B12 88ng/L - Normal > 203 (ABNORMAL) Serum Folate 3.0 ug/L - Normal
1966sll
in
Thyroid UK
6 years ago
Anyone find C/L ineffective?
My husband has never been helped with any meds. Has been on carbo/levo 25-100 6 per day for over a year. He has no "on time or off time". Dr. wants him to go to 8 but I don't understand why since we do not see any change at all. He is now on B1 (Dr. C. said to stay on meds, probably because he doesn't
My husband has never been helped with any meds. Has been on carbo/levo 25-100 6 per day for over a year. He has no "on time or off time". Dr. wants him to go to 8 but I don't understand why since we do not see any change at all. He is now on B1 (Dr. C. said to stay on meds, probably because he doesn't
Basih101
in
Cure Parkinson's
6 years ago
Plz helpe with gluten free diet
i take one.boiled egg in the morning then i take milk tea sugar free.wth 1 gluten free biscuit.. After taking it i feel.dizziness plz help me. Where iam wrng
i take one.boiled egg in the morning then i take milk tea sugar free.wth 1 gluten free biscuit.. After taking it i feel.dizziness plz help me. Where iam wrng
Dils
in
Thyroid UK
6 years ago
DBS SURGERY
hi I have cervical dystonia i had DBS surgery in 2012 I would love to write about my experiences and promise I will do later but I have a question I charge my battery every 48 hours and will be having keyhole surgery on my knee very shortly I need to know if I can safely turn off the battery while I
hi I have cervical dystonia i had DBS surgery in 2012 I would love to write about my experiences and promise I will do later but I have a question I charge my battery every 48 hours and will be having keyhole surgery on my knee very shortly I need to know if I can safely turn off the battery while I
belle2018
in
Dystonia Society
6 years ago
Shortness of breath
Shortness of breath I’m 76 years old diagnosed six years ago but first symptoms 25 years ago with loss of smell. At that time they didn’t put it together that it may be the beginning of Parkinson’s disease. I am on pretty heavy doses of Sinemet, having to take two tablets of 25/100 every two hours
Shortness of breath I’m 76 years old diagnosed six years ago but first symptoms 25 years ago with loss of smell. At that time they didn’t put it together that it may be the beginning of Parkinson’s disease. I am on pretty heavy doses of Sinemet, having to take two tablets of 25/100 every two hours
martinstevens1
in
Cure Parkinson's
6 years ago
Thiamine question
I have been taking 2Gm Thiamine twice a day for about 1 month now. I have had DBS approx 10 yrs ago. I was diagnosed with PD about 20 years ago, fortunately the only symptoms I have are balance issues and bradykinesia. My question is; Does the length of time taking Thiamine have any correlation with
I have been taking 2Gm Thiamine twice a day for about 1 month now. I have had DBS approx 10 yrs ago. I was diagnosed with PD about 20 years ago, fortunately the only symptoms I have are balance issues and bradykinesia. My question is; Does the length of time taking Thiamine have any correlation with
Dwest022
in
Cure Parkinson's
6 years ago
Fixin to get DBS and very nervous
Ive never done anything like sharing my issues with strangers but .pardon my punctuation ,it usually stinks ..ive had Parkinson's now for just over 4 years .im 44 ,I just got finished jumping through a ton of hoops and finally ,i go in for dbs surgery on the 22nd of Aug . Basically, im scared ,im not
Ive never done anything like sharing my issues with strangers but .pardon my punctuation ,it usually stinks ..ive had Parkinson's now for just over 4 years .im 44 ,I just got finished jumping through a ton of hoops and finally ,i go in for dbs surgery on the 22nd of Aug . Basically, im scared ,im not
Ou812
in
Cure Parkinson's
6 years ago
Bad Role Model
-Potential trigger warning- My very supportive grandfather (the only member of my childhood family who’s still in my life), was telling me yesterday that his good friend’s daughter tried to hang herself the other day, but the belt broke. Apparently she’s a young teenager, and she sees a therapist for
-Potential trigger warning- My very supportive grandfather (the only member of my childhood family who’s still in my life), was telling me yesterday that his good friend’s daughter tried to hang herself the other day, but the belt broke. Apparently she’s a young teenager, and she sees a therapist for
ZenGiraffe
in
Anxiety and Depression Support
6 years ago
anybody diagnosed with lupus had balance problems headaches fever joint pain on immune suppressant told symptoms Fibo
Writing here for some support how to make a long story short back in 1998 I had a seizure I didn't know what was happening in years before in my late teens and had two together but didn't know at the time they were painful and not what you think of seizures. I went to a neurologist who told me it
Writing here for some support how to make a long story short back in 1998 I had a seizure I didn't know what was happening in years before in my late teens and had two together but didn't know at the time they were painful and not what you think of seizures. I went to a neurologist who told me it
Hidden
in
LUPUS UK
6 years ago
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