Posts - Restless Legs Syndrome | HealthUnlocked

Restless Legs Syndrome

22,989 members•17,086 posts

All posts for March 2025

Off pramipexole but...

For 30+ years since a serious lumbar injury ive been on pregabalin and pramipexole. With life-changing wisdom from this site taken seriously by my GP, ive gone...

For 30+ years since a serious lumbar injury ive been on pregabalin and pramipexo...

Jamspoon73

•3 hours ago

1 Reply

High systolic blood pressure

I need to find a blood pressure treatment which will not drop the diastolic pressure (which is always in good normal range). I have been tried on several...

I need to find a blood pressure treatment which will not drop the diastolic pres...

Jelbea

•11 hours ago

4 Replies

GMB on Tuesday

Hi everyone, sorry not kept up with the lovely encouraging replies. Re the people that have suggested I speak to someone from RLS UK, I believe there is...

Hi everyone, sorry not kept up with the lovely encouraging replies. Re the peop...

Snoops112233

•14 hours ago

7 Replies

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NHS still recommending Dopamines

https://www.nhs.uk/conditions/restless-legs-syndrome/treatment/ Astonishingly NHS is STILL recommending Dopamine Agonists as treatment for RLS. I read NICE...

https://www.nhs.uk/conditions/restless-legs-syndrome/treatment/ Astonishingly N...

Doghorse

•14 hours ago

3 Replies

Low Ferratin

I have moderate RLS treated by co codamol and PanadolI take a good multivit,magnesium and turmeric.A pro and prebiotic and avoid processed food. Yet my...

I have moderate RLS treated by co codamol and PanadolI take a good multivit,magn...

Praise-to-God

•17 hours ago

2 Replies

Gabapentin increase question

I’m on 400mg Gabapentin atm . Have been totally off Pramipexole for 5 days now. Struggling with RLS a lot .. not getting sleep. I’m taking CBD oil with little...

I’m on 400mg Gabapentin atm . Have been totally off Pramipexole for 5 days now. ...

YoghurtLover2

•22 hours ago

2 Replies

Gabapentin Dosing

SueJohnson I know you've written about this a million times. I'm treating PLMD with three 400mg gabapentin pills a day. It seems with that setup I should take...

SueJohnson I know you've written about this a million times. I'm treating PLMD w...

MaxPolokov

•24 hours ago

1 Reply

Gabapentin side effects

Hi All I was weaned(a bit too quickly) off pramipexole and am now on 1600 mgs of Gabapentin.My RLS are slightly improved but I have very broken sleep.More...

Hi All I was weaned(a bit too quickly) off pramipexole and am now on 1600 mgs o...

Nellybaby

•1 day ago

1 Reply

They want me on TV

Hi all, I need your advice. I have been asked to go on Good Morning Britain to talk about DA’s, I am a nervous wreck, what is anyone’s thinking, if I felt...

Hi all, I need your advice. I have been asked to go on Good Morning Britain to...

Snoops112233

•1 day ago

18 Replies

Amazing discovery that has helped my RLS!

A couple of months ago, someone posted on this website about a book called Navigating Life With Restless Legs Syndrome, by Andrew R. Spector, MD. This...

A couple of months ago, someone posted on this website about a book called Navi...

Vestajo

•1 day ago

3 Replies

Ferritin results enquiry

Just got my latest ferritin/ trans ferritin saturation results as recommended by this forum as a major factor in RL- they are 239 & 40% respectively &...

Just got my latest ferritin/ trans ferritin saturation results as recommended by...

SwimLyn

•1 day ago

5 Replies

buprenorphine

I have just started on a buprenorphine patch and am having side effects of headache, dioarreha and horrendous nausea. I'm sure many others are on this...

I have just started on a buprenorphine patch and am having side effects of heada...

soupersuzy

•1 day ago

10 Replies

Drug combination

I've been taking 900mg of gabapentin with extremely limited success. I've not had any joy to date in getting opioids prescribed. My partner had some Codeine...

I've been taking 900mg of gabapentin with extremely limited success. I've not ha...

Believer1234

•1 day ago

5 Replies

Vitamins and RLS

https://journals.plos.org/plosone/article?id=10.1371/journal.pone.0313571 A useful meta analysis of vitamins and RLS. The conclusion shows Vit D deficiency is...

https://journals.plos.org/plosone/article?id=10.1371/journal.pone.0313571 A usef...

Joolsg

•2 days ago

10 Replies

SSRIs and Codeine

So, this may already have been mentioned here, but thought I'd post it for those taking codeine for their rls. I take escitalopram and codeine. I'm doing a...

So, this may already have been mentioned here, but thought I'd post it for those...

elsie1920

•2 days ago

8 Replies

BBC articles

Can I add my huge thanks and appreciation for the massive progress made yesterday following the items on BBC. You’ve worked so incredibly hard and tirelessly...

Can I add my huge thanks and appreciation for the massive progress made yesterda...

Dires

•2 days ago

1 Reply

RLS on BBC South news

Another news piece on BBC South evening News. https://www.bbc.co.uk/news/articles/cjw24p7jpgjo

Another news piece on BBC South evening News. https://www.bbc.co.uk/news/articl...

Joolsg

•2 days ago

1 Reply

RLS and Pramilexole

I see many posts about the above medication.I have been on .35 mg three times a day for years, and despite symptoms getting worse I now have PLMD to go with...

I see many posts about the above medication.I have been on .35 mg three times a ...

Harrey

•2 days ago

5 Replies

ono899oott

The above member has sent me a sob story scam about having 2 weeks to live and 30 million dollars or might be £'s to raise cash for an orphanage etc etc .I...

The above member has sent me a sob story scam about having 2 weeks to live and 3...

Pippins2

•2 days ago

20 Replies

RLS and Sleep Disruption – Any Tips Before Starting Medication?

Hi all, I've been dealing with RLS since 2023, and while my GP recommended iron supplements to address my low levels, I’ve achieved normal iron levels, yet...

Hi all, I've been dealing with RLS since 2023, and while my GP recommended iron...

Ezzzzie

•2 days ago

8 Replies

Here goes nothing...

Saw my primary care doctor today and will eliminate the last 0.0625 mg of Pramipexole tonight (down from 0.5 mg 6 months ago). I have started Gabapentin and...

Saw my primary care doctor today and will eliminate the last 0.0625 mg of Pramip...

madhttr

•2 days ago

2 Replies

Medicare Appeal for Buprenorphine

Just finished the Medicare hearing for the Buprenorphine trial. The pharmacy company( Cigna) did not appear. My case was reviewed , medical necessity accepted...

Just finished the Medicare hearing for the Buprenorphine trial. The pharmacy com...

teakabeagle

•2 days ago

6 Replies

I’ve had my drug review

I was on Tramadol, Neupro and pregabalin for nightly RLS and lots of pain. I had steroid injections on 9 January 2023 including into my sacroiliac joint - a...

I was on Tramadol, Neupro and pregabalin for nightly RLS and lots of pain. I h...

MumofBella

•2 days ago

12 Replies

Two items on the BBC website about effects of using DAs

https://www.bbc.co.uk/sounds/play/p0kx91mz https://www.bbc.co.uk/news/articles/cgkmrev6z2mo

https://www.bbc.co.uk/sounds/play/p0kx91mz https://www.bbc.co.uk/news/article...

Patrick_W

•2 days ago

3 Replies

Is it a good idea to take Tramadol as and when needed for RLS 1 - 2 times a week?

My symptoms vary quite dramatically on a day to day basis. When it's bad, it's painful and all over my arms, legs, back and shoulders. On other days they can...

My symptoms vary quite dramatically on a day to day basis. When it's bad, it's p...

MrCrow

•2 days ago

4 Replies

Dextroamphetamine as a treatment option?

I found a reddit post mentioning this drug as being a very effective treatment. I couldn't find much else about this anywhere else however. I was wondering if...

I found a reddit post mentioning this drug as being a very effective treatment. ...

MrCrow

•2 days ago

3 Replies

A missed opportunity 😔

I was initially happy to see an article about RLS on the BBC this morning but was quickly disappointed they chose to give into sensationalism (I.e. abnormal...

I was initially happy to see an article about RLS on the BBC this morning but wa...

Franciscophilus

•3 days ago

10 Replies

Latest News From RLS-UK

https://www.rls-uk.org/news

Joolsg

•3 days ago

27 Replies

Impulse Control Disorder in the News. Plea for more stories for a film by Mr Bates V Post Office Producer.

Many of you will have seen the BBC news stories today about Impulse Control Disorder caused by Dopamine agonists.The BBC have published a news article and a...

Many of you will have seen the BBC news stories today about Impulse Control Dis...

Joolsg

•3 days ago

13 Replies

BBC NEWS ON RLS

The BBC is running several radio interviews, television interviews and news articles on RLS today.Here is a link to one of the pieces....

The BBC is running several radio interviews, television interviews and news arti...

Joolsg

•3 days ago

5 Replies

Posts - Restless Legs Syndrome | HealthUnlocked

Restless Legs Syndrome

All posts for March 2025

Off pramipexole but...

High systolic blood pressure

GMB on Tuesday

NHS still recommending Dopamines

Low Ferratin

Gabapentin increase question

Gabapentin Dosing

Gabapentin side effects

They want me on TV

Amazing discovery that has helped my RLS!

Ferritin results enquiry

buprenorphine

Drug combination

Vitamins and RLS

SSRIs and Codeine

BBC articles

RLS on BBC South news

RLS and Pramilexole

ono899oott

RLS and Sleep Disruption – Any Tips Before Starting Medication?

Here goes nothing...

Medicare Appeal for Buprenorphine

I’ve had my drug review

Two items on the BBC website about effects of using DAs

Is it a good idea to take Tramadol as and when needed for RLS 1 - 2 times a week?

Dextroamphetamine as a treatment option?

A missed opportunity 😔

Latest News From RLS-UK

Impulse Control Disorder in the News. Plea for more stories for a film by Mr Bates V Post Office Producer.

BBC NEWS ON RLS

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