Posts - SHARE Metastatic Breast Cancer | HealthUnlocked

SHARE Metastatic Breast Cancer

6,607 members • 8,142 posts

All posts for February 2023

thanks for your support ibrance

they overnighted my page 2 so maybe get a response today. My drs office is just as frustrated as me. Hugs to all of you!

they overnighted my page 2 so maybe get a response today. My drs office is just ...

Sharon0122

•1 year ago

3 Replies

eye problem solved

hi everybody ,I have had a problem with my eyes , they are watering and I could see black squiggles and dots at the side of my right eye, I was told by the...

hi everybody ,I have had a problem with my eyes , they are watering and I could...

Liessie

•1 year ago

23 Replies

Ibrance

has anyone had problems getting their Ibrance assistance approval this year? I have called everyday for the past week and they can’t get my page two uploaded...

has anyone had problems getting their Ibrance assistance approval this year? I h...

Sharon0122

•1 year ago

13 Replies

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To those who replied to my question on clinical trials

To those who replied to my question on joining clinical trials, I am overwhelmed by your kindness in sending me emails. I will answer your emails soon but I...

To those who replied to my question on joining clinical trials, I am overwhelmed...

MyMiracle13

•1 year ago

2 Replies

advice on Piqray

I started taking Piqray about a week ago. My immediate side effect was nausea and vomiting. I’m taking Zofran and that has helped tremendously however I feel...

I started taking Piqray about a week ago. My immediate side effect was nausea an...

Jhshl512

•1 year ago

18 Replies

alkaline phosphatase

So I read somewhere after googling can cancer be detected on regular CMP panel because I had a CMP panel in October 2021 (normal) and then X-rays in January...

So I read somewhere after googling can cancer be detected on regular CMP panel b...

CatLady2022

•1 year ago

11 Replies

For those on IV Chemo - How Long for Tumor Markers to Drop

For those of you on IV chemo, can you share how long it took for your tumor markers to drop after you started? Conversely, if your tumor markers didn’t drop...

For those of you on IV chemo, can you share how long it took for your tumor mark...

Half-Full

•1 year ago

6 Replies

hi I’m Sharon uk I’d love to chat to other people with breast cancer metastatic

I’d love to talk to people with metastatic breast cancer Liver/bones iv had pet scan 2mri scan 8 biopsy 2 ct scans Iv had 6 rounds chemotherapy And I’m due...

I’d love to talk to people with metastatic breast cancer Liver/bones iv had pet ...

Sharonpat

•1 year ago

53 Replies

HAS ANYONE PARTICIPATED IN CLINICAL TRIALS

Hello everyone. Has anybody on this forum ever joined in a clinical trial? I have been invited to join a Phase 1 clinical trial for LOXO-783. The new drug...

Hello everyone. Has anybody on this forum ever joined in a clinical trial? I h...

MyMiracle13

•1 year ago

34 Replies

15.3 and 27.29 increased after having covid

For the past two months my tumor marker numbers have increased after having covid in December, each month they both have went up 10 points. I am scheduled to...

For the past two months my tumor marker numbers have increased after having covi...

Spettis7

•1 year ago

1 Reply

If my scans show stability, why do I feel like my health continues to decline?

In general other women that have continuing issues with medications, and struggle with declining health. It's hard for me to determine if it's cancer, aging...

In general other women that have continuing issues with medications, and struggl...

GramorNonna

•1 year ago

17 Replies

allergic reaction to aromasin

Has anyone had an allergic reaction to Aromasin? My dr thought it was Afinitor that I was allergic to. I started Aromasin again. 5 days later I had a rash...

Has anyone had an allergic reaction to Aromasin? My dr thought it was Afinitor ...

Shafight

•1 year ago

5 Replies

Unrelenting pain post chemo dose

Hi, 3 years post mbc diagnosis And my scan in December showed progression in both my liver and lungs. There is no spread into my bones. Commenced on 3 weekly...

Hi, 3 years post mbc diagnosis And my scan in December showed progression in bot...

Cazdf

•1 year ago

16 Replies

FDA Approved Oral SERD - Elacestrant (ORSERDU) 1/27/23!!!

Hi fellow MBC’ers: Here’s the latest approval from the FDA on approval of the Oral SERD that takes the place of the monthly (painful) Faslodex injections:...

Hi fellow MBC’ers: Here’s the latest approval from the FDA on approval of the O...

hopenowandtomorrow

•1 year ago

24 Replies

Xeloda dreams

Anyone else on Xeloda having vivid, memorable, sometimes disturbing dreams? Just curious …

Anyone else on Xeloda having vivid, memorable, sometimes disturbing dreams? Just...

LDR1

•1 year ago

3 Replies

Verzenio loss of taste

Hi Ladies, I’ve been on been on Faslodex and Verzenio since August 2022 for MBC and after 3 months developed altered/loss of taste. I also was recently...

Hi Ladies, I’ve been on been on Faslodex and Verzenio since August 2022 for MBC...

Lavender24

•1 year ago

3 Replies

Xelado

Ibrance/Letrozole has stopped working for me. Will be starting Xeloda. Anyone have side effects from Xeloda?

Ibrance/Letrozole has stopped working for me. Will be starting Xeloda. Anyone ha...

Marla61

•1 year ago

4 Replies

Decided to opt out of at home hospice after six weeks

I feel good. I do not even feel sick. I still am on strong pain meds, but I no longer need the walker (the enhertu infusion from hell). The nurse comes...

I feel good. I do not even feel sick. I still am on strong pain meds, but I no...

kearnan

•1 year ago

54 Replies

Extra Afinitor 10 mg and 7.5 mg

Hi. I have had bad side effects from Afinitor. My oncologist has taken me off Afinitor and will be putting me on Xeloda. I gave a week of the 10mg still...

Hi. I have had bad side effects from Afinitor. My oncologist has taken me off...

1711JPD

•1 year ago

10 Replies

platlets

hi ladies. Strange thing happened the other day. I have been on ibrance and faslodex for over 5 years and usually all my blood work is good but this time my...

hi ladies. Strange thing happened the other day. I have been on ibrance and fasl...

marianne88

•1 year ago

2 Replies

Enhertu

Hair loss and Enhertu Any thoughts?

elle3054

•1 year ago

20 Replies

does Ibrance cause gastritis? FODMAP diet helps diarrhea from Ibrance.

I have estrogen positive MBC since 2018 and on Ibrance and Faslodex since that time. I have been in remission for 18 months. one year ago I had a colonoscopy...

I have estrogen positive MBC since 2018 and on Ibrance and Faslodex since that t...

cheflala

•1 year ago

6 Replies

Has anyone done just a few days of radiation for pain relief?

today is the fifth and final day of my short term radiation that is intended to relieve hip and back pain. The doctors thought that this would help me...

today is the fifth and final day of my short term radiation that is intended to...

Flavia100

•1 year ago

14 Replies

capecitibine not working

Help!!!! Has anyone had this problem. Only been on it a few months and brought markers down to 3!!!! Last blood results markers have risen to 692 so it’s gone...

Help!!!! Has anyone had this problem. Only been on it a few months and brought m...

Hm50

•1 year ago

39 Replies

MBC retreats

If you have been on a retreat for MBC patients, what did you find most enjoyable, most valuable and would you do it again?

If you have been on a retreat for MBC patients, what did you find most enjoyable...

troutgal

•1 year ago

27 Replies

why? Is this normal?

UK based, incredibly sore pain, vomiting for 3 days consistently. Hospital said stones in gallbladder may leak out unless it is removed, after ct scan alter...

UK based, incredibly sore pain, vomiting for 3 days consistently. Hospital said ...

Bbok

•1 year ago

9 Replies

mpc and IVC

I have been on adjunct vitamin C Theropy for 10 months. 28g daily plus 75g 2xw early on and still 28g daily plus 75g 1xm now. Is anyone else doing IVC ?

I have been on adjunct vitamin C Theropy for 10 months. 28g daily plus 75g 2xw e...

Carplake

•1 year ago

22 Replies

medical insurance while on long term disability (US).

Hi, I’m currently working full-time from home, but don’t know how long I’ll be able to continue. After short term term disability, I’ll need to apply for a...

Hi, I’m currently working full-time from home, but don’t know how long I’ll be ...

Tolife_18

•1 year ago

25 Replies

Thyroid Issues on Ibrance?

I have been on Ibrance and anastrozle for four years and thank the Lord I am clear. Since the beginning of Ibrance, I have noticed that as the three weeks on...

I have been on Ibrance and anastrozle for four years and thank the Lord I am cle...

SushiLife

•1 year ago

12 Replies

Disability or still working?

I’m curious to know if anyone is receiving disability but has a small side job to supplement. I don’t know how disability works but I know I will not receive...

I’m curious to know if anyone is receiving disability but has a small side job t...

CatLady2022

•1 year ago

25 Replies

Posts - SHARE Metastatic Breast Cancer | HealthUnlocked

SHARE Metastatic Breast Cancer

All posts for February 2023

thanks for your support ibrance

eye problem solved

Ibrance

To those who replied to my question on clinical trials

advice on Piqray

alkaline phosphatase

For those on IV Chemo - How Long for Tumor Markers to Drop

hi I’m Sharon uk I’d love to chat to other people with breast cancer metastatic

HAS ANYONE PARTICIPATED IN CLINICAL TRIALS

15.3 and 27.29 increased after having covid

If my scans show stability, why do I feel like my health continues to decline?

allergic reaction to aromasin

Unrelenting pain post chemo dose

FDA Approved Oral SERD - Elacestrant (ORSERDU) 1/27/23!!!

Xeloda dreams

Verzenio loss of taste

Xelado

Decided to opt out of at home hospice after six weeks

Extra Afinitor 10 mg and 7.5 mg

platlets

Enhertu

does Ibrance cause gastritis? FODMAP diet helps diarrhea from Ibrance.

Has anyone done just a few days of radiation for pain relief?

capecitibine not working

MBC retreats

why? Is this normal?

mpc and IVC

medical insurance while on long term disability (US).

Thyroid Issues on Ibrance?

Disability or still working?

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