Dystonia Society | HealthUnlocked

Dystonia Society

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Mandibular dystonia after stroke

Hi - I have a form of dystonia which makes my jaw clench. It's worse at night. I...

Cervical collar

Can anyone recommend a soft cervical collar which does not come into contact wit...

Severe shoulder pain after Botox

Hi, has anyone experienced severe shoulder pain following Botox? I have cervical...

IOM treatment availability?

Hi, We are looking to relocate to the IOM for work purposes but I can’t seem to ...

Functional Cervical Dystonia ???

Does anyone have Cervical dystonia like symptoms that have been identified as be...

Respiratory Distress in Dystonia

Found this bit on a website and wondering if anyone else besides me experiences ...

Can Cervical Dystonia cause Rotator Cuff Tears

Hello, I was diagnosed with right sided cervical dystonia in 2018. I have been ...

Life has become unbearable

Please help me. The cervical dystonia pain in my neck is becoming truly unbearab...

Cervical Dystonia/inner ear links

Hello all My sister was diagnosed with cervical dystonia 10 years ag and has 3 m...

Does Artane work for anyone?

Hi all! Just wondering if anyone here is using Artane for their Cervical Dystoni...

What medications work for your ST?

Hi All! I have just joined, but I have had ST diagnosis March, 2019. However, wh...

New to cervical dystonia

Diagnosed with this condition 9 months ago, struggling with accepting it. I h...

Help with Cervical Dystonia please

Hi, I was recently diagnosed with Cervical Dystonia after being unsuccessfully t...

Mirtazepine

Hi everyone, does anyone have experience of taking mirtazepine and was it helpfu...

DBS - deep brain stimulation for Dystonia

Has anyone on here experienced or has DBS plz - I know mainly it’s for Parkinson...

Recently diagnosed Dystonia

Can anybody plz help me with advice - I’ve been recently diagnosed with dystonia...

Treatment due

Well I’m due to go to the eye clinic in 10 days time for my blepharospasm treatm...

Coronavirus

Am I at hi risk with the Coronavirus. And I have DBS fitted

Medication for what?

After years of complex issues and knowing we can send satellites into space find...

Head and Neck Tremor (External and Internal) with Dystonia

My initial symptoms started with balance issues. The way I would describe it is...

Cervical Dystonia and Exhaustion

Cervical Dystonia and Exhaustion Please can anyone tell me about their experien...

Factors and actions that make your dystonia symptoms worse or better.

Dear All, Will you please share info on what makes your dystonia better or worse...

Medication for Dystonia - what drug improves your dystonia symptoms?

Dear All, would really appreciate if you would share your experience in medicat...

New to this forum and loaded with questions??

I was diagnosed with dystonia but the GP never told me so I learned about it jus...

New to the Dystonia diagnosis

Greetings everyone, Been living with this since around 3 years of age, but only...

any one seeing Dr Saturno,Victoria Hosp,Kirkcaldy

I have been referred to a Dr Saturno at Victoria Hospital,Kirkcaldy,Fife. Has an...

CERVICAL DYSTONIA, DYSPHAGIA AND OSTEOARTHRITIS

Is anyone else coping with these? Had horrendous pain on left side of neck for...

Cervical Dystonia

Hi everyone, I have had cervical dystonia for 30 years and been through many tre...

Floating in water with cervical Dystonia

Hi I’m new here I have neck dystonia my left shoulder never really relaxes I hav...

Clonazepam Experience

Does anyone have experience of taking this drug? On visiting the neurologist for...
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