We are an online community providing support, advocacy and information for anyone affected by the neurological movement condition known as dystonia...Read more
Dystonia botox injections
teddy55a day ago
Who has botox in london please ?
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berejena25 days ago
A few weeks ago I slipped & fell on LH side, I continued walking for about two weeks, bit painful but thought badly bruised. My mother is dy...
My husband refuses aids to his walking
Caroline42442 months ago
Hi my husband & & are 73. He had a quite severe head injury in 1981 & recovered manageably well. But about 8-10 years ago slowly developed d...
joe454 months ago
I. Have both has anyone had relief from a stiff neck from meds and which ones helped I've been had Botox , baclofen, clonzapam,, diazepam no...
Balance - the good old days
JoLeam4 months ago
Age 58 in February 2008 when walking I felt as if the pavement was going up and down, similar to being on the ferry. I sat down. No other sy...
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I have Parkinsons and i also suffer with Dystonia
niecy644 months ago
Hi I have had PD for 11years just finished work now because of ill health. I started with Dystonia three years ago, it started in my toes o...
How do you control focal dystonia pain?
mattywelly6 months ago
My focal dystonia pain is getting worse in my finger I've taken iboprofuen and paracetamol but it has not helped. A orthopaedic surgeon says...
Wondering if anyone has suggestions
Alley18 months ago
I live in Idaho, my Neurologist wants me to start botox. problem is, no one in this area does botox for my Dystonia. This will make me drive...
Hidden8 months ago
Hey, a new site. Where is everybody . HELLO HEllo hello ECHO ECho echo.
7 Replies1 Like
sharlynn8 months ago
Hi everyone, I have a diagnosis of cervical Dystonia and also rheumatoid arthritis. I work part time and my work colleagues are great. All m...
loppylou688 months ago
So glad to find dystonia society on heath unlocked
I've been suffering with dystonia majorly since 2012
I as I now know it have generalised dy...
berejena9 months ago
I was diagnosed with SCA (Spino Cerebellar Ataxia) about 20 yrs ago, then diagnosed with Dystonia about 15 yrs ago, can't really remember. I...
Whole body Dystonia
mplsmaxxa year ago
Hi, where is everybody?
4 Replies1 Like
matta year ago
If you’ve just arrived as a Pioneer member this is where it all begins. HealthUnlocked is a social network for health advocates like yoursel...
How well do you feel your dystonia has been managed over the last year?
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