Dystonia Society | HealthUnlocked

Dystonia Society

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Swollen muscle

Does anyone get swollen muscle at side of neck? And what to do about it 😵‍💫😕 ...

storms

does anyone else have severe storms?
debbieduke profile image

Do anyone get triggered by by other things not just involuntary movements?

I seen a neurologist who thinks I may have dystonia. From what I've read dystoni...
Charts profile image

Does anyone else have difficulty with SSRI's exacerbating Dystonia? I have to take ridiculously low doses or spasms become so painful...

Does anyone else have difficulty with SSRI's exacerbating Dystonia? I have to ta...
pepper7172 profile image

Dystonia and memory loss/ cognitive functoning

Hi I know that dystopia doesn’t tend to affect cognition or memory, but I have i...

Specialist help please

I live in Manchester in the UK happy to travel but would like advice on speciali...
Avamia94 profile image

Mandibular dystonia after stroke

Hi - I have a form of dystonia which makes my jaw clench. It's worse at night. I...
Gilldy profile image

Cervical collar

Can anyone recommend a soft cervical collar which does not come into contact wit...
CDSux profile image

Severe shoulder pain after Botox

Hi, has anyone experienced severe shoulder pain following Botox? I have cervical...
WillyWonky profile image

IOM treatment availability?

Hi, We are looking to relocate to the IOM for work purposes but I can’t seem to ...

Functional Cervical Dystonia ???

Does anyone have Cervical dystonia like symptoms that have been identified as be...

Respiratory Distress in Dystonia

Found this bit on a website and wondering if anyone else besides me experiences ...
rideabike profile image

Can Cervical Dystonia cause Rotator Cuff Tears

Hello, I was diagnosed with right sided cervical dystonia in 2018. I have been ...
HKAnne profile image

Life has become unbearable

Please help me. The cervical dystonia pain in my neck is becoming truly unbearab...
Whitefooted profile image

Cervical Dystonia/inner ear links

Hello all My sister was diagnosed with cervical dystonia 10 years ag and has 3 m...
smilingjane profile image

Does Artane work for anyone?

Hi all! Just wondering if anyone here is using Artane for their Cervical Dystoni...
orth1998 profile image

What medications work for your ST?

Hi All! I have just joined, but I have had ST diagnosis March, 2019. However, wh...
orth1998 profile image

New to cervical dystonia

Diagnosed with this condition 9 months ago, struggling with accepting it. I h...
Dennis2019 profile image

Help with Cervical Dystonia please

Hi, I was recently diagnosed with Cervical Dystonia after being unsuccessfully t...
Wizardsmom profile image

Mirtazepine

Hi everyone, does anyone have experience of taking mirtazepine and was it helpfu...
Bellybob profile image

DBS - deep brain stimulation for Dystonia

Has anyone on here experienced or has DBS plz - I know mainly it’s for Parkinson...
Toto88 profile image

Recently diagnosed Dystonia

Can anybody plz help me with advice - I’ve been recently diagnosed with dystonia...
Toto88 profile image

Treatment due

Well I’m due to go to the eye clinic in 10 days time for my blepharospasm treatm...
Ali_H profile image

Coronavirus

Am I at hi risk with the Coronavirus. And I have DBS fitted
Gareth78 profile image

Medication for what?

After years of complex issues and knowing we can send satellites into space find...
123geoff profile image

Head and Neck Tremor (External and Internal) with Dystonia

My initial symptoms started with balance issues. The way I would describe it is...
Yrrek profile image

Cervical Dystonia and Exhaustion

Cervical Dystonia and Exhaustion Please can anyone tell me about their experien...
Rkai profile image

Factors and actions that make your dystonia symptoms worse or better.

Dear All, Will you please share info on what makes your dystonia better or worse...
AlecB625 profile image

Medication for Dystonia - what drug improves your dystonia symptoms?

Dear All, would really appreciate if you would share your experience in medicat...
AlecB625 profile image

New to this forum and loaded with questions??

I was diagnosed with dystonia but the GP never told me so I learned about it jus...
rideabike profile image
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