why? Is this normal?

[Bbok]

UK based, incredibly sore pain, vomiting for 3 days consistently. Hospital said stones in gallbladder may leak out unless it is removed, after ct scan alter sound and many blood tests.. operation successfully executed, sergeon said, lots of many stones some had to be mopped up and stomach cleaned. 8 weeks later told, stage 2 cancer, has not stress outside walls and I’m lucky it was contained and found early, however I am a cancer patient and there will be further treatment. Liver resection and lymph node thingy. Open surgery. 12 weeks later a nurse said your biopsy has just come back, you don’t have cancer but we want to do chemo on you to mop up any floating cancer cells that may or may not be there. A bile stent would not come out. After 4 appointments attending hospital with two different surgeons ment another surgery. Surgeon told me cancer found in liver and one lymph node. The oncologist said there are no markers for cancer, bloods fine. Right now I wish I’d never gone for surgery. I’m in pain and on 38 tablets a day. What is going on? I think they think I’m spoilt. I am worried

[Bbok]

my temperature was dropping to just above 34. Told to get new thermometer. Had UTI during first round of chemo, told not to take my temperature unless feeling sick?? Lost trust in NHS do not want to continue this journey

[jersey-jazz in reply to Bbok]

FxxK those doctors that had do this to you!!! I wish I could go hug you and stroke your forehead but I'm on the left side of the Atlantic. Do you have an advocate? You need help to support you and to sort this mess out. What exactly is the situation with the cancer, now?

[Bbok in reply to jersey-jazz]

thank you for your loving gentle reply. Yes I feel like an animal at the zoo. But you know what? Your completely right I need an advacado no not the fruit! In a nut shell! I’ve been sailing this ship solo and navigation has been a bit reckless, time to unlock the gate and step right out of that sea wreaked cage!! Obviously I’m in wrong forum so with love and kisses from England and big hug thanks for your nuts x

[jersey-jazz in reply to Bbok]

Dear Bbok----Until you get the support you need, find the right agency and are feeling like you have some control of your life again, you are one of us. You are certainly welcome to this"wrong forum" and we will hold your hand till then. Be well! We care! Life is good. XXX OOO

[Travellady]

Hi there, sorry to hear you are so stressed out but piecing together the details you have posted I'm thinking you might be posting in the wrong forum as at a guess you have a stage 2 non breast cancer diagnosis.

This forum is for stage 4 breast cancer people and each different cancer type has different treatments so in order to get accurate advice you need to be posting in the appropriate forum for your specific cancer type.

Of course the initial diagnosis of cancer is a huge shock and the initial weeks can be a bit overwhelming. Talk to your clinical nurse specialist and see if they can help clarify any questions you might have.

Good luck with your treatment and I hope you get some peace of mind from fellow cancer type people in the correct forum.

[Bbok]

yes understandably wrong forum.. sorry! Stage 3 gallbladder is no where to be found but guessing GI will be a better suit

[Kerryd22]

Stay strong bbok! You are your own best advocate.

I’m stage four bc myself but I had to have the gallbladder removed due to inflammation. The pain was off the scale and unfortunately it took over a year to get a diagnosis other than constipation. After one scan I was told that the gallbladder didn’t look right but I probably hadn’t fasted properly. I’d definitely fasted properly but it was easy to blame the patient.

Fortuitously I’d had a CT scan just before the second episode and it was at the right time. The first scan was for the MBC and it was too early to see the gallbladder going into action. But the third one or maybe the fourth (can’t remember) was perfectly timed even though it wasn’t planned that way. The liver surgeon said that he thought the pain I reported was due to the MBC but I didn’t agree. But he was willing to operate anyway. The pain was such that it took around 8 hours for multiple opioids to have any effect but fortunately it wasn’t continuous throughout the year I was undiagnosed.

Sure enough on the day of the surgery, which was ten days after the CT scan alerted the radiologist to the problem, the gallbladder swelled up again so they were forced to enlarge the keyholes to something much larger but surgery did end the problem.

The oncologist said the sight of the gallbladder on the scan was the reason for the almost instant response from the surgeon. As the surgery took place just in time to stop the gallbladder from bursting I don’t really care why he operated, I’m just grateful that he did! Your operation sounds like it was similarly well timed so that’s a positive.

Hospitals everywhere are operating at less than optimal levels and while everyone says it’s Covid I don’t really see why it is so. There’s a shortage of radiologists to start with and that’s not new. There’s been experiments with AI to replace the humans with a computer and apparently the AI is more accurate than the humans. Each scan has to be read by two radiologists currently. At my clinic a four week wait is not at all uncommon to get results. Getting an MRI is a minimum six month wait. There’s no shortage of machines but there’s a dire shortage of well qualified staff for the newer machines.

I read that the NHS expects a huge increase in cancer rates due to Covid because so little screening was done in 2020/2022, before peaking in 2040. 😡 Rant over!

I hope you get to the bottom of your diagnosis and that it’s done with soon!

All the best

Kerry

[NPmary]

No you are not spoiled! And you are not at fault!I hope you get help getting all of your symptoms gone or at least at a more tolerable level. 🌺

[Timtam56]

I have now words. I’m sorry you are going through this!