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PREPARING FOR DBS SURGERY. VERY WORRIED ABOUT THE INEVITABLE SIDE EFFECTS.
Hi every Parkies on this forum. If you are a PIGD non tremor dominant, young onset PD person, and have done Deep brain stimulation, please respond to my questions, How was your experience with the Neuropsychologist? What was the computer test like? Please share the negatives, if any post surgery.
Hi every Parkies on this forum. If you are a PIGD non tremor dominant, young onset PD person, and have done Deep brain stimulation, please respond to my questions, How was your experience with the Neuropsychologist? What was the computer test like? Please share the negatives, if any post surgery.
OREOLU
in
Cure Parkinson's
1 year ago
A further review please.
Latest results from medichecks: TSH 3.32 (0.274.2) Free T3 3.3 (3.1-6.8). T4 18.1 (12-22). CPR 3.61 (0.5). Ferritin 286 (13-150). Folate 7.66 (3.89-19.45). Vitamin B12 active. 87.7 (25.1-165). VitaminD 78 (50-200). TAB <13 TPA <9. Bloods taken
Latest results from medichecks: TSH 3.32 (0.274.2) Free T3 3.3 (3.1-6.8). T4 18.1 (12-22). CPR 3.61 (0.5). Ferritin 286 (13-150). Folate 7.66 (3.89-19.45). Vitamin B12 active. 87.7 (25.1-165). VitaminD 78 (50-200). TAB <13 TPA <9. Bloods taken
Sycamore33
in
Thyroid UK
1 year ago
Blood results
Hello, I know I have asked for advice before but wanted to clarify please. My recent bloods have been re-tested ;- I have Hashimoto's and on 100 of Levothyroxine. TSH - 4.6 (0.27-4.2) FT4-25.6 (12-22) T3- 3.0 (3.1-6.8) The Doctor says these are abnormal and not borderline as they were before Christmas
Hello, I know I have asked for advice before but wanted to clarify please. My recent bloods have been re-tested ;- I have Hashimoto's and on 100 of Levothyroxine. TSH - 4.6 (0.27-4.2) FT4-25.6 (12-22) T3- 3.0 (3.1-6.8) The Doctor says these are abnormal and not borderline as they were before Christmas
goofball
in
Thyroid UK
1 year ago
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I despise to the stigma of mental illness
I have been doing a lot of promotion lately to help pulverize the stigma of mental illness. I strongly believe the stigma plays a very direct and prominent role in people dying. Specifcally for MDD, as that is my main diagnosis. I have uncovered a lot of insights about the stigma along my journey.
I have been doing a lot of promotion lately to help pulverize the stigma of mental illness. I strongly believe the stigma plays a very direct and prominent role in people dying. Specifcally for MDD, as that is my main diagnosis. I have uncovered a lot of insights about the stigma along my journey.
jnelson66
in
Major Depressive Disorder (MDD) Support
1 year ago
Treatment Resistant Major Depressive Disorder: I am proof that there is hope.
I have been horrifically plagued by MDD for over a decade. In my journey I have tried literally every therapy and intervention possible including multiple medications, every psychotherapy possible, residential treatment programs, partial hospitalization plans, intensive outreach programs, TMS, ECT, ketamine
I have been horrifically plagued by MDD for over a decade. In my journey I have tried literally every therapy and intervention possible including multiple medications, every psychotherapy possible, residential treatment programs, partial hospitalization plans, intensive outreach programs, TMS, ECT, ketamine
jnelson66
in
Major Depressive Disorder (MDD) Support
1 year ago
Gluten-free diet for picky eaters?
I have celiac disease and my 5 year old was recently diagnosed with it. He also has autism so he's very picky about textures in food and has a limited amount of things that he will eat before his diagnosis. His favorite right now is avocado toast, but he won't eat any gluten-free bread I've found (and
I have celiac disease and my 5 year old was recently diagnosed with it. He also has autism so he's very picky about textures in food and has a limited amount of things that he will eat before his diagnosis. His favorite right now is avocado toast, but he won't eat any gluten-free bread I've found (and
redmama2
in
Gluten Free Guerrillas
1 year ago
“Non-celiac wheat sensitivity: rationality and irrationality of a gluten-free diet…”
“Non-celiac wheat sensitivity: rationality and irrationality of a gluten-free diet in individuals affected with non-celiac disease: a review” https://bmcgastroenterol.biomedcentral.com/articles/10.1186/s12876-020-01568-6 . The above is a review article about the complications and clinical aspects
“Non-celiac wheat sensitivity: rationality and irrationality of a gluten-free diet in individuals affected with non-celiac disease: a review” https://bmcgastroenterol.biomedcentral.com/articles/10.1186/s12876-020-01568-6 . The above is a review article about the complications and clinical aspects
Researchfan
in
Gluten Free Guerrillas
1 year ago
RLS newbie
Hi all, I was hoping you could give me some advice about where to begin, as I'm finding reading through the posts, although very helpful, also overwhelming! I have self diagnosed as having RLS for about 20 years. It has been relatively ignorable until the last few years. Now it is affecting my sleep
Hi all, I was hoping you could give me some advice about where to begin, as I'm finding reading through the posts, although very helpful, also overwhelming! I have self diagnosed as having RLS for about 20 years. It has been relatively ignorable until the last few years. Now it is affecting my sleep
Awakeat3am
in
Restless Legs Syndrome
1 year ago
PLEASE REPLY IF YOU ARE A NON TREMOR DOMINANT PARKISON'S PATIENT WHO HAD DEEP BRAIN STIMULATION DONE.
MY QUESTIONS ARE : DID YOU HAVE BALANCE AND GAIT PROBLEMS BEFORE HAVING DBS SURGERY? iF YES,DID DBS HELP WITH IMPROVING YOUR GAIIT AND BALANCE? 2)WHAT ARE THE BENEFITS THAT YOU GAIN FROM DBS? 3) WHEN WAS YOU DBS DONE? 4) WILL YOU DO IT AGAI N?
MY QUESTIONS ARE : DID YOU HAVE BALANCE AND GAIT PROBLEMS BEFORE HAVING DBS SURGERY? iF YES,DID DBS HELP WITH IMPROVING YOUR GAIIT AND BALANCE? 2)WHAT ARE THE BENEFITS THAT YOU GAIN FROM DBS? 3) WHEN WAS YOU DBS DONE? 4) WILL YOU DO IT AGAI N?
OREOLU
in
Cure Parkinson's
1 year ago
PD-related acronyms
I had compiled this list for another forum. Trust it will be helpful for heathunlocked readers, too. BBB = Blood Brain Barrier CD = Carbidopa CD/LD = Comination of carbidopa and levodopa C/L = Carbidopa/levodopa CNS = Central Nervous System CR = Controlled Relase DA = Dopamine agonist DBS
I had compiled this list for another forum. Trust it will be helpful for heathunlocked readers, too. BBB = Blood Brain Barrier CD = Carbidopa CD/LD = Comination of carbidopa and levodopa C/L = Carbidopa/levodopa CNS = Central Nervous System CR = Controlled Relase DA = Dopamine agonist DBS
Bennorca
in
Cure Parkinson's
1 year ago
Anyone going through DEIVF with an underactive thyroid?
I was recently diagnosed with an underactive thyroid (over 7) in Spain during the process of deivf. I'm from the UK and my GP wanted to repeat the tests and is confirmed thyroid is low and I'm now on medication. Has anyone had a similar experience going through DEIVF? Any successful stories? I'm also
I was recently diagnosed with an underactive thyroid (over 7) in Spain during the process of deivf. I'm from the UK and my GP wanted to repeat the tests and is confirmed thyroid is low and I'm now on medication. Has anyone had a similar experience going through DEIVF? Any successful stories? I'm also
Stagefourendo
in
Thyroid UK
1 year ago
Recording now available for NoSilverBullet presentation by Dr A Fasano on "DBS, Focused Ultrasound and Infusion Pumps"
Dr. Fasano is Professor of Neurology at the University of Toronto and one of the world leaders in deep brain stimulation. Watch his presentation on YouTube here https://www.youtube.com/watch?v=g5z7tYJrxsU Or listen to it as a podcast on Spotify here https://open.spotify.com/show/6WIgOhwJemjqE2bnDPu44P
Dr. Fasano is Professor of Neurology at the University of Toronto and one of the world leaders in deep brain stimulation. Watch his presentation on YouTube here https://www.youtube.com/watch?v=g5z7tYJrxsU Or listen to it as a podcast on Spotify here https://open.spotify.com/show/6WIgOhwJemjqE2bnDPu44P
Michel0220
in
Cure Parkinson's
1 year ago
Can T3 reduce thyroglobulin antibodies?
I was diagnosed in 2018 with Hashimoto's. Had Hypothyroidism since 2002. My thyroglobulin antibodies were over 4000 at diagnosis. Over the years I've slowly managed to reduce them by changing my diet, introducing T3 etc. My last blood test in September 2022 showed slightly elevated T3 levels so since
I was diagnosed in 2018 with Hashimoto's. Had Hypothyroidism since 2002. My thyroglobulin antibodies were over 4000 at diagnosis. Over the years I've slowly managed to reduce them by changing my diet, introducing T3 etc. My last blood test in September 2022 showed slightly elevated T3 levels so since
ceedee81
in
Thyroid UK
1 year ago
Fantastic series of Videos charting one lady’s DBS journey
Produced by Parkinson’s UK, this fantastic series of 10 videos, (to date), charts the journey of Jo Yaldren from thinking about having DBS , through medical assessments, doctors case discussions, tests, meeting with the surgeon and the surgery itself. Very much a personal record with Jo sharing the
Produced by Parkinson’s UK, this fantastic series of 10 videos, (to date), charts the journey of Jo Yaldren from thinking about having DBS , through medical assessments, doctors case discussions, tests, meeting with the surgeon and the surgery itself. Very much a personal record with Jo sharing the
Buckholt
in
Cure Parkinson's
1 year ago
A quieter week this week!
My husband's very first attempt at baking and it was delicious! I Pottered about flower arranging, and a goodly haul of conkers. Meds still helping cough and breathlessness but stink of deep heat cuz have a very bad pain just above my pelvis on the left side. Yoga in half an hour so some deep stretches
My husband's very first attempt at baking and it was delicious! I Pottered about flower arranging, and a goodly haul of conkers. Meds still helping cough and breathlessness but stink of deep heat cuz have a very bad pain just above my pelvis on the left side. Yoga in half an hour so some deep stretches
Karenanne61
in
Lung Conditions Community Forum
2 years ago
Deep Brain Stimulation
Study from China on Parkinson's patients with RLS showed Deep Brain Stimulation reduced RLS & helped sleep.I certainly wouldn't consider it. Seems too extreme but if the Parkinson's patients are having the treatment to help tremor, it would be sensible to see if stimulation in another area relieves RLS
Study from China on Parkinson's patients with RLS showed Deep Brain Stimulation reduced RLS & helped sleep.I certainly wouldn't consider it. Seems too extreme but if the Parkinson's patients are having the treatment to help tremor, it would be sensible to see if stimulation in another area relieves RLS
Joolsg
in
Restless Legs Syndrome
1 year ago
Technical ability of surgeon resulted in poor outcomes in DBS patients
"[i]Electrodes have to be put in the correct place or within 1-2mm, otherwise they can damage a person's speech and balance.[/i] [i]It[/i][i] examined 22 cases involving 21 patients between 2017 and 2019 and found in only three the electrodes were placed in a good position. Five were usable and 13 were
"[i]Electrodes have to be put in the correct place or within 1-2mm, otherwise they can damage a person's speech and balance.[/i] [i]It[/i][i] examined 22 cases involving 21 patients between 2017 and 2019 and found in only three the electrodes were placed in a good position. Five were usable and 13 were
Seamus6
in
Cure Parkinson's
1 year ago
Continuous Electrical Neuromodulation of the Globus Pallidus Intern in Parkinson's Disease by the Directional Electrode
https://clinicaltrials.gov/ct2/show/NCT05626608 The hypothesis is that the efficacy of DBS in directional mode will be more effective on the motor signs of Parkinson's disease compared to omnidirectional stimulation and bipolar mode, with a better tolerance profile (fewer side effects).
https://clinicaltrials.gov/ct2/show/NCT05626608 The hypothesis is that the efficacy of DBS in directional mode will be more effective on the motor signs of Parkinson's disease compared to omnidirectional stimulation and bipolar mode, with a better tolerance profile (fewer side effects).
Hidden
in
Cure Parkinson's
1 year ago
video: GNI Grand Rounds: Deep Brain Stimulation for Parkinson’s Disease: Where we are and where we’re going
https://www.youtube.com/watch?v=i5BcRkcocqY
https://www.youtube.com/watch?v=i5BcRkcocqY
Hidden
in
Cure Parkinson's
1 year ago
Mything the point: Some Thoughts on Living Well with PD
This sort of thing is a tough sell in the sense that people running the show at PD websites are worried that submissions that aren't predictably positive or upbeat in tone might upset regular readers. In some cases, fundraising' may come into play. As noted in the piece, I'm not trying to stir up a
This sort of thing is a tough sell in the sense that people running the show at PD websites are worried that submissions that aren't predictably positive or upbeat in tone might upset regular readers. In some cases, fundraising' may come into play. As noted in the piece, I'm not trying to stir up a
slapdasch4
in
Cure Parkinson's
1 year ago
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