GMB on Tuesday

[Snoops112233]

Hi everyone, sorry not kept up with the lovely encouraging replies. Re the people that have suggested I speak to someone from RLS UK, I believe there is someone that maybe joining me on GMB. Thank you for the suggestions, I have taken it all in honestly, and I will re read everything before I go on. I just want to represent us all so well and do us and the problems we have justice. Many thanks again.

[Joolsg]

Well done Sue. Speaking out about this VERY common side effect is so important.

A few years back someone on here was told by their GP to 'get a grip' and join GAMBLERS anonymous!

And recently GPs have been telling patients ICD only happens at high dose. That is totally incorrect.

Another GP told a patient it only happens if the patient has a predisposition to gambling/risky sex. Again- complete nonsense.

At very low doses these drugs completely change brains and people act totally out of character. And it can happen years after you start the meds so no one makes the connection.

Off to Spain for 6 days.

I will toast you from there!

Well done you star!

[Snoops112233 in reply to Joolsg]

Great information thank you and as you say, completely incorrect. Have a fab holiday xx

[Joolsg in reply to Snoops112233]

👍❤️

[Elisse3 in reply to Joolsg]

Have a brilliant holiday!

[Joolsg in reply to Elisse3]

❤️

[Purpleyam in reply to Joolsg]

Have a wonderful time in Spain 🇪🇸 ❤️

[Elisse3]

That’s good to hear to have someone from RLS-UK with you. I am sure you will do well and speak for all of us. Look forward to seeing you on the program. Thank you for putting yourself forward. 😊

[Snoops112233 in reply to Elisse3]

Thank you so much x

[SueJohnson]

Thanks to you for being willing to do it!

[Snoops112233 in reply to SueJohnson]

Aw thank you so much x

[BabyBlue999]

Well done Snoops, you’re a star. Everyone has to know what we have to go from RLS. Thank you sincerely XX God bless you

[Snoops112233 in reply to BabyBlue999]

Bless you thank you

[SwimLyn]

Hi Snoops- when will this be on & where as not too clear on post.??I know us RL sufferers are getting a bit of press now which is great but please don't let it be all about the ' salacious' effects that some drugs have had & make sure those of us who don't have problems like that but nevertheless have a daily (&nightly) struggle in trying to control & live with this debilitating condition.

Own that microphone & champion RL research & education in the health service.Many thanks & good luck xx

[Snoops112233 in reply to SwimLyn]

Hi there, it is Tuesday at 8.15 (unless WW3 breaks out!). It’s funny you say that, as I have said that I don’t want the interview to focus on that, fortunately we have a Dr from RLS-UK on with me too. My focus on relation to RLS education is that I want there in the first instance a) blood tests to identify any deficiencies, b) for ‘the experts’ to take RLS as a serious debilitating condition and c) for more research to be done into holistic methods as first line attack, eg I now use magnesium spray and a Revitive and it keeps RLS at bay mostly.

[SwimLyn in reply to Snoops112233]

Thanks for that Snoops but still dont know if on radio or tv & the channel (s) sorry if you have said but have missed it.

And Wow we have the same routine in the fight against RL & nocturnal walkabouts although I must admit Pregabalin is helping a lot so far so fingers crossed that will continue.

Be grateful for the info re broadcast anyway as will definitely watch/listen to it.

[SwimLyn]

Hi Snoops- when will this be on & where as not too clear on post.??I know us RL sufferers are getting a bit of press now which is great but please don't let it be all about the ' salacious' effects that some drugs have had & make sure those of us who don't have problems like that but nevertheless have a daily (&nightly) struggle in trying to control & live with this debilitating condition.

Own that microphone & champion RL research & education in the health service.Many thanks & good luck xx

[Snoops112233 in reply to SwimLyn]

bbc.co.uk/programmes/p0kx91...

Here in a link to interview from BBC radio. On Tuesday I'm on GMB on TV at 8.15am 👍🏻

[goldlay]

Was it you on Womans Hour? If so well done. Not an easy one.

[Snoops112233 in reply to goldlay]

Hi no it wasn’t me on Woman’s Hour, that was someone who didn’t want to ‘go public’, understandably so. I was on Radio 5 in the morning x

[goldlay in reply to Snoops112233]

Oh I missed that one. Never mind. The Womans Hour lady had me in tears on my way home in the car! Good luck with GMB

[Snoops112233 in reply to goldlay]

Thank you x

[Zenawarrior73]

good luck snoops and thank you so much for doing this. The audience of gmb is huge and therefore the awareness this will spread is outstanding.

[Snoops112233 in reply to Zenawarrior73]

Thank you, I hope so, laying my story out on the line feels so vulnerable but the thought of others going through this with the DA's horrifies me so much.

[Kakally]

was it you Snoops this morning on GMB. I thought you were excellent. Very clear and fluent and put across the ‘wrongness’ of the DA ICD gambling scandal very well.

I’m so glad you are well now plus I hope your RLS is well controlled .

I was a little dismayed at the quote about a maximum of 20% of people who take DAs getting augmentation which simply is a huge underestimate. Plus I thought a few more things could have been said about the problems associated with DAs though I do appreciate there was limited time in such an interview

But totally well done Snoops…🤗

[Kaarina Administrator in reply to Kakally]

It most certainly was! What a star. 💪💛👏⭐🔥We at RLS-UK are so proud of her. Early start too for both. So pleased that Julian the Chair from RLS-UK joined her too. What a brilliant team. We are all indebted to Snoops. So courageous.