We are an online community providing support, advocacy and information for anyone affected by the...Read more
Dee1234564 days ago
Hi I have head tremors and neck tension. Very embarrassed and self conscious about it. Anyone know the best treatment ?
Hi! Post-Stroke Dystonia patient here
DebbiMack6 days ago
I'm an author, screenwriter, and blogger, who's had dystonia since 2005. I'd love to see more research go into better treatments for people ...
10 Replies2 Likes
Dystonia Society Community Guidelines
DystoniaSocietyAdmin6 days ago
The Dystonia Society HealthUnlocked Community is an online support and discussion forum for anyone affected by dystonia. It is a place to sh...
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Oral bites and Dystonia
JoLeAm16855 months ago
Has anyone had positive results with oral bites with any form of Dystonia ?
saarima8 months ago
Is there anyone here who has oral dystonia caused by a tooth injury (dentist or somehow else)? What kind of symptoms do you have?
I think I h...
migdalia8 months ago
I have had an asymptomatic bunion for many years. This year after being diagnosed with foot dystonia my bunion has gotten worse and painful....
Anna559 months ago
I have had Parkinson's for almost 10 years and have now exhausted my medication options. I am now considering "dbs". Has anyone else had thi...
Can Head Injury be confused with Dystonia or Parkinsons?
Caroline42449 months ago
My husband had a head injury 35 years ago, and we were doing fine, but recently his walking has deteriorated - (difficulty in telling the ri...
Dystonia botox injections
teddy5510 months ago
Who has botox in london please ?
berejena10 months ago
A few weeks ago I slipped & fell on LH side, I continued walking for about two weeks, bit painful but thought badly bruised. My mother is dy...
My husband refuses aids to his walking
Caroline4244a year ago
Hi my husband & & are 73. He had a quite severe head injury in 1981 & recovered manageably well. But about 8-10 years ago slowly developed d...
joe45a year ago
I. Have both has anyone had relief from a stiff neck from meds and which ones helped I've been had Botox , baclofen, clonzapam,, diazepam no...
14 Replies1 Like
Balance - the good old days
JoLeama year ago
Age 58 in February 2008 when walking I felt as if the pavement was going up and down, similar to being on the ferry. I sat down. No other sy...
2 Replies3 Likes
I have Parkinsons and i also suffer with Dystonia
niecy64a year ago
Hi I have had PD for 11years just finished work now because of ill health. I started with Dystonia three years ago, it started in my toes o...
How do you control focal dystonia pain?
mattywellya year ago
My focal dystonia pain is getting worse in my finger I've taken iboprofuen and paracetamol but it has not helped. A orthopaedic surgeon says...
Wondering if anyone has suggestions
Alley1a year ago
I live in Idaho, my Neurologist wants me to start botox. problem is, no one in this area does botox for my Dystonia. This will make me drive...
Hiddena year ago
Hey, a new site. Where is everybody . HELLO HEllo hello ECHO ECho echo.
7 Replies1 Like
sharlynna year ago
Hi everyone, I have a diagnosis of cervical Dystonia and also rheumatoid arthritis. I work part time and my work colleagues are great. All m...
loppylou68a year ago
So glad to find dystonia society on heath unlocked
I've been suffering with dystonia majorly since 2012
I as I now know it have generalised dy...
berejena2 years ago
I was diagnosed with SCA (Spino Cerebellar Ataxia) about 20 yrs ago, then diagnosed with Dystonia about 15 yrs ago, can't really remember. I...
Whole body Dystonia
mplsmaxx2 years ago
Hi, where is everybody?
4 Replies1 Like
matt2 years ago
If you’ve just arrived as a Pioneer member this is where it all begins. HealthUnlocked is a social network for health advocates like yoursel...
The Dystonia Society relies entirely on receiving voluntary donations to provide vital services such as our website, our helpline, leaflets and local groups.
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